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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    I react to vinegar as well. Nobody has apparently told my intestines that they're not supposed to! I haven't tried any distilled drinks lately, I prefer wine anyway. Pauliina
  2. aikiducky
    It's possible to have celiac disease that doesn't improve with the diet, it's called refractory then. It's very rare, but you could just be the rare unlucky one. At least your bloodtests went from positive on gluten to negative when gluten free and again positive on gluten. I would think that was a fairly good indication that you do indeed have it. ...
  3. aikiducky

    ARCHIVED Norway

    aikiducky replied to LisaP's topic in Traveling with Celiac Disease

    The codex norm (that wheat starch needs to follow to be considered safe for a celiac) might be well and good for the average celiac... I suppose they've done some long-time studies to check that it's actually safe to eat wheat starch long term and not start to show damage??? But for a super-sensitive person like me it's a PIA!!! I can't even trust...
  4. aikiducky
    Nice to see there are so many tea lovers here! I love to drink genmai-cha as well, but not all the time... the taste is too ...distinctive to drink every day I think. My favorite is different kinds of Darjeeling, I shop at a local tea and coffee shop, and just ask for their recommendations. They keep tempting me with a First Flush (horrendously expensive...
  5. aikiducky
    I eat mostly natural stuff, not packaged. I've been gluten-free for a year now, and I wanted to start out really careful. Now I'm beginning to experiment a little bit, but I only try one product at a time. I use different kinds of vegetables for variation. Now I've started to use more herbs as well. And when I crave something really sweet, I buy some...
  6. aikiducky
    No, yoghurt can't be a part of a casein free diet. Casein is the protein in dairy, it's still there in yoghurt. What you might have been thinking about is a lactose free, or a low lactose diet...lactose is the sugar in milk, and yoghurt has slightly less lactose so some people who are lactose - intolerant can eat (some) yoghurt. Pauliina
  7. aikiducky
    Actually I completely agree that it's nobody's business but mine that I choose to take care of my health. I think I'm fairly convincing about it in person, too, because I really have had amazingly little doubting reactions from people. But, I am self diagnosed, and so from time to time, it's just GOOD to get a bit of validation. That's all. To...
  8. aikiducky

    ARCHIVED False Negative?

    aikiducky replied to bex's topic in Doctors

    Would it be possible to let another doctor have a look at your biopsies? I don't know how it works exactly - are there like samples of tissue that someone else could look at and give a second opinion? Pauliina
  9. aikiducky
    I guess the burning liquid could be stomach acid. If you hadn't eaten right before throwing up and your stomach was empty it could be clear. Pauliina
  10. aikiducky
    Tiredofdoctors, thank you. As a self-diagnosed person, that was really good to hear. Pauliina
  11. aikiducky
    I promise you, it will get easier. There's lots you can eat, you just haven't found it yet. Buy some plain meat and potatoes, cucumber, tomatoes, salad... there's your meal, naturally gluten - free! I used to eat loads of bananas in the beginning, because their safe, easy to digest and I like them. There are lots of friendly people on this board...
  12. aikiducky
    The wheat starch might not be completely gluten free.. but the amount might have been so small that you don't get noticeable symptoms from it. That's not unusual, not everybody is supersensitive. I bet if you continued to eat the taquitos for a few days that you would start to have symptoms though. Whenever I start to get doubts, I dare myself to eat...
  13. aikiducky
    Another thing to bear in mind is that the intestinal damage is not something that happens all in one go. It's possible, and IMHO highly likely, that you're in the beginning stages of celiac disease, when there just isn't a lot of damage to show YET. So if you stop eating gluten now, you'll be one of the lucky few to have caught on early, and prevented a lot...
  14. aikiducky
    I'm in the who cares about gluten, I miss dairy camp! I'd eat chocolate bon bons... belgian ones... <drool> Ice cream Muesli with milk Actually, as long as it's low lactose, I do eat some ice cream in the holidays. I get tired and gassy but if I don't have to work... Pauliina
  15. aikiducky
    I took a vitamin B complex that has B1, B2, B3, B5, B6, B12, folic acid and a few other things I don't know English names for for quite some time. Nowadays I don't feel like I need it (gluten-free for a year) but I take one or two when I get badly glutened. It helps a lot with the mind fog and, though not so dramatically, the fatigue. Pauliina
  16. aikiducky
    I screwed up my chances of diagnosis by going gluten free before testing. I'd had D for a month, started suspecting it could be celiac so I went gluten free for a couple weeks. Felt infinitely better so I persuaded my rather sceptical doctor to do the blood test. My plan was to go back on gluten for a few weeks again, but after one bowl of muesli the pain...
  17. aikiducky
    I don't think your doctor's suggestion is all that crazy... He's probably thinking, try gluten free for a couple weeks, see if you feel any better, go back on gluten, see if you feel worse, and then do the test. At least it sounds like he's taking it seriously! Pauliina
  18. aikiducky

    ARCHIVED Kissing

    aikiducky replied to Nicolette's topic in Coping with Celiac Disease

    It's new for your husband, he'll need time to adjust to the thought that things are different now. Refusing to kiss him might feel like rejection to him, so you need to keep that in mind. That said, a breadcrumb in his mouth could get into yours when you kiss, and make you sick. You CAN get glutened by kissing! So he needs to keep that in mind. What...
  19. aikiducky
    One thought I had was you could maybe look for companies in Finland. There's quite a high awareness about celiac in Scandinavia in general, lots of companies that make gluten-free food. Maybe some of them would be willing to ship to Russia. Pauliina
  20. aikiducky
    For what it's worth, I think it sounds like you could well have celiac. It would be worth it to get tested. Sorry to hear you are having so many health problems, and such an unhelpful doctor... Pauliina
  21. aikiducky
    Exercise only without changing eating habits is actually not enough for most people. Sad but true. Pauliina
  22. aikiducky
    Eating a lot of soy will give me terrible acne. If you're using soy milk or eating a lot of tofu and stuff, it could be an idea to leave that out for a while and see what happens. Pauliina
  23. aikiducky
    I guess the word celiac gets used a bit like lactose intolerant. I mean it's perfectly natural for me to say I'm lactose intolerant, and similarly I could imagine saying I'm celiac. But to use it as an introduction of another person, umm.. "Meet my friend Pauliina, she's a nail biter."... Pauliina
  24. aikiducky
    I usually explain that my body mistakes a gluten molecule for a bacteria or virus, and starts to defend itself, but because there isn't actually anything to defend against, the antibodies start to eat up my intestines instead. Some people understand the explanation and are fine, others don't but it sounds impressive enough that they are fine anyway. Or maybe...
  25. aikiducky
    One thing I do for a quick meal is a bag of salad (a BIG bag!), chuck it in a bowl, add lemon juice, olive oil, a bit of salt, herbs, and then whatever I feel like, tuna from a can/ egg/ goats cheese/ olives/ nuts... doesn't involve any kind of chopping or cooking, just mix it all in a bowl. The portion I nowadays make for myself is what I'd have considered...
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