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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    High IGF-1 can be good but elevated levels can be serious and triple your mortality rate. It also causes snoring and sleep apnea because of increased tissue growth, which can be slightly disfiguring.... Moderation is best for IGF-1, IMO. I'm not sure what you are getting at about the low stomach acid. I have not done an OGTT for GH suppression...
  2. nvsmom
    It is entirely possible that you are having a reaction to buckwheat. Celiacs commonly react to other gluten-free foods (like buckwheat).... Unfortunately. I guess all you can do is avoid the buckwheat for a time and maybe try it again in a few months. Good luck. I hope you feel better soon.
  3. nvsmom
    I tend to send food for everyone to share; brownies area favorite. That way everyone gets some and they don't feel limited... Heck, I still do this for myself because I feel left out if I can eat a treat. LOL
  4. nvsmom
    It isn't raer to have positive blood work and a negative biopsy, or vice versa, but doctors seem to act as though it is. If you ask around, you'll find more people here with the same situation as your daughter. I'm glad your DD is gluten-free now and you trusted the blood work. I hope she feels well soon.
  5. nvsmom
    The antigliadin antibodies IgG (AGA IgG) was positive. That can mean you have EITHER celiac disease or non-celiac gluten intolerance (NCGI). I'm guessing the doctor said NCGI because your tTG/DGP screen was negative; the problem with that is that not all celiacs are positive in all tests. The tests used do not have 100% sensitivity (although the DGP IgG and...
  6. nvsmom
    Little Poison Bombs... LMBO
  7. nvsmom
    It was thought for a long time that it was heaviest in northern European countries but some African countries have really caught up. I'm of German and Russian/Ukranian decent. I've got celiac disease and there is celiac disease on both sides of my family.
  8. nvsmom
    Only my vitamin A fell outside of the normal range. D and zinc was at the low end of normal. My B12 exceeded the normal range. The common low ones are D, B's (B12 especially), iron, ferritin, magnesium, potassium, calcium, A, zinc, and copper.
  9. nvsmom
    I've been having some strange blood tests and I'm trying to find the root cause. I mentioned this problem a few months ago in another thread but I'm still chasing it and trying to figure it out, so I thought I'd put it out there and see if anyone knows about it around here... I do doubt it's celiac related though. In the spring, a doctor I went to discovered...
  10. nvsmom
    The bloated belly look improved overtone first two or three months for me. Other symptoms took longer to improve, and a few symptoms got worse from 3-6 months gluten-free. Everybody is different though. Some feel all better within a few weeks where as others an take years.
  11. nvsmom
    I was mistaken as being pregnant again way more times than anyone should be! LOL It felt like my belly would get new stretch marks and it was often (once every day or two) difficult to stand up straight because it hurt.... It's not normal, but it's common in people with food intolerances.
  12. nvsmom
    Me. Dairy gave me very similar symptoms to gluten ingestion. You are still so new to being gluten-free that your symptoms could still be from gluten intolerance, or even the withdrawal. It can take months for your body to recover.
  13. nvsmom
    LOL We only get about 70 kids, so this year I'm giving out juice boxes and cans of cheap pop. The price is close to the same and I don't have to worry about kids with allergies. If I run out, we redistribute our boys' candy once they are home. My kids trade in most of their candy for a toy (this year is pokemon cards) which works out well since all my...
  14. nvsmom
    You've only been gluten-free a week so if you test immediately, or add a couple of days of gluten eating, you should have an accurate test result - especially if multiple tests are run. The problem comes if you want to get tested a few months from now, then you would have to eat gluten for a couple of months for accurate testing... Nasty! I'm glad you...
  15. nvsmom
    ((Hugs)) It's hard to cope when you don't feel well. Everything is harder. Getting out of bed, making coffee, carrying lazy family members... Drop the extra that are hurting you, if you can. If Ricky doesn't care about money, then don't pay all his bills. If he loses things and has bad credit, he'll deserve it and maybe straighten up... I know, I know...
  16. nvsmom
    I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much. L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores. I hope you turn a corner this weekend. (hugs)
  17. nvsmom
    Welcome to the board. You symptoms do fit with celiac disease or non-celiac gluten intolerance (NCGI). That's great that you are seeing improvements so quickly. As long as you stay gluten-free, that's all you really need to treat this disease in the long term - the diagnosis isn't that important unless you get food subsidies (UK I believe) or if it helps...
  18. nvsmom
    Welcome to the board, gfreecookies. Celiac tests are not fool proof, not by a long shot. They regularly miss celiacs. Yes, they usually do catch most cases but people slip through the cracks all of the time. The tTG IgA, the most common celiac disease test given misses 5-25% of all celiacs. The other tests are similar which is why it's a good idea for...
  19. nvsmom
    So your EMA IgA is negative now? That's a good thing! I can't see anything bad about those results. The IgA is probably just the total serum immunoglobulin A, which is a control test to make sure you are making enough IgA for accurate testing (1/20 celiacs don't) - and you do. It's not actually a celiac test. Did they re-run any other tests? You...
  20. nvsmom
    Ummm... I guess it helps to actually post the link, eh? Sorry 'bout that. Open Original Shared Link
  21. nvsmom
    Your tTG and AGA tests look negative. Was that Anti-gliadin Antibody tests (AGA IgA and AGA IgG) or the deaminated gliadin peptides (DGP IgA and DGP IgG) tests that were run? The DGP tests are newer and considered very good... the AGA tests, well... not so much. This report has some good info on testing on pages 10-12: Open Original Shared Link Good...
  22. nvsmom
    Welcome to the board. It is possible that some of your symptoms were caused by non-celiac gluten intolerance (NCGI) if you had the full battery of tests (tTG IgA and IgG, DGP IgA and IgG, EMA IgA, total serum IgA) and the all came back fine. NCGI sufferers generally have the same symptoms as a celiac, with similar severity and sensitivity, but without...
  23. nvsmom
    Have you considered a home test? In Canada, I ordered a Biocard test (tTG IgA) which is pretty good (not as accurate as the major labs). I took my faint negative to my doctor and he ordered tests to confirm it. It's about a $50-100. Hang in there. A lot of us have been thought of as hypochondriacs by our doctors... for many many years.
  24. nvsmom
    Your tTG IgA is negative for celiac. This is the most commonly run celiac test. It's a pretty good test but can miss 5-20% of all celiacs as seen in this report: Open Original Shared Link Doctors in my city only run the tTG IgA and then the EMA IgA if it was positive. Most doctors up here haven't even heard of the DGP tests. Did they run the total serum...
  25. nvsmom
    This has a list of causes of petechia (tiney red dots). I had those when I had ITP (very low platelet count) so I know it can be serious, but simple causes like coughing fits can cause it too. I hope you find answers.,
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