Jump to content

happygirl

Advanced Members
 View Profile  See their activity

  • Posts

    4,583

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    I would also follow up and find out what was "weird" about his biopsy.
  2. happygirl
    Having the gene doesn't mean that any one person will have Celiac. About 30%+ of the American population has one or both of the genes, but only about 1 in 133 Americans (less than 1%) has Celiac....so JUST the gene doesn't equal Celiac. But, not having the gene often rules OUT Celiac...about 95%+ of Celiacs have one or both of the genes. The biopsy is...
  3. happygirl
    I saw it last night also and it truly was absolutely wonderful...I was so impressed by them. Whether its gluten, Celiac, autism, mercury, bacteria, viral, fungal.....the common point that all these stories share is that there is a problem that doctors aren't listening to their patients (and/or moms), and patients/moms are being forced to take it into their...
  4. happygirl
    I don't think there have been any 100% well done studies, but some of the empirical evidence tends to point to potential positive effects of the gluten-free/cf diet for some children Open Original Shared Link The use of complementary or alternative treatment approaches in children with autism spectrum disorders (ASDs) is increasing, and the most popular...
  5. happygirl
    Even if he does not have "true" Celiac, he could have a non-Celiac gluten intolerance, indicated by the high IgG score. I'm assuming your child was having symptoms, which led to the testing....so even if the endo is negative, I wouldn't rule out gluten causing the symptoms, just maybe not in the Celiac mechanism. I personally would advocate for the biopsy...
  6. happygirl
    Maltodextrin in the USA is corn--it is safe. If it were from wheat, it would be required by the allergen labeling law to be safe.
  7. happygirl
    Janet, that is wonderful news and I hope his health continues to improve. He's lucky to have a caring mom like you.
  8. happygirl
    Janeti- Enterolab doesn't diagnose Celiac; only potential gluten sensitivity. I don't know that Celiac or gluten problems would be causing fevers of 104----has he been evaluated for other problems?
  9. happygirl
    Were you tested for Celiac? Are you under a doctor's care? It is possible that you may have a problem other than Celiac, or a problem on top of Celiac. On the other hand, it takes many longer than 2-3 weeks to fully recover after going 100% gluten-free. Best of luck.
  10. happygirl
    You can also find current topics under "view new posts" at the top right hand corner of the forum (my controls, view new posts, my assistant, etc.)
  11. happygirl
    Which thread are you looking for? If it is one of your own, you can always click on your user name and find your topics that way. If it was this thread: Open Original Shared Link it was moved.
  12. happygirl
    Has your doctor run any additional bloodwork, or talked with you about your concerns? Do you have any other medical problems?
  13. happygirl
    Your post hadn't been pinned by a moderator, which is why you had trouble finding it. You can always click on your own name "logged in as: " and find your posts that way. It has now been pinned.
  14. happygirl
    Sources for that? I'd appreciate it.
  15. happygirl
    non celiac gluten intolerance (like any food) is often referred to as a "delayed allergy" ... it is not a classic allergy (IgE mediated), but the intolerance. Mainstream labs test for IgG/delayed allergy/food intolerance testing, including Quest labs. An intolerance will not show up in traditional IgE allergy testing. It can show up in IgG delayed food...
  16. happygirl
    Which IgA was elevated? There is AGA IgA, tTG Iga, EMA Iga, and total IgA.
  17. happygirl
    I've unfortunately had one endo, one colonoscopy, and one joint endo/colonoscopy within a 6 month time frame, so as long as it is medically necessarily (which it sounds like it is), I would think it is ok. Good luck, Jillian, and I hope they definitively figure out the problem.
  18. happygirl
    There is a great book by Dr. Peter Green from Columbia University. Celiac Disease: A Hidden Epidemic. Its a great resource and might help provide an overview for you as you get started on this. Its an invaluable resource for me....wish I had it when I was first diagnosed. And, for most people, it takes longer than 2 weeks to feel better. I saw improvements...
  19. happygirl
    The endoscopy doesn't just look for Celiac, but other conditions as well. She may have something other than Celiac, or something on top of Celiac, that the endoscopy could find. You may also want to have her gene tested. What defines "suspicious" for bloodwork? Was the tTG or EMA positive? This is a site with good info Open Original Shared Link
  20. happygirl
    How long as he been on the gluten free diet? Has he been re-tested and his levels have already returned to normal---if so, when?
  21. happygirl
    I think its great that you will have a biopsy done. Make sure that, before the procedure, that you reiterate to him that you want MULTIPLE biopsies taken in MULTIPLE LOCATIONS. Often, doctors only take one or two, but Celiac damage can be inconsistent, so its necessary to take more than one biopsy. taken from a leading Celiac center: Open Original...
  22. happygirl
    Just wanted to re-iterate that because you are IgA deficient, the test results are not accurate, because the vast majority of the panel is IgA based (Four of the five...AGA IgA, tTG IgA, EMA IgA, total IgA---which you are negative for; the other is and AGA IgG.) You can't test positive for something that you already know that you are deficient in!!!...
  23. happygirl
    Actually, the antigliadin IgA or IgG can indicate gluten sensitivity (delayed allergy, intolerance). IgG food allergy/intolerance testing is done by many companies, not just enterolab, and can be done via bloodwork also, and for multiple foods.
  24. happygirl
    You said you had high antibodies: which tests were performed, and which were elevated?
  25. happygirl
    Did they run the full Celiac blood panel? If they only ran the anti-gliadin IgG, then you didn't have the full testing done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.