aikiducky
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Latest Celiac Disease News & Research:
Everything posted by aikiducky
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Well I'm in the category "it's not worth the pain". I hate the feeling of not being able to concentrate on anything, I just loose several days if I accidentally have a tiny little bit of cross contamination. I don't even want to imagine what a piece of cake or bread would do. That said, I don't think anyone needs to feel guilty about cheating. Pauliina
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Well, maybe it was worth it after all. That seems to be a common experience, spouses who give you a hard time until they see you really get sick from gluten once. I hope you're not feeling too sick anymore. Remember that it will take a few weeks to get over this gluten challenge, don't expect to be where you were last week for a while now. You're in...
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One fish dish I love is salmon cooked in a pan with a couple orange slices on top, and a sauce with the fat from the salmon and orange juice in it. Add some salt and rose pepper, yum. Pauliina
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ARCHIVED Dairy/gluten Free Chocolate
aikiducky replied to momandgirls's topic in Gluten-Free Recipes & Cooking Tips
Sometimes I make myself a chocolate treat by melting dark chocolate and mixing in thick coconut cream and sugar. Depending on how much coconut cream you use, it will harden in the fridge to be quite hard, or stay mousse- like. Sometimes I mix in almond flakes or raisins, especially the almonds make it taste milder. How sweet it is depends on the chocolate... -
ARCHIVED Gluten Intolerant Or Not Gluten Intolerant - That Is The Question.
aikiducky replied to Amzippity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like you might also be casein intolerant. I say that because you get sick with milk products, but the lactose test was negative. That could mean that you react to the milk protein, casein, and not lactose, milk sugar. You can easily test it by not eating any dairy for a couple of weeks and then reintroducing it. Pauliina -
ARCHIVED Normal Bm
aikiducky replied to sabrinajanae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you want to see if dairy really is the culprit, cut it out completely for a couple weeks. You can survive two weeks without dairy, right? Anyway, if you feel better after the two weeks, first try something like hard cheese and see what happens. The reason is that hard cheese doesn't have any lactose to speak of, so if you react to that, then it's the... -
ARCHIVED Got Lab Results, Could They Be Wrong?
aikiducky replied to SuzieQ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The time you were off gluten was so short that I seriously doubt it had an effect on the test results. There are a couple of other possibilities though: 1. you could be in the beginning stages of intestinal damage, when it doesn't yet show on blood tests of biopsies 2. you're gluten intolerant but not celiac, which means you might have horrible symptoms but... -
I just had one thought to add- the food that really makes one feel satisfied and full isn't carbs but proteins. Is it possible to at a bit more meat/fish etc. or do you think that would be to hard on your system? It's funny, what you eat in a day looks a lot like what I eat! I hope you can find more answers soon. Pauliina
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ARCHIVED Normal Bm
aikiducky replied to sabrinajanae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It doesn't sound like you have been really gluten free lately. Do keep in mind that after a good glutening, it will take up to three weeks for everything to return to normal, so if you slip up every month or so, you'll hardly ever feel well, and then it's easy to start doubting the diet. This is just my opinion, but what I'd do is: Stick to unprocessed... -
I went to the local health food store today, and to my delight they had a lot more gluten free products than before. So I start to look around and read labels (to check for dairy) and I was looking at all this bread and pasta and pizza crusts and cookies... and I couldn't really think of when to eat it! I don't eat cereal because I don't know what I would...
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ARCHIVED How Many Of You Decided You Had Problems Despite Negative Tests?
aikiducky replied to munchkinette's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went gluten free for a month before going to see my doc. Then I was planning to go back on gluten for a few weeks before having blood drawn, but the first day of that, after eating a bowl of cereal in the morning, I was in so much pain and so miserable I just went and had blood drawn that evening and went back gluten free right away. The blood test was... -
You know, this sounds EXACTLY like it was for me when I first went gluten free. I think you're on the right track, really. I think you can relax and just let time do it's job. Also, any time I get glutened, I first get D, and then when I start to get over it, I have C for a good while, and then finally everything gets more normal. So that could well...
