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happygirl

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Everything posted by happygirl

  1. happygirl
    The costs are on the website. There is no definitive answer on if he is credible. Food allergy and intolerance testing, having nothing to do with Dr. Fine, is notoriously difficult, less than reliable, etc. Personally, I would first go to the dr. and have the full Celiac blood panel run. Covered by insurance. After that, look in other directions...
  2. happygirl
    No, wouldn't make the patient sick. It is safe for a celiac to give and receive blood.
  3. happygirl
    when you talk to them, verify that you are having the FULL 5 Celiac blood panel run. Many doctors only run part. Taken from Columbia University: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. Best of Luck!...
  4. happygirl
    Agreed---like the new picture, Carla!!!
  5. happygirl
    www.enterolab.com for more information. They can't diagnose Celiac, only potential gluten (and other foods) sensitivity. Many doctors don't accept their results. It is a stool test. The test done at your doctors is a blood test. His results have not been duplicated yet, nor has his stool testing method results been duplicated by others. He is supposed...
  6. happygirl
    They have about 13 listed as gluten free, and then in the table, there are about 20 that don't have gluten listed. It might be worth it for you to call them and verify. It may be that one of them isn't updated.
  7. happygirl
    Wheat must be listed at all times by FDA law, so wheat isn't hidden. I would doubt the others would be hidden in spices (as barley, malt, and rye aren't technically spices). If in doubt, call the company and verify...then post what you found out.
  8. happygirl
    It may be beneficial to contact a local support group for a list of doctors that their members go to for Celiac.....maybe one is a GP that could get you in quicker for the blood work.
  9. happygirl
    Open Original Shared Link
  10. happygirl
    Open Original Shared Link that may provide as a reference for testing for other things.
  11. happygirl
    Your dr. can also order the gene test, which if you have insurance, may be cheaper than paying out of pocket for the gene test through enterolab. The majority 95%+ of Celiacs have one of the two genes, but there are biopsy proven Celiacs without the gene....we have a few on this board. Keep in mind that you may not have "true" Celiac, but a non-Celiac...
  12. happygirl
    You can have the gene test run through your doctor, and don't have to use enterolab. If you have insurance (which I am assuming since you had the bloodwork run), then it might be a better route to go through your dr. A good way to find a knowledgable doctor (for any condition) is to find a support group in the area, and ask them for recommendations. ...
  13. happygirl
    Judy, the pill by Dr. Fasano has been in the works for a few years now. Came out of research from the University of Maryland's Celiac Disease Center. Dr. Fasano discovered the effect of zonulin re: Celiac Disease. I heard the president of the pharm company, Dr. Paterson (which Dr. Fasano started) speak in early 2006. Their research is absolutely fascinating...
  14. happygirl
    I merged the two topics together since they were similar.
  15. happygirl
    Thanks for posting this information. I only recently heard about this place as well as Rustico (the place with gluten-free pizza). I think the fact that they sell out is a good indicator that its yummy and there is a need for it in the area!!!!
  16. happygirl
    All Celiac experts recommend that all first degree relatives, regardless of presence or absence of symptoms, are screened for Celiac. Parents, siblings, children. Since one of your kids is 3 years old, the testing is more reliable. Age 2 and under is more of a concern.....but it couldn't hurt to run it on the younger one as well, and monitor them. ...
  17. happygirl
    I've known a few people who take it and do well on it. Its good stuff!
  18. happygirl
    Its safe. I take it.
  19. happygirl
    A local news station has done two stories on Lyme Disease. Neither of the doctors interviewed are my docs. Part 1: Open Original Shared Link Part 2: Open Original Shared Link
  20. happygirl
    That is a wonderful response. I've been on three employer sponsored plans, and they cost the same for EVERYONE who participates...doesn't matter their health condition. Private health insurance is another story.
  21. happygirl
    Celiac lab tests for children under 2 are not as reliable as when they are older...so a negative doesn't mean a negative, necessarily. Looks like they didn't run the FULL celiac panel, either. Ask them why they didn't run the tTG and the EMA---those are the two most specific/sensitive to Celiac, NOT the AGA. AGA Iga AGA IgG tTG EMA Total IgA
  22. happygirl
    Celiac lab tests for children under 2 are not as reliable as when they are older...so a negative doesn't mean a negative, necessarily.
  23. happygirl
    Here's some info I found: Open Original Shared Link "Patients are advised to have follow-up antibody levels measured at 6 and 12 months. Most patients have normal levels by that time though it may take up to 3 years to normalize in some individuals. It is reasonable to assess antibody levels annually. This will serve to monitor adherence to the diet...
  24. happygirl

    ARCHIVED Looking For A Doctor In Dc

    happygirl replied to angel42's topic in Doctors

    I definitely agree----if they are close to DC, go straight to the best. Dr. Fasano and his partners are just about the BEST out there!!!!!
  25. happygirl
    psssttt just saying hello. had a good weekend....new meds are helping!
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