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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    It is not safe to drink. Why would companies make gluten free beers if 'normal' beers were safe
  2. happygirl

    ARCHIVED Bread

    happygirl replied to BridgetteB's topic in Coping with Celiac Disease

    Cheating is not ok. If you are healed, its only as permanent as you are gluten free. If you ingest gluten, your body turns a switch on, and damage occurs. The goal is to keep the switch off (the autoimmune switch). Symptoms do not equal damage.
  3. happygirl
    Judy/Donna: Thanks for bringing this up. I am working on finding a good PT to do that. My dr. wrote me a prescription to have it done, as my lymph nodes swell during my flares, causing me a huge amount of pain. Judy, I'm happy it provided you with some relief. When you have a chance, can you share what you know about it and what type you had, etc? ...
  4. happygirl
    :wub: to you all too... Bev, I'm just happy you have some answers. I am SO relieved for you.
  5. happygirl
    No, haven't eaten there. I am so sensitive and have been glutened at every "gluten free" restaurant that I very rarely ever eat out. Its easier on everyone that way . I think my mom has been there though, and loves it. Hope that its a great experience!
  6. happygirl
    Angie, Just wanted to offer my support. I am infinitely relieved that your sweet baby is doing ok, and happy that you received medical attention. I hope that everything else gets worked out ... worrying about that is certainly the last thing you need. Best of luck...and please keep us updated. Hugs, Laura
  7. happygirl
    Wow---that is so exciting!! I bet you are thrilled! Let us know how it goes! I know exactly where that is...I am from Mech. ... married in CH.
  8. happygirl
    grey: so are you going on the gluten-free diet now that your biopsy is over? or what are your plans/instructions? I'm sorry you are having a hard time after the procedure...I sure hope that it passes quickly. Hopefully you'll get a good nights sleep!
  9. happygirl
    And my doctor's rationale of not ordering the C D 57 was very similar to Carla's...I think they treat very similarly. (Not knocking it by any means...at all! Just offering what I know) Her words were "I know you are sick."
  10. happygirl
    Rachel: I had the full Western Blot, etc. done through Igenex. I have only had the co-infections test through Quest, because she said they are often negative anyways, so she doesn't place but *so* much emphasis on a negative test. I've had two tests done through quest...first one I was positive for RMSF, second one (after I'd been on treatment), I was negative...
  11. happygirl
    bev, i just saw that you are positive....all i can say is wow and hugs to you! ok so the question that we all have is....are you cdc reporting requirements positive, igenex positive, etc? Definitely need to have you post your bands, etc....very curious. I'm so happy you are getting some answers, my dear. i've had such similar symptoms to you and...
  12. happygirl
    I think I remember this thread, the first go round, and how interesting it was then, too. We really do have a wide array of professions around here! No wonder we all have such different perspectives on things!!! Lisa, thanks for starting this back up I have a BA in psychology and an MS in Human Development/Family Studies (developmental/research...
  13. happygirl
    Patti...your description made me laugh Rinne, you are so sweet...always asking about everyone.... And you would be proud of me. I was orginally planning to go to the GIG conference and I really wanted to. But, I declined because of everything else going on-I know I need to rest. I said NO to something! Shocker! I think that I think a lot...
  14. happygirl
    Bev, my neck/head/shoulder/upper back pain is a classic sign that I'm in a flare. I also have tender spots all over the rest of me that are worse during a flare...inside of my arm (near my elbow), on my butt, my lower back, places on my legs...etc. My hands get super stiff and painful too. Yeah the muscle/joint pain is one of the worst for me. xoxo
  15. happygirl
    Do a search for dental problems...there is a wealth on info on here about it. Here is one particularly good one: Open Original Shared Link
  16. happygirl
    Jenny, These companies that I listed have had a solid "we won't hide anything" policy for as long as I have been on this board. Maybe Peter or one of the other members has the documentation. I fully trust this list, and have verified many of them myself, and have gotten trustworthy responses. I can't speak if this has changed very recently.
  17. happygirl
    Hi all.... Been reading and trying to keep up. We were out of town for the weekend, so I am just now finally having the chance to sit down and share about my last appt with my LLMD. So, the sad news (for me) is that my biopsy samples that were sent out (from Sept 06) to MDL were negative for Lyme/co-infections. Its similar to Celiac biopsies...negative...
  18. happygirl
    Open Original Shared Link Open Original Shared Link Open Original Shared Link I don't think the second link will apply to you because I think you are too old to be covered, but you should be covered under Medicaid.
  19. happygirl
    Open Original Shared Link Open Original Shared Link Companies that will list any gluten and not hide it: Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen...
  20. happygirl
    don't have much time to post (and i sprained a finger yesterday, so typing hurts): - hhv6a (the cfs linked virus) - biopsy she thinks i have babesia bc of my clinical presentation...and has all along, somehow i missed this . thats why i'm on the z. ill post more later about the next steps.
  21. happygirl
    Deb: This sounds like a wonderful event! You and the other volunteers must be so proud of its success.
  22. happygirl
    Immodiums.
  23. happygirl
    I would just like to add that I still don't believe that Susie is 45. I just don't buy it!!!!!!!!!!!
  24. happygirl
    Wow, Bev...but happy you got the results. FYI: Generally, your blood tests from Igenex only take 2 weeks (10 business days). They fax them to the drs office as soon as they are ready. I know you had the biopsy also, but just wanted to let you know all that .
  25. happygirl
    The vast majority of Celiacs that go on a gluten free diet have their chances of most cancers lessened dramatically. Its those with undiagnosed or untreated Celiac that have an increased risk. Once you go gluten free, your body starts to heal, and rebuild itself. Your intestines regenerate every 3-4 days...so for most, the damage is NOT permanent. (for...
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