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ARCHIVED Treatment Post Glutening?
aikiducky replied to silly-yak-mum's topic in Coping with Celiac Disease
Buy some fresh ginger root, peel it, cut in pieces, and boil in plenty of fresh water. Don't use too much at once, a few small pieces will be enough for several cups of tea. You can add your favorite tea to this, or drink it with honey, or just plain. Pauliina -
ARCHIVED What Does A Typical Day Of Eating Look Like For You All?
aikiducky replied to BeccaM's topic in Coping with Celiac Disease
Breakfast: Fruit salad with banana, pear and dates, with coconut cream (yum!). Ricecakes with goats cheese, sliced olives and herbs, nuked so the cheese melts. I eat this every morning and just never seem to get tired of it. And a pot of darjeeling tea. Possibly with cardamom. Yum. Lunch: A HUGE salad with iceberg, endive, something else green I don... -
I pretty much agree with Celiacruz about this. I just wanted to add that you'll probably discover for yourself, over time, how strict you need to be. People often become more sensitive to gluten after being gluten free for a while. You might end up wanting to avoid cross contamination simply because it makes you feel so bad. Or not. I would start sort of...
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ARCHIVED Misdiagnosis And Symptoms
aikiducky replied to JamesD's topic in Coping with Celiac Disease
Shimma, how long have you been gluten free? The most common mistake people make with celiac is thinking that they will get better quickly on the diet. It can take up to two - three years, that's the time scale we should be thinking about. Flattened vili are just not going to grow back overnight, and it takes time to replace all the nutrients that your body... -
ARCHIVED Those Of You Who Know About Blood Tests....
aikiducky replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It varies hugely from country to country in Europe, and it also depends on who you happens to see, of course. Pauliina -
ARCHIVED Traveling To Europe
aikiducky replied to GlutenFreeAl's topic in Traveling with Celiac Disease
Hi, I just saw this thread. I live in Holland, so if you decide to visit, ask away! Now if you want a holiday in celiac paradise, I'd recommend Finland. But I see you're planning more of a central european tour... Pauliina -
ARCHIVED Has Anyone Been Glutened By Nestle Hot Cocoa Mix?
aikiducky replied to danikali's topic in Coping with Celiac Disease
Maltitol, mannitol and xylitol are all different kinds of sugars, and they gave give you D, especially in big quantities. The other thing is, you haven't been gluten free all that long, have you? I used to go crazy trying to figure out where I would have gotten glutened from in the first months, but I think a lot of it was just natural ups and downs of... -
Yeah, I used to have the fatigue as well, feeling like no amount of sleep would make me feel refreshed. And terrible brain fog. I can't really say when I felt better, I felt sometimes better and sometimes worse, up and down for the first year. I mean some days were definitively good ones, but then I would start feeling worse again, and it wasn't always because...
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Oh, that's right, I used to drink a lot of peppermint tea as well. I haven't for a while (since the nausea is gone as well) so i forgot... Pauliina
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Yep, I was nauseous for definitely a few months after going gluten free. You can also make ginger tea with fresh ginger root. Cut up a few pieces, boil them in plenty water and make tea with the water - or just drink it with some honey, yum. The same pieces of ginger will be good for several times, in fact the first time I often find the taste too strong...
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ARCHIVED Worried And Wondering!
aikiducky replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been doing pretty well lately (I'm gluten free for about 16 months now) but especially in the beginning I'd get glutened quite often. There's definitely a learning curve! Your safest bet is to stick to natural stuff like fresh fruits and veggies, meat and fish, and prepare your food yourself, at least in the beginning. Pauliina -
ARCHIVED One Test Positive, The Other Negative
aikiducky replied to SuzieQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you mean you've been diagnosed with DH, or that you have a rash that appears when you eat grains and that you suspect is DH? AFAIK it can be diagnosed by a biopsy of your skin (when you're having the rash) and if you have DH, yes you definitively have celiac and need to be gluten free. Pauliina