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Latest Celiac Disease News & Research:
Everything posted by nvsmom
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ARCHIVED Levothyroxine...how Do You Take Yours?
nvsmom replied to VeggieGal's topic in Related Issues & Disorders
If you think you need T3 too, Cytomel is a T3 med given in the States. Maybe that would help? -
ARCHIVED Levothyroxine...how Do You Take Yours?
nvsmom replied to VeggieGal's topic in Related Issues & Disorders
I take my thyroid meds in the night. When I was on only levothyroxine, I would take all of it (similar dose as you) in the middle of the night when I got up to use the bathroom. T4 has a long "half life" and stays in the system for days (as I understand it). Taking it throughout the day shouldn't make much of a difference. It is the T3 that is used up within... -
ARCHIVED Headache Relief For 11-Year-Old - What Meds Are Safe And gluten-free?
nvsmom replied to ImaMiriam's topic in Parents, Friends and Loved Ones of Celiacs
Up here in Canada, children's tylenol is gluten-free. I hope she feels better soon. -
ARCHIVED Help Interpreting Labs For 5 Year Old. Waiting To See Gi.
nvsmom replied to Celiac503's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I personally think your doctor is wrong to dismiss celiac disease with test results you posted. His tTG IgA ws high, not super high but as you said, he is low in IgA so the fact that he registered a positive tTG IgA at all is rather remarkable. The tTG IgA shows that the bosy is attempting to do damage to his intestines... not all is well in there. A... -
ARCHIVED Test Result Question
nvsmom replied to Ibs girl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You will need to get the normal reference range that the lab uses in order to interpret your lab results. I have seen some tTG IgA test ranges from 0-3, others from 0-4, or 0-10; my lab's range was 0-20. -
ARCHIVED Joint Pain
nvsmom replied to w8in4dave's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had flare-ups of joint pain for a decade or so prior to my diagnosis. It would start with feeling flu-ish and then the joints would get very weak and sore, most likely hurting for a few months but sometimes the pain in a joint would last a few years. When I went gluten-free, at about the 3 month mark, I had a pretty severe flare-up. My joints would give... -
ARCHIVED Test Result Help - Waiting To Talk To Pcp
nvsmom replied to 1993wel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A bit elevated? That tTG IgA is 13 times above the normal limit. That is very very elevated; it doesn't get much higher than that.... I can't believe the doctora said, "a bit elevated". Sheesh. A positive tTG IgA can idicate other conditions about 5% of the time BUT when that occurs, the tTG is just SLIGHTLY elevated, not sky high! Thyroid problems is... -
ARCHIVED Gluten Intolerent?
nvsmom replied to katfly90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the board. Those sound a lot like gluten intolerance symptoms - it actually sounds a lot like the symptoms I was having in my twenties. I think celiac disease or NCGI (non-celiac gluten intolerance) could be a very real possibility. If possible, I would advise getting testing as soon as humanly possible. Some tend to react more strongly... -
ARCHIVED Gluten-Free Beer
nvsmom replied to newcoeliac13's topic in Gluten-Free Foods, Products, Shopping & Medications
Ohhhhh, I wondered what an "oxford comma" was.... yep, I'm a geek. -
ARCHIVED Hemorrhoids - When To Worry?
nvsmom replied to nvsmom's topic in Related Issues & Disorders
LOL THAT is SO true!! GFlover - that table sounds ...well, eww. I don't think I'm as bad as you - I agree. Options for fixing this aren't fun, are they? -
ARCHIVED Symptoms Disappeared After 3 Years
nvsmom replied to Pickledveggies's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the board. In some, symptoms tend to grow over time as the level of autoantibodies increases and the amount of damage and inflammation grows. Hopefully your gluten challenge won't be too difficult for you. The average gluten challenge tends to be about two months with about two slices of bread (or equivalent) per day. Just as an aside,...- 1 reply
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ARCHIVED Would Love Your Help Reading Test Results
nvsmom replied to ryo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The EMA IgA is actually a separate celiac test. It tends to be positive in most advanced cases of villi damage. The Immunoglobulin A (IgA) is just a control test. About 5% of celiacs are low in it which would affect your other (IgA based) test results. The usual range is often somewhere around 100-400. This board has a tonne of info, and many people... -
ARCHIVED Newbie With Labs Help Please :)
nvsmom replied to rwoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is a really full test panel! Your DGP IgA and IgG, tTG IgA and IgG, and EMA IgA are all negative. The total serum Iga is a conrol test to ensure that you make enough IgA for the IgA based celiac tests to be valid - about 1/20 celiacs have a low IgA. If you are having symptoms of celiac disease, have you considered that it could be non-celiac gluten... -
Glad you are feeling better. if you want to discuss the topic more, you might want to start a new topic as this thread is five years old. Welcome to the board.
