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happygirl

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Everything posted by happygirl

  1. The fact that you had positives on EMA and tTG, even on a recently gluten free diet, indicates that you have Celiac Disease. Those are the two "best" blood tests for Celiac. Given your other issues, I think it might do more harm than good to get the biopsy now. You are already sick and having issues. On the other hand, the procedure is good to check...
  2. Ditto to what bev said...we go away, and it takes forever to catch up!!!!! I just finished reading. Patti---that is the absolute WORST. I am sorry that you had "issues" today. xoxo
  3. Marcia, All I can say is that I trust the Celiac experts on this one, rather than non-Celiac focused sites. Laura
  4. beautiful new pic, patti!!!!!!!
  5. From the nutritionist at the Celiac Disease Center at Columbia University Open Original Shared Link (listed as safe) Millet: Dry and airy when cooked with a little water, but moist and dense when cooked with extra water. Bland in flavor, millet readily takes on flavors of foods cooked with it. As a grain as hot cereal or side dish, as flour in baking...
  6. You want the full Celiac panel run, which can be found at: Open Original Shared Link Serologic panel Of the commercially available serologic tests that aid in the diagnosis of celiac disease, no one test is ideal. Using multiple serologies increases the diagnostic yield. Therefore, in the United States, screening in patients with possible celiac...
  7. I'd give it another week, potentially. I know its so hard to wait! When you talk to them, ask them to repeat the whole celiac panel results to you. They should have run the tests on this page: Open Original Shared Link Get each test name, your score, the reference range, etc. Then share
  8. Maltodextrin is safe, it is just a misleading word!!! And, if by any chance, if it hypothetically were derived from wheat, it would be required to be listed, under the food labeling law of 2006. Anything with wheat must be identified and not hidden. Kraft is a company that has a policy of not hiding ANY gluten in their products. So if you read the...
  9. Sneezydiva, Wanted to offer you a welcome to the board! This is a great place, full of information. I hope that you will find answers and your health improves...you have had a LONG journey! Just something to keep in mind: even if the bloodwork/biopsy is negative, it still might be worth it to try the gluten free diet, and see if your symptoms improve...
  10. someone sent this to me: Open Original Shared Link
  11. just a quick goodmorning to all---still reading along. i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT. on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful. I still owe a catch up post, but tonight we are going out...
  12. love it....thanks Deb
  13. happygirl

    ARCHIVED Doctor Won't Test Son

    Open Original Shared Link "There are a number of populations at higher risk for celiac disease. These include individuals with type 1 diabetes mellitus, other autoimmune endocrinopathies, first- and second-degree relatives of individuals with celiac disease, and individuals with Turner syndrome. Individuals and physicians should be aware of the increased...
  14. happygirl

    ARCHIVED Perkins

    Jmommy: What wonderful news......thanks so much for sharing. I'm happy you were able to enjoy your outing! the gluten free community...taking over the world happygirl
  15. Does he have a list of safe foods that are normal that might help him feel more normal? (reeses, snickers, m and ms, etc)
  16. [quote name='AndreaB' date='May 31 2007, 02:26 AM' post='309724' I think Carla, Rachel and Donna have been tested for lyme, mercury/metals, molds, parasites, yeast, vitamin/minerals......am I missing anything gals?
  17. The reason that Dove says to read the label is because they have a policy of clearly listing any gluten ingredients, and not "hiding" them. Dove is a Unilever company. Many of their products ARE safe, and many Celiacs like to use them because they have confidence in being able to read their labels and know if something is safe. I just checked the ingredients...
  18. happygirl

    ARCHIVED Perkins

    The reason that I ask is every "chain" that I've been to has marinated chicken, and many of them (including Applebee's) has soy sauce with wheat in the marinade. And have them use clean utensils...but you already knew that! Hope that it goes well Let us know how it goes.
  19. I use Smart Balance margarine.
  20. A product being gluten free and a company swearing that its gluten-free are two different things. If you can post the ingredients, I'm sure someone will chime in to help determine if it is safe.
  21. happygirl

    ARCHIVED Perkins

    Are there marinades on any of the meats that are grilled on this dedicated grill? (just a thought-might want to ask.)
  22. A little too tired to post much, but wanted to say hello, and that I'm reading along, and that I hope the measles go away, Patti, and that you feel better, Mia. Hello to all..the birthday lady, ngg, rinne, bev, carla, donna. susie and the dingos...the whole bunch
  23. Chrisbee: Make sure that the doctor takes multiple biopsies in multiple locations. Also, wait for the results of the biopsies. Many doctors say "it doesn't look like celiac" and then the results come back...and sure enough, its Celiac. Best of luck!
  24. Happy Happy Happy Birthday, Rachel I was married today 3 years ago---so its a doubl-y good day!
  25. https://www.celiac.com/st_main.html?p_catid...-13107195082.c0 www.pubmed.com and search celiac and miscarriage, celiac and pregnancy, etc. Dr. Green also talks about it in his book.
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