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happygirl

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Everything posted by happygirl

  1. happygirl
    Try calling local GI and/or Derm units at the hospitals and ask them if they have members who can.
  2. happygirl
    My first thought would be to contact a local support group and ask for someone they can recommend ... either that their members see, or maybe is an advisory member to the group. Open Original Shared Link Good luck! Also: https://www.celiac.com/articles/277/1/Unite...tors/Page1.html
  3. happygirl
    This may help: Open Original Shared Link
  4. happygirl
    Keep in mind that the "typical" GI symptoms that we think of are now actually thought to be in the minority. Doctors now think that atypical presentations are probably in the majority of patients. "Reports from Scotland, England, Canada, and the United States have also shown that almost 50% of patients with newly diagnosed celiac disease do not present...
  5. happygirl
    Welcome to the board, Kimberly! All of your first degree relatives, regardless of symptoms, should be tested. All children, siblings, and your parents. "Q: Why do my family members need to be screened for celiac disease? When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children) should...
  6. happygirl
    Yes, yes, yes, yes. Not all people are extremely sensitive, but some are. Tiny amounts of gluten affect some way more than others. I am extremely sensitive to gluten. I've been glutened in all those instances (eating out, other ppls foods, prepared foods, etc). I'd cut down and go 100% gluten free and see how you do. Good luck.
  7. happygirl
    If you are still positive, your body hasn't healed yet. So you probably aren't fully absorbing vitamins, minerals, nutrients, etc. It takes a long time for some people to heal. Hang in there.
  8. happygirl
    You may also want to check out eosinophilic disorders, since he may have multiple food problems: Open Original Shared Link
  9. happygirl
    You may want to take out the oats. Regular oats are not gluten free. Even the specialty oats (i.e., not Quaker, etc) cause reactions in some people. Best of luck and I hope that you find some answers!
  10. happygirl

    ARCHIVED Endoscopy Clarification

    happygirl replied to Healthy Girl's topic in Doctors

    Contact a local Celiac support group and ask for doctors that their members use.
  11. happygirl
    Safe foods: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html Unsafe foods: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html companies that won't hide gluten on their labels: Open Original Shared Link Hope these help in navigating labels. Other good websites for info: www.celiacdiseasecenter.columbia.edu www.celiacdisease...
  12. happygirl

    ARCHIVED What Blood Test Did I Have?

    happygirl replied to DrewMa's topic in Doctors

    Every lab has different ranges, so you can't figure it out based on your score. If he thinks you have Celiac, you probably were positive on the EMA or tTG test. Call your doctor and find out: Name of each test Reference Range for each test Your result for each test These are the tests that should have been done, but often, doctors don't run...
  13. happygirl
    Safe: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html Not safe: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html Food companies that won't hide gluten (so you don't have to worry if you don't see it): Open Original Shared Link Take these with you to the store and it will help you considerably. Good luck!
  14. happygirl
    This is HUGE! Thanks for posting this, MG.
  15. happygirl
    There are gluten free beers that will be just fine....Redbridge by Budweiser is a newer one and fairly easy to find in some regions.
  16. happygirl
    The blood tests you want ordered are: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. And you must be eating gluten...do not go gluten free until ALL testing is completed. Any doctor can order the tests, just...
  17. happygirl
    Were you eating gluten at the time of the test? If you were gluten free, your testing will be affected. You may also want to have the total IgA test done. If you are IgA deficient (which is common with Celiac), you won't test positive through the tTG IgA testing, even if you have Celiac. There are other Celiac tests that are good, particularly the...
  18. happygirl
    Yes, the genetic test is a blood test. Ask to be tested for these two genes: HLA DQ2 and HLA DQ8.
  19. happygirl
    https://www.celiac.com/articles/12/1/How-lo...gful/Page1.html Many would say that no, 1 week is not long enough. It greatly incrases the risk of a false negative. You could test positive, but if you get a negative, it isn't as accurate. If you choose to have the biopsy done, ensure that your dr. takes 4-6 biopsies (or more). Even when eating a long...
  20. happygirl

    ARCHIVED Endoscopy Clarification

    happygirl replied to Healthy Girl's topic in Doctors

    "A gluten-free diet should not be started until all diagnostic tests are completed, as the withdrawal of gluten can change test results" from: Open Original Shared Link "All diagnostic tests need to be performed while the patient is on a gluten-containing diet." from the NIH Consensus Statement on Celiac Open Original Shared Link "Before being tested...
  21. happygirl
    If you are not Catholic, most (all?) Protestant churches do not require wheat to be in the wafer/bread. You can use a gluten-free communion wafer, gluten-free bread, rice cracker, corn chip, etc. Best to speak with the pastor beforehand, of course.
  22. happygirl
    Do NOT start the diet until AFTER the biopsy. They are looking for damage caused by eating gluten. When you go gluten free, the damage starts to heal. The point of the biopsy is to document/verify the damage, so you know its Celiac, and then you go gluten free. Your body begins to heal within days/a week of going gluten free, so you don't want to skew...
  23. happygirl
    Were you or they IgA deficient? If so, then you can have false negatives. After that, I think its hard to predict if its a false negative/runs in families. Also, did they have the full panel run or only some of the bloodwork?
  24. happygirl
    Yes, please post the reference ranges so we can help determine what your numbers mean. What did your doctor have to say about it? Were you eating gluten at the time of the testing or were you gluten free already? Were you having particular symptoms that led you to test for Celiac? Your dr. did good----all the right tests
  25. happygirl
    Were you gluten free at the time of the biopsy? If so, for how long?
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