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ARCHIVED I Am Puzzled, My Girl Is In Troubles And I Don't Know What To Do!
nvsmom replied to jepacar's topic in Parents, Friends and Loved Ones of Celiacs
When I was a kid, I had issues like that. my mom had to "help" me out... i think she used an old anal thermometre. perhaps that would help? -
ARCHIVED Hemorrhoids - When To Worry?
nvsmom replied to nvsmom's topic in Related Issues & Disorders
I've seen them but I haven't dared buy them yet. For me, they would be a very bad thing... You shouldn't torment me! LOL -
ARCHIVED Diagnosed. Now What?
nvsmom replied to JosieToo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow. Great plan. I would say for the immediate plan, the nutritional tests and ensuring your meds are gluten-free are the most important. The most common low nutrients/vits are calcium, magnesium, potassium, B's (12,2,6), D, iron, ferritin, copper, zinc, and A. To be honest, dieticians are often not found to be helpful if you are the type who will do... -
ARCHIVED Does It Get Worse Before It Gets Better?
nvsmom replied to rantipoles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found some symptoms improved fairly quickly and others took a long long time. Give it more time - a couple of weeks gluten-free really is just a drop in the bucket. For most people, their autoantibodies will still be produced at that point and not much will have changed except for the immediate gluten reactions some people get. Keep a symptom and food... -
ARCHIVED Next Step After Positive Enterolab Test
nvsmom replied to cbu2424's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i agree with Karen, I would try to get blood tests for the kids before going gluten-free. try to have both the tTG tests and the DGP tests done (DGP tests are better for detecting celiac disease in kids). welcome to the board. -
ARCHIVED Would Love Your Help Reading Test Results
nvsmom replied to ryo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks negative to me too. the fact that you had cut back to "gluten light" prior to testing could have affected the results, but I would guess that if you were a celiac, they results would have been a bit higher rather than the low-end of normal. Was you Immunoglobulin A within the normal range? For most labs it would be, but if you are low on IgA it... -
ARCHIVED Finally Had My Biopsi Done!
nvsmom replied to Mum in Norway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope you have a speedy recovery! -
ARCHIVED Fellow Homeschoolers Sign In!
nvsmom replied to 1desperateladysaved's topic in Introduce Yourself / Share Stuff
I was a science/physics/math teacher and left teaching for my family.... One of my favourite things about hs'ing is the thing you don't like: we can teach to their strengths and do catch up in other subjects. For instance, my oldest is a whiz in math and is a grade or two ahead where his peers were yet he was behind in reading. I didn't push reading but... -
ARCHIVED Fellow Homeschoolers Sign In!
nvsmom replied to 1desperateladysaved's topic in Introduce Yourself / Share Stuff
I'm hs'ing my three boys (grades 1,4,6) and have since the beginning. It's been a really good experience for us so far. We started because my oldest was very bright and did not have much interest in learning something that wasn't an interest of his. for instance, we had the freedm to study ancient Greece and Rome while other kids were studying "Our Comminity... -
ARCHIVED School Lunch Planning
nvsmom replied to ryo's topic in Parents, Friends and Loved Ones of Celiacs
I wipe it down most times and then wash it every couple of weesk or so (my boys eat out only once or twice a week). -
ARCHIVED From Constipation To Diarrhea?
nvsmom replied to funkflex's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That has happened to me, but I don't think it is exactly the norm. Are ther any other changes in your life that could cause it?