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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Do you add milk to your coffee? Perhaps dairy is causing a problem?
  2. nvsmom
    Mmmm, those Enjoy life chocolate chips are EVIL! Addicting... I like to eat them mixed with nuts in the evenings but I haven't had it for most of the summer. I don't eat a lot of chocolate.... I could eat more, but I could eat none.... whimper whimper. I am dairy free except for a couple of splurges into ice cream this summer...I guess I'm dairy light...
  3. nvsmom
    I tend to gain weight when I eat carb heavy... or even carb normal. LOL Toast, crackers, muffins... stuff made with a (gluten-free) flour and sugar will do it to me. If I eat high fat, and whole foods, I tend to lose weight or maintain... But that's just me. Good luck!
  4. nvsmom
    I've put mine in the washing machine on gentle, and I have also hand washed them. Hang them to dry. They're never as pretty again but they're clean.
  5. nvsmom
    They only do the tTG IgA in Alberta too; if you are positive they do an EMA IgA then... They do a better job of testing in the States. Same with the vitamin testing. I had to see another doctor (orthomolecular) because my old doctor wouldn't test me. You are really really close to a weak positive on that test. With the tTG IgA test, that could be do to...
  6. nvsmom
    It is a good idea to get your nutrient levels tested before taking extra vitamins. Many celiacs find that they need mega doses of vitamins for a few months or years until things heal completely. It's not a good idea to take mega doses unless you need it. KWIM? Some of us are only low in a couple of spots so that is another good reason to check. For instance...
  7. nvsmom
    Welcome to the forum. . It sounds like you belong. Keep eating gluten until you are done your testing. The Biocard test is a tTG IgA and total serum IgA test. I think thetTG IgA is the most common blood test doctors give, but be aware that it misses up to 25% of celiacs. It is often a good idea to have a few types of tests runti ensure accuracy. Other...
  8. nvsmom
    I didn't realize that was your free T's, they look pretty good. I can understand why you are feeling fine. . I felt hypo when my TSH was high and the same hypo when it was in the normal range... It was almost like a switch was pulled- I felt hypo until I suddenly didn't with no shades of grey. My TSH never hit 100 though! Wow! The thrombocytopenia...
  9. nvsmom
    Ditto the others, it sounds like celiac disease to me, and it looks like it started you into the world of hashi's and probably other autoimmune issues. I too had many of your symptoms, and a few you didn't list, and they were all celiac disease and hashi's related. I also have a AI thombocytopenia that I don't doubt was triggered by untreated celiac disease...
  10. nvsmom
    Green's is pretty good - like a well done home brew. Beware of gluten-free beers started form barley like Daura, they still get people.
  11. nvsmom
  12. nvsmom
    I don't have an OB/GYN - up here they tend not to let you see a specialist until after a GP has seen your problem. At the moment I am without a family doctor... well, I had a family doctor but he was such a dolt I had to walk away to prevent an attempted murder. I see a new doctor in... October, I think. Gotta love Canadian helath care! LOL
  13. nvsmom
    My gluten intolerance symptoms always seemed to get worse as time goes by, and i tended to feel my worst in the evenings. what you describe could be a gluten intolernace (celiac disease or otherwise) or it could be just an overload of carbs. You could request celiac testing (tTG igA and IgG, DGP IgA and IgG, EMA IgA, total serum IgA, and possibley AGA IgA...
  14. nvsmom
    A low positive tTG IgA can point to a few other problems like thyroiditis, liver disease, diabetes, crohn's and colitis but that is in approximately 5% of all positive test results. If it was strong positive, it is most likely celiac disease. Check out page 12 of this report for how reliable the tests are: Open Original Shared Link IBD (IBS) is a...
  15. nvsmom
    Who said that? I saw no one... It could be a fissure but I don't strain anymore. BMs are pretty fast these last few months. the type where you have to find a toilet pretty quick.... I suppose it could still be a fissure... ick. i don't like going to a doctor at the best of times, but a check-up for this? Ewww! LOL
  16. nvsmom

    ARCHIVED Steroids?

    nvsmom replied to lucky28's topic in Coping with Celiac Disease

    I don't know... i know steroid use shouldn't be done lightly, and that most need to taper off when they are done. Hopefully someone else will chime in who knows more than I do.
  17. nvsmom
    The gliadin tests (AGA) don't test for attempted villi damage by autoantibodies like the other tests do, it's thought to work for NGI too but that is not widely accepted yet. It DOES have a fairly low sensitivity (ability to detect positives) so it's best not to solely rely on it for a diagnosis. I can't remember if I've pointed out this paper (by world...
  18. nvsmom
    I feel mostly better at 14 months gluten-free. I tend to get the occassional set back for no apparent reason but it only lasts a short time rather than the old downward spiral of a few months. I still get headaches for while on most days, and GI issues after some meals. BM's are still not great. Bloating, gas, stomach pain after most meals, deep fatigue...
  19. nvsmom

    ARCHIVED Steroids?

    nvsmom replied to lucky28's topic in Coping with Celiac Disease

    I've taken steroids not directly for celiac disease but for conditions that could be related. I was on Prednisone for about 6 months for a thymbocytopenia bleeding disorder a couple of decades ago. Can't remember the doseage. i currently take cortef and florinef for adrenal/energy/hormone issues and for low (postural) blood pressure. Cortef is 20MG...
  20. nvsmom
    This is a bit embaressing but we talk poop enough around here that I'll ask my question... I have had prolapsed hemorrhoids for almost 20 years. I blame celiac disease and hypothyroidism for decades of "C" that caused it; that and years as sitting down while a student. Anyway, they normally don't bother me. Every few years I'll get a clot and it will...
  21. nvsmom
    My guess, and it's only a guess, is that you've got something else going on in addition to celiac disease. Many of us have other health issues that are linked to celiac disease, whether they are caused by untreated celiac disease or just tend to show up with it is anyones guess. It is possible that something else is continuing your symptoms. For instance...
  22. nvsmom
    Oh no! Glad it hasn't been too hard on you.
  23. nvsmom
  24. nvsmom
    I think it could be stress related as well as the fact that you are both very early in the healing process. It can take months for the immune response to gluten to settle down, and even longer for the healing to occur. Until then, it's not unusual to experience set-backs for no real reason. To be sure though, discuss hand washing policies before every...
  25. nvsmom
    If you were gluten-free for a year (if I understand you correctly) then that definitely had an effect on the results. Most people's autoantibody levels fall with time once they are no longer ingesting gluten. Some people's levels are back to normal within weeks, some within months, and a few will take over a year. You would need to do a gluten challenge...
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