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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    armetta, I just got home from johns hopkins and had an endo/colonoscopy....hadn't been on in the past two days so I just saw this. will it be ok if i write it this weekend? Laura
  2. happygirl
    2boys: The answer to your question is that it is known, and the answer is that you only need one (DQ2 or DQ8) to have Celiac. You do not have to have double copies. Some people can, or can have both 2 and 8, or only have one. Just having the gene doesn't mean anyone HAS celiac. about 30% of the population has one or both of the genes, but "only" 1...
  3. happygirl
    elaine, it is ok, trust me, we have ALL been there. that is why this board is so great. there are specialty gluten-free "rice cereals" though, at least. also, something that took me a little while to adjust to, but helped me in my thinking/dealing with food (esp to start off with). I took the approach of assuming that EVERYTHING had gluten in it...
  4. happygirl
    mr. j, recovery is a piece of cake-you are under heavy sedation. I have had three over the past few years and I'm going in for my fourth tomorrow. you will feel a little out of it, but thats it. i would recommend finding a doctor who knows something about eosinophilic disorders. not all eos. patients have elevated eos levels, but in those that do, it...
  5. happygirl
    marciab: i didn't see the clip so i don't know if he discussed it, but he covers misdiagnosis as well as other symptoms (beyond the typical ones), including neurological problems, in his book, which is AMAZING.
  6. happygirl
    elaine, you mentioned rice krispy treats...i am hoping they were not regular rice krispies as they have malt in them. that was one of the biggest shockers to me---I remember thinking why in the world would RICE krispies need gluten? sigh. Laura
  7. happygirl
    thanks for posting that info, Kathy. The NEJofMed is a very prominent journal and hard to get published in. I hope his work is validated and he is published. The publishing process is very long (receiving it, passing it out to reviewers, deciding if it is publishable, re-editing, publishing, etc) so hopefully it will have a positive result.
  8. happygirl
    hey curious although to someone on a gluten free diet for a week seems like a lifetime (and oh, god, it was!!!)....in the big scheme of things, it is not. It can take months to heal. Just getting the gluten out of the diet makes it better, but it will take time to heal. So, EVEN if you are 110% gluten free (and that takes time to learn, trust me)...
  9. happygirl
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  11. happygirl

    ARCHIVED Dr. Mercola

    happygirl replied to HawkFire's topic in Doctors

    Is he a Celiac specialist?
  12. happygirl
    Welcome to the board!
  13. happygirl
    Dessa, good luck to you! it can be hard to navigate all this. and yes, I bring my food everywhere. I was just the matron of honor in my best friend's wedding last weekend...I brought dinner to the rehearsal dinner, snacks for the wedding, did not take communion during the service, and brought my own dinner for the wedding. I bring my lunch every day...
  14. happygirl
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  15. happygirl

    ARCHIVED Eat Turkey

    happygirl replied to koch's topic in Coping with Celiac Disease

    Let me add my support to the not-eating stuffed turkey. The best evidence, besides those who get sick from eating something like that, is the presence of Celiacs who are asymptomatic. Those who have absolutely no symptoms whatsoever. And yet, they can have completely flattened villi and skyrocketed bloodwork. The lack of symptoms does not mean that...
  16. happygirl
    I'm going to offer the other side: I would have him gene tested through your doctor or through enterolab. If you get the gene test from Prometheus, it will be accepted in the medical community. If you use enterolab, even for the gene testing, I don't know how well it will be received....depends on your doctor, I guess. I know its not fun, esp for a sweet...
  17. happygirl
    hadn't heard anything, but that is great! I'll be at home, watching! thanks, judy!
  18. happygirl
    if you are near a whole foods, i highly recommend their own pizza crusts. I normally do not like "pre-made" gluten free products, but this one is to die for. hope you find something that works for you!
  19. happygirl
    Deb, I hope that you have a wonderfully happy birthday! you are such a special member of this board. L
  20. happygirl
    If you need more information, I highly recommend reading a recent book published by Dr. Peter Green of the Columbia Univ. Celiac Center, called: "Celiac Disease: A hidden epidemic" It discusses many of the related disorders (including thyroid), tells you EVERYTHING about Celiac, and provided so much insight. It was so refreshing to read something by a doctor...
  21. happygirl
    hey girl, In general, I have found people to bend over backwards to make me feel welcome. Yes, there are always some, and it is hard for some people to grasp this. I think a lot of it comes with 1. who it is and 2. how it is presented. I think the two most effective things that I learned is 1. to stand firm, show that it is not negotiatable, do not eat...
  22. happygirl
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  24. happygirl
    no problem-happy to help.
  25. happygirl
    miles2go: in general, if you are dx'ed while in the service, you are often kept stateside bc your dietary needs cannot be met while in battle. if you are dx'ed before, I have heard varying stories. (my father retired this past summer after serving for 38 years in the Navy so I have grown up around the military) most will tell you that chances are, you...
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