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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    That's true. My autoantibodies were still slightly elevated after 9 month gluten-free, which meant my intestines were still being attacked. By 3 years gluten-free they were nice and low. (About a 4 with a ref range of 0-14... I think it was.)
  2. nvsmom
    I would ask him suggestions about how to go about using an elimination diet - cutting out foods to find out what else is bothering you. As Cyclinglady said, eating a clean diet will help with that. Good luck.
  3. nvsmom
    I too would get copies of all tests done. Some doctors gloss over test results when some should warrant a closer look. At the very least you can google the tests so you are better informed since you doctor seems to be going out of her way to keep you ignorant. Sort of odd... Celiac can mimic MANY diseases, and can continue to do so for a good year...
  4. nvsmom
    As Cyclinglady said, a gluten challenge should be about 3 months long. If you are travelling, you could include that time frame in your gluten challenge (for ease of travel) but I would start early to see how negatively gluten will affect your health. For some celiacs, when gluten is fully re-introduced into the diet, the resultant illness can be quite...
  5. nvsmom
    Gluten is not needed nutritionally by humans, at all. The only reason foods made from wheat, and gluten containing flours, are healthy is because they are fortified with vitamins and minerals (added after processing). You can get all of those vitamins and minerals, and fibre, from veggies, fruits and meats. Going without grains is perfectly healthy; the...
  6. nvsmom
    Very cool...
  7. nvsmom
    I too experienced a lot of ups and downs in my first few months gluten-free. Some symptoms even got worse for a while. Hang in there, it will improve. In the meantime, don't put your body at risk. Don't eat out for a while, and prepare all of your own food. Make sure you give yourself a chance to heal. Best wishes.
  8. nvsmom
    Aw geez, that's just not fair. (hugs) I'm afraid it doesn't sound too much like my hypo symptoms either, but I'm a pretty typical hypothyroid patient (fatigue/sluggish, headaches, dry skin and hair, hair loss, constipation - which can cause blood on BM's but not in them - and joint pain). I do get swollen ankles (often with heat) and muscle cramps (shin...
  9. nvsmom
    That's great he was so thorough! Rather unusual... most have to fight to get at least 6 samples taken! Well, at least you know the celiac disease diagnosis is definitely celiac disease (looks like marsh stage 3 damage - see page 9: Open Original Shared Linkand you can change things to get better.
  10. nvsmom
    Understandable. I'm sorry it's been so bad for you. As long as you are strictly gluten-free, and don't take those riskd because you don't know for sure if you are a celiac, I can't think of any reason to get tested. Some people need the diagnosis for accommodations to be made for them (college food plan, or a nursing home) but beyond that, there isn...
  11. nvsmom
    Wow! I think you said it all already. Awesome response. What would we do without you around here??? Ditto again...what she said!
  12. nvsmom
    If they only ran one celiac disease test, he could be a celiac who is still in the earlier stages of the disease. The DGP tests (deaminated gliadin peptides) are the best tests for kids, and both IgA and IgG based celiac disease tests should be run in all of the types of test (like ttG IgG and tTG IgA). As you know, he must be eating gluten in the 2-3 months...
  13. nvsmom
    In Canada, we have it easier. It the product possibly has gluten in it, in the bottom of the ingredients list it must say "may contain gluten". I tend to go by that more than looking for gluten-free labels.
  14. nvsmom
    Ditto Squirmingintch. She knows her stuff, especially when it comes to dh. Get that full panel done. Keep in mind that those with dh have a higher likelihood of getting false negative test results so negative tests don't always mean negative. When testing is done, I would suggest she goes on the gluten-free diet for 6 months. Keep a symptoms and food...
  15. nvsmom
    The only real difference between celiac disease and NCGS is what shows up in the diagnostic tests. Celiacs can be positive in the ttG, DGP, and EMA blood tests. Celiacs will usually (80+%) show villi damage during and endoscopic biopsy, or show antibodies during a skin biopsy. The AGA tests are positive in many celiacs and in a minority of those with NCGS...
  16. nvsmom
    It looks like it was a marsh 1 or maybe 2. These are often thought to be early celiac disease. It is possible that you still in the early stages of celiac disease or that the doctors failed to biopsy the more damaged areas. Your biopsy doesn't fully support the celiac disease diagnosis but it doesn't disprove it either. You still have two strongly...
  17. nvsmom
    I would still use your own judgement in the long run. We know the EMA IgA is 98 to 100% specific to celiac disease which means that up to a maximum of 2% of positives are caused by something other than celiac disease (could be lab error). You could be one of the tiny minority who has a false positive, but the odds are against you. If you hadn't had so...
  18. nvsmom
    I hope it is just a virus and you are better soon. Hang in there.
  19. nvsmom
    If you are unsure, you can always google the product along with the phrase "gluten-free", and that will take you to the info you want. Try to use the company's site if you can. I did a quick check and Good and Plenty's candies are NOT gluten-free. Open Original Shared Link Wheat flour is the second ingredient. Hershey is quite good about labeling...
  20. nvsmom
    I had a few odd moments in the first half year gluten-free where I felt glutened but I KNOW I was not because I was eating at home (my house was gluten-free). It is not uncommon to have symptoms return for no reason in that first year. At only 4 months gluten-free, chances are that you are still making autoantibodies so it is little wonder that symptoms...
  21. nvsmom
    No, the flavor should be fine. It is the actual licorice candy (like Twizzlers) that is made with wheat.
  22. nvsmom
    Our fast foods include: hard boiled eggs, roast leftovers (cooked in a slow cooker, raw veggies and dip (tzaziki or hummus), wraps (use coconut wraps), crackers and cheese, pepperoni sticks, nuts, seeds, Thai noodles, leftover rice, leftover anything (burgers, salmon, etc). Leftovers are the key. If you are gluten-free you'll hav eto cook more (or have someone...
  23. nvsmom
    Ah, gotcha. There are a number of people around here who went gluten-free before getting tested, or skipped testing altogether. The gluten challenge can be pretty nasty. I hope the next few months aren't too hard on you! Don't overdo the gluten.
  24. nvsmom
    Some packages of jelly bellies used to come from possibly contaminated lines. I'm not sure if this is still the case, but a couple of years ago the big bags (or was it boxes) of jelly bellies from Costco said there may be wheat in the product whereas the small packages did not. I'm up in Canada and our packaged food MUST state on the label if the product...
  25. nvsmom
    Welcome to the board. You could have celiac, and I think it is very smart of you not to rule it out just because you don't have the typical GI symptoms. Most people are unaware that celiac disease usually affects other parts of the body - anemia is the most common symptom! Your increased appetite probably has more to do with eating starches that...
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