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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

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    about to head to NIH....thanks for all the posts. have lots to write, hopefully tonight. rinne, so can we patent your voicemail, but insert "correct diagnosis" for whatever it is for all of us? I think I have a few choice words to "personalize" it at the end. L
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    Just to add: from the Journal of Clinical Immunology, written by an expert in EOS: Interestingly, despite the common finding of food-specific IgE in patients with EGIDs, food-induced anaphylactic responses only occur in a minority of patients. Thus EGIDs have properties that fall between pure IgE-mediated food allergy and cellular-mediated hypersensitivity...
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    Amy, We are happy to have you here! This is a great place for information, support, research, recipes, etc. No question is too silly, stupid, or gross---we have all been there and done that, so to speak. Your daughter is so lucky to have a mom that is so helpful and is determined to keep her 100% gluten free. Some personal favorites of mine: Tinkyada...
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    artgirl: mary's gone crackers are out for someone who cannot have lectins, because among other things, they have soy in them. peanut butter is out because peanuts are high in lectins. corkdarr: hummus is out because it is made from beans, which are legumes, which are all high in lectins. see the link I posted above for a description of lectins.
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    Nikki, I am so sorry that your sweet Felix died...hugs to you and your kids. It isn't easy when such a loving pet leaves us... xoxo, Laura
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    goodmorning all...
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    If lectins are your problem (they are part of mine, so I can sympathize), then almost all of these suggestions are out fritos/corn chips/popcorn: out (corn is high in lectin content) potato: out (nightshade family, high in lectin) sweet potato: not sure about. but sweet potato is not a nightshade (which potatoes are, which are high in lectin content...
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    Sissy, Great picture, by the way! Nice to "see" you! Laura
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    did you doctor mention IgA deficiency? He should have if your tests were so low. Whenever you have the Celiac tests done, you need to specifically request that the FULL panel is done. Many docs only run one or two but you need the full test done. Tsk Tsk Tsk to your doctor for not following correct diagnostic procedures. (Don't worry, mine had no idea too...
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    Compassion, Just wanted to say welcome to the board! You have been given some great advice so far. I just wanted to say that we are sad you have to go through all this...but happy that you have found us. It is such a great resource. Someone will know something about just about everything Remember, the biopsy can not rule out Celiac, it can only rule...
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    Yes, Eos can be in the esophagus, the stomach, the small intestine, and/or the colon. Here are some more of the sites I have found (beyond the apfed, the journal article, and kidswithfoodallergies: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link these...
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    Noel, I might have missed it, but did you say if you have or haven't had your celiac blood panel re-done? Or the biopsy? I'm happy you have found the support you need...this board is such a blessing in our lives, amongst all the uncertainty! Laura
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