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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Welcome to the board. Your questions: After a glutening how long does it typically take for digestive symptoms to appear in people with celiac disease? It really varies. for some it can take minutes and in others it can take days. Sometimes no GI symptoms appear. My symptoms used to vary depending on the food and the amounts I ate. Beer would bloat...
  2. nvsmom
    I think another problem is that some people test positive in the DGP tests and not the tTG tests. We seem to have a minority around here that this has happened to. I understand not running the EMA as that one is triggered by ongoing damage and isn't often positive if the tTG is not. Good luck with the testing! I'm in AB, and they would only run the tTG...
  3. nvsmom
    Yeah... I pretty much knew it was a bad idea; I was just worrying that I was getting a little irrational about it all.... Like next I'll be afraid to walk down the bread aisle in the grocer's.
  4. nvsmom
    Global warming is working against us. We're an arid grassland but global warming means more moisture is getting into the atmosphere, so we have more rain and cloudiness... we're getting colder darn it! LOL
  5. nvsmom
    Wow, you had many of the same symptoms as me. I'm glad you are getting tested. The tests are: tTG IgA and IgG, DGP IgA and IgG, total serum IgA (control test), and EMA IgA. I think you should get your thyroid checked too. Coldness, fatigue, GI issues, irregular menstruation, and some other things you listed are signs of hypothyroidism (which is pretty...
  6. nvsmom
    My guess is also that you are experiencing gluten withdrawal. For me, it lasted about 10 days or so and caused headaches, fatigue and some serious crankiness. That fatigue was pretty profound, I remember it well... It also takes a while for people with a gluten intolerance to feel better once gluten-free. Some start to improve within days, but others...
  7. nvsmom
    I am taking my kids to a "fun" farm this upcoming week. There are lots of activities for kids and things to do. One of the activities is a small silo that is filled with a couple of feet of wheat - sand box style. My kids played in it in the past before they went gluten-free (2/3 boys have obvious gluten issues but tested negative on their one celiac test...
  8. nvsmom
    Problems can linger for a long time. It took me almost a year before I saw improvement in most areas. Maybe it will eventually fade after you've been completely gluten-free longer. Ditto the others on the starchy carb content on your diet. You might want to play around with more protein, fats and add more veggies. Good luck!
  9. nvsmom
    I read the label when I buy and before I open the package because I got myself last winter. Blah. It's my husband who keeps slipping up. I think it's because I handle all the food - shopping, cooking, cleaning. He was better at first when it was all new, now he forgets. Just a couple of weeks ago he was going to let my 10 year old try to get a swallow...
  10. nvsmom
    Dandelion tea or supplements can help with water retention if that's a factor. Nuts help me with bloating because they act as a bit of a laxative for me. Coconut cream/milk helps me with this too. For me, bloat can be linked to getting backed up bowels, which often comes with stress. I would avoid carbs, mainly starches of any sort. Eat higher protein...
  11. nvsmom
    I was going to say something along the same lines. It is usually the weak positives that can be sometimes be caused by things like diabetes, crohn's, colitis, liver disease or thyroiditis. Your result is about 22 times the upper normal limit. It would be pretty safe to say celiac is the cause. I hope you feel better soon.
  12. nvsmom
    Hmm, this i interesting to me! How long was the adjustment period? I'm generally a really oily person so that adjustment time makes me nervous.
  13. nvsmom
    Do we have a "mooning" smiley?!? Mountains are white up here and it snowed for about half an hour today, but nothing stuck yet. I can't complain. We usually have had a snow and a killing frost before October starts. To still have living dahlias and tomatoes outside in October is pretty unusual for my city.
  14. nvsmom
    I had pretty bad hair loss too. It continued while gluten-free because thyroid issues were causing it as well. It takes a while to balance out. BTW, this thread is a few years old and the member you are responding to hasn't visited the board in over two years so they may not respond.
  15. nvsmom
    That low iodine could be affecting your thyroid function. You need iodine to convert T4 to usable T3 (as I understand it). Did they check you free T3 levels when they checked your TSH? FT3 is the active thyroid hormone and if it is low, or even in the lower half of the normal range, it will affect your energy levels. Hang it there. Sometimes it just takes...
  16. nvsmom
    I would have guessed the IgA coeliac was the total serum IgA, which is a control test to make sure you make enough IgA for your IgA tests to be accurate - you'd want it right in the middle of the range and it is. I don't remember the units but these look different than what I'm used to. Is this in the UK? The EMA IgA is usually done as a ratio... I forget...
  17. nvsmom
    Normally you need to be eating gluten to have accurate testing but the auto-antibodies can linger in some people for quite some time. I still have one barely positive test (tTG IgA) after being gluten-free for well over a year. That's not common but levels can stay elevated for weeks or even months. These are the tests: tTG IgA and tTG IgG (most common...
  18. nvsmom
    I agree with Collen, gluten is not needed in anyone's diet. The only real benefit to wheat flours is that they are fortified with vitamins (meaning vitamins have been added to make it healthier than it normally would be). If that concerns you, all you need is a multi vitamin. If it is celiac, you should keep in mind that about half of all celiacs are...
  19. nvsmom
    My boys like Vega brand in their smoothies. I prefer just to add hemp and avocado to my green smoothies (spinach, kiwi, celery, carrots, cucumber) to give them that extra filling power
  20. nvsmom
    It's supposed to snow tonight.....
  21. nvsmom
    I too had a lot of joint problems. I suspected lupus because while my joints didn't always swell and get hot, they would get very weak, tender and stat to twist up (like atrophy). When I finally saw the rheumy, she thought it was lingering celiac symptoms, and I think (hope) she was right. I had my last major joint flare up after being gluten-free for about...
  22. nvsmom
    Two months off steroids.... I would guess that would be adequate but I've never researched that before. I have read that oral prednisone can linger for up to a month whereas the injectable form can be in your system for 3 months. Was it prednisone? I had an odd heart rate only when I took too much natural desiccated thyroid. My free T3 was above the normal...
  23. nvsmom
    I had to leave my family doctor and see an orthomolecular doctor who was willing to prescribe natural dessiccated thyroid. I was on Synthroid for about 8 months, slowly upping my doses over time until it was up to 138mcg and my TSH was around a 3 (in the middle of our TSH normal range. My doctor declared me normal and that my unchanged hypothyroid symptoms...
  24. nvsmom
    Welcome to the board. What celiac tests did they actually run? The tissue transglutaminase (tTG), deaminated gliadin peptides (DGP), and anti-endomysial antibodies (EMA) test for villi damage caused by celiac disease. The antigliadin antibodies are thought by some to show gliadin intolerance in celiac disease and non-celiac gluten intolerance (NCGI)....
  25. nvsmom

    ARCHIVED Breakfast

    nvsmom replied to amitaitos's topic in Coping with Celiac Disease

    Eggs and bacon are my favourites. You could experiment with microwaving them - just don't nuke the egg in the shell before cracking it unless you want a mess. LOL
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