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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    You don't develop celiac overnight. It can be that three years ago you were already having symptoms but not yet enough damage in your intestine to have a positive biopsy. With your family history I think at the very least you should be tested periodically because chances are at some point you will start to test positive. Pauliina
  2. aikiducky
    Mine take two to three weeks as well. The worst and most obvious symptoms are over in a few days, but after that it takes the three weeks or so before I'm my usual perky self. Pauliina
  3. aikiducky
    Yes it does sound like a possibility to me... it's easy to test, leave out all milk products (read labels, just like you do for gluten!) for a couple of weeks and see what happens. If you feel better, try something with casein and see how you feel. If you feel worse, it would be a good idea to cut it out of your diet. Pauliina
  4. aikiducky
    I don't think it's celiac related. Different people react differently to mosquito bites, that's all. I recently read somewhere that heat helps if you apply it immediately to the bite, last time I had some bites on my ankles I took a hot hot shower, as hot as I could stand, and it did seem to help. Sometimes I roll a hot teacup over one. Pauliina
  5. aikiducky
    Nobody really knows what is long enough, even celiac experts don't agree about it. It makes sense when you think that people can develop damage at different rates. If you want an official diagnosis, it might actually be good that your appointment isn't until later because it'll give you more time to eat gluten and develop damage that can be tested. If...
  6. aikiducky
    I don't know if Switzerland follows the same allergen labelling laws that a lot of European countries do... in most of the EU, gluten has to be clearly marked on the label, and the only exceptions are maltodextrin, dextrose and glucose syrup (that sometimes but not always are from wheat) because those are considered refined enough to be safe. So if you read...
  7. aikiducky
    I thought I read on this board that Rice dream is now gluten free? Apparently they changed the production process or ingredients or whatever (I don't drink rice milk, so didn't really pay attention) but anyway, are you sure it isn't gluten free? Sometimes products change for the better... Pauliina
  8. aikiducky
    Your doctor is just old-fashioned. It used to be you had to have total villous atrophy before they'd call it celiac disease but at least here in Holland the new guide lines are that villi blunting is an earlier stage of celiac. So you just caught it early. I agree with the idea of a second opinion. A more knowledgeable doctor would probably be happy to...
  9. aikiducky
    For Holland, www.livaad.nl is a great resource. It's a database of over 20 000 gluten free products sold in Holland. There's a list that you can search with key words, but also separate lists of different supermarket chains you can print and take with you if you really want to do serious food shopping. There's also a list of celiac friendly restaurants ,...
  10. aikiducky
    To me a meltdown like that would be a typical glutening reaction. It's the reason I'm very very careful about what I eat. I could deal with the tummy upsets but it's hard to deal if the thing gluten attacks is your ability to deal if you see what I mean... My hubby knows so he doesn't freak out if I freak out, he just asks me what I've eaten. And I...
  11. aikiducky
    You could look at it this way: If you would be prepared to eat gluten for two months for testing, why not eat gluten for two weeks, test, and then if it is negative, continue for two months and test again? Because the first test could always be a positive, and save you weeks of misery. Pauliina
  12. aikiducky
    I would so show up in a t-shirt that said "I love my clueless co-workers/siblings/whoever it was that made the remark" the next time I was going to see them... Pauliina
  13. aikiducky
    False negatives on the blood tests are quite common. You could ask for a biopsy, it might still be positive despite the blood tests. Symptoms plus a close relative with celiac is a pretty good case for pushing for a biopsy I'd say. Or you could just try the diet and see if it helps. But then you have to be very sure that you won't need an official diagnosis...
  14. aikiducky
    Microwave and oven - are they used regularly for gluteny things? If not, a good clean should be enough. Everything you put in an oven of microwave is in some kind of container anyway, the food doesn't touch the surface, so a good clean should do the trick. If they are regularly used for gluten foods, everyone has to be diligent about not leaving crumbs...
  15. aikiducky
    It's not a simple recessive/dominant thing with celiac genes, you inherit bits and pieces from both parents, and it's possible that neither parent has the complete set and still a child ends up with celiac genes. It's also possible to have the celiac genes but to never get sick if the disease isn't triggered. Celiac can be triggered by things like stress...
  16. aikiducky
    My mom wore a traditional Finnish dress (if you go to Open Original Shared Link and click on "Koillismaa" on the long list of names, you see a photo of that particular dress). My MIL wore something very elegant in pale blue/grey. They both looked lovely. They get along very well and I rather suspect that they had called each other beforehand. Our biggest...
  17. aikiducky
    I'm glad you're having a good time, Ursa! I thought the Wasa kn
  18. aikiducky
    I was thinking check your thyroid as well. Another thing to try might be, try cutting out ALL sugar from your diet. You don't need to cut carbs, and you can eat fruit, but try avoiding all regular sugar for a while (and I'd say, don't replace with artificial sweeteners either). I don't know what the mechanism is, but this is the only thing that keeps...
  19. aikiducky
    I think having a slightly more rounded tummy towards the evening is completely normal, unless you've been having diarrhea all day or something. After all, everything that you've eaten during the day is still in there. It's also completely normal to weigh slightly more in the evening compared to the morning. If you want to know your real weight you need...
  20. aikiducky
    I think checking for bacterial overgrowth is actually a very good idea. Many newly diagnosed celiacs have it and it can really slow down your recovery. Pauliina
  21. aikiducky
    Maybe it helps to know that your reaction is normal? There are different stages to adjusting to a big life change - denial, anger, sadness and acceptance are the ones I remember going through. You'll get to where the diet is just a part of your life, but you need to go through all the stages of getting there first, and it can be tough. Here's a pretty...
  22. aikiducky
    Eriella really had a lot of sensible practical advice. My husband had a hard time believing how careful I need to be in the beginning as well. Let's face it, I had a hard time believing it and I was the one suffering the consequences! It took some time but nowadays (almost three years in) he's on board, though I sometimes need to remind him of things...
  23. aikiducky
    Rice milk is basically just water thickened with rice flour. You might just as well substitute with plain water. Milk adds some fat and protein to the bread, so if you leave milk out, you might want to add one egg, or some flax seed, or a bit extra oil. But honestly, I can't have ANY milk at all, and I've found that most recipes work just as well...
  24. aikiducky
    I don't know if you will still see this, but I hope you have a wonderful time! We've had lots of rain and thunder here in Holland as well. Yesterday evening we had lightning cracking straight above the house, scary... Pauliina back from a short quick visit to Finland...
  25. aikiducky
    Yeah, sugar can give you cravings, and you especially notice it if you haven't had any for a while. Don't be surprised if it gives you a "hangover" as well... Pauliina
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