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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Ditto. I felt worse for about 2 weeks, and then I started to improve. Have you thought about being tested before going gluten-free? If you want to test in the future you will need to do a gluten challenge of approximately two months (about 2 slices of bread per day). If gluten is an issue for you, that's a long time to feel badly... and then go through...
  2. nvsmom
    Good luck with the results. I hope they are very clear cut for you. From what I have seen, finding redness during an endoscopy is pretty common amongst celiacs. I'm not well versed in the endoscopy though; I'm sure others will chime in.
  3. nvsmom
    There are autoimmune flares in other AI diseases but I am unsure if this happens with a gluten-free celiac. I personally do experience flare-ups of some sort but I do have other AI problems which could be causing it, and while I was an undiagnosed celiac, I experienced flare-ups of certain symptoms (arthralgias) that appear to have stopped after many...
  4. nvsmom
    Probably.... but if you can wait longer I would. I'm one who did the Biocard test once and I barely had a positive line. I wasn't eating huge amounts of gluten at the time, I think about once or twicea day for 3-4 weeks (I was pretty gluten light prior to that), and my positive was barely visible. I don't think it helped that I did not get the full amount...
  5. nvsmom
    I'm glad you are getting tested too - my stomach issues weren't life altering either, just persistent and annoying. LOL Don't mistake going gluten-free as a healthier way of eating. Gluten-free substitutes (bread, baked goods, noodles) are usually LESS healthy because more sugar is added to make up for the different texture, and the flours have not been...
  6. nvsmom
    Wolf has a good point: the first few weeks gluten free often involves a withdrawal that can make you feel exhausted, cranky, headachey and worse than you did before. Not everyone gets it, but it sounds like you're one of the unlucky ones. Hang in there. Once more energy comes back, it will be a bit easier. You should probably make your house as gluten...
  7. nvsmom
    (hugs) Before it was treated, I had low blood pressure and when I became sick I would feel faint (or faint) and your symptoms sound similar to what I would experience (minus the stomach issues). I would get light headed and confused, I would get tunnel vision (lose the edge of my sight), it felt like there was no blood in my face and I'd be a bit cold,and...
  8. nvsmom
    I agree. The doctor messed up. Best wishes in whatever you decide to do.
  9. nvsmom
    I think that depends on when you can get in to see the GI. If it is going to be many months, then he might want to go off gluten for a time but if it is this fall, I think I'd stay the course. You can start lightening up his gluten load though. A gluten challenge (prior to blood testing) just requires about 2 slices of bread per day (for about 2 months) and...
  10. nvsmom
    I agree with Adalaide and Irish, not much there to back that up. That being said, I wouldn't be surprised if about half of celiacs continue to have some problems after going gluten-free. If you've been damaging yourself with gluten for years, not everything will be repairable. I personally have made HUGE gains in my health since going gluten-free over a...
  11. nvsmom
    The EMA test is rarely positive until there is fairly advanced intestinal damage - it becomes positive when your body trues to wipe out the top of the intestines while trying to stop whatever has caused previous damage (usually tTG IgA). I would bet a lot of money that the GI will confirm a diagnosis of celiac disease. My cousin's son was diagnosed a...
  12. nvsmom
    Some doctors think the anti-gliadin antibodies tests (AGA IgA and AGA IgG) can be used for gliadin (gluten) sensitivity tests in both celiacs and those with NCGI BUT this is not a widely accepted idea and those tests are not the most reliable. This report discusses it a bit on pages 10-12: Open Original Shared Link I'm glad you knew that it can take...
  13. nvsmom
    (((HUGS)))
  14. nvsmom
    Good luck! I hope you find the cause and it is just a "glutening". If you can't find a cause, stay gluten-free and give it time - I still had symptoms improving at one year gluten-free.
  15. nvsmom
    Welcome to the board. Stomach issues aren't always the main problem for people. I did have some stomach issues (bloating and pain) that were getting harder to ignore but for the first 30 years of my life, they were merely an inconvenience. I never had vomiting or "d". Migraines were a major symptom for me and I developed a lot of arthralgias that...
  16. nvsmom
    Do you have the normal reference ranges that your lab uses? It's difficult to interpret results without it as lab ranges can vary quite a bit. Without that though, I would say your one celiac test (tTG IgA) looks negative. It should be pretty accurate as long as you have normal IgA levels. I don't know much about genetic testing but it looks like you...
  17. nvsmom
    I would say it is invalid too. It can take a while for autoantibody levels to rise to a detectable level. If you can stomach the gluten for about 2 weeks, an endoscopy might show something... I don't know if I'd risk it if gluten gives you such severe symptoms though.
  18. nvsmom
    Good luck.. Let us know how the results go...and get copies of it all for yourself so you can double check your doctor - I've caught them in errors in the past.
  19. nvsmom
    I know inflammation is LINKED to nutrient deficiencies (and possibly malabsorption) but I'm not sure how. People with other autoimmune issues or chronic diseases tend to have inflammation and that can lead to malabsorption which then leads to inflammation... I'm not sure where it all starts! Maybe this will be my weekend reading. All I know is that...
  20. nvsmom
    I hope you find a better doctor - he sounds like a dud. Your TSH looks not too bad but your FT4 could be a bit low... it would be for me anyways. If possible, in the future, try to get a FT3 test done; it's the sctive hormone and often gives a better picture. let us know how the blood work goes.
  21. nvsmom
    I completely agree! I just wish doctors would quit with their sweeping statements of "fact" in the meantime. If only doctors would say, "what we think we know right now is..." instead of saying something doesn't exist just because they haven't personally read about it yet. The stuff I've had doctors tell me as a fact is quite dsturbing; if I hadn't educated...
  22. nvsmom
    LOL We're unseasonably warm up here. The leaves are actually beautiful shades of yellow and orange instead of just freezing on the tree, turning brown, and falling off in the winter like it's done the past few years. LOL Most of my annuals are still alive! That's almost one month later than usual. I laugh at your mint battles. Dramatic laugh -...
  23. nvsmom
    It could be either the celiac lingering or a glutening. Like Colleen said, I would check all of you labels just to be sure you are eating gluten. Arthritis was one of my celaic symptoms and I had a pretty severe backslide after I had been gluten-free for a couple of months. Once again, my hair thinned out, I felt flu-ish, and I could barely use scissors...
  24. nvsmom
    Awesome! You definitely have that "difficult" gluten-free diet figured out. LOL
  25. nvsmom
    Good thread colleen. I missed that one. I would guess that NCGS is linked to celiac. Two of my kids had negative tTG IgA tests but they clearly have issues with gluten and their mom (me) is a celiac. It would be quite a bizarre coincidence if they had NCGS and there is no link to celiac disease at all. It is possible that they have celiac disease but...
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