Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    (((HUGS))) Best wishes to to. I wish you only the very best.
  2. nvsmom
    Congrats!
  3. nvsmom
    As I understand it, gluten sensitivity, whether it is non-celiac gluten intolerance (NCGI) or celiac disease, causes a great deal of inflammation in the body. That inflammation can make some health conditions worse, and this includes other autoimmune diseases like Hashimoto's. I don't think it causes the disease, but it gives it a nudge to get going (or get...
  4. nvsmom
    If there is a chance it will end up in her mouth, then yes, you should check it all. Advil and Tylenol is being consumed and should be checked (but I believe they are fine). Kids often get shampoos in their mouths so I would check that, and that goes for lotions that are on her hands or face too. It is accepted that gluten does not get into our skin...
  5. nvsmom
    Thanks Takala. I'll mention that to my doctor...good ideas.
  6. nvsmom
    Thanks girls, but I am almost certain that it is not that serious...I strongly doubt it is a heart problem. I have a slow pulse, low blood pressure and my cholesterol is off the bottom of the charts...plus I am not even 40 yet.... But that is getting closer.LOL. If it gets more troublesome, I will go to a doctor this weekend but I think it will be fine.
  7. nvsmom
    I'm not sure if I've been experiencing heart burn or if the sensation I'm experiencing is a chest (heart lung) thing. I've had a sort of tighness/discomfort/burn in my chest under my sternum, and slightly to the left for weeks now. It has coincided with an increase in fatigue too. I did eventually get a mild cough that was productive for a few days but I...
  8. nvsmom
    I think of it like digging in sandboxes. When a hole is dug, it's like our villi being flattened down. When we heal, it is the equivalent of slowly re-filling the hole with a small shovel - it takes time but it's getting fixed. Everytime we gluten ourselves I think of it like a few shovel-fulls being taken out again. if you accidently eat gluten, it will...
  9. nvsmom
    From what I have heard, no stats to support this, kids often heal faster and might have normal levels in three months. The again, I have seen kids who still have very slightly elevated numbers after a year... It's hard to say. I would expect some improvement but not be shocked if it's not within normal range. Good luck.
  10. nvsmom
    Welcome to the board. I would take them up on their offer to test for celiac disease too, but start eating gluten again this weekend and keep eating it until you are sure your testing is done. there is a chance that eating gluten-free will cause a negative celiac test but if you start eating gluten immediately, it will lessen the risk. Another common...
  11. nvsmom
    As I understand it, celiac blood tests measure a type of reaction to gluten or in response to the intestinal lining of the intestine being damaged - they are more of a response to the autoimmune attack triggered by gliadin (gluten) in some individuals.... I do not believe they cause the celiac disease. Your body may not create those antibodies in response...
  12. nvsmom
    Welcome to the board. I agree with everything Neroli said: your niece will have to eat some gluten to continue the damage - she doesn't need to eat it every meal but she does need to be eating it. Perhaps she could use that time to say good-bye to her favourite "glutenous" treats like oreos and doughnuts, or even kraft dinner.
  13. nvsmom
    Welcome to the board. You are right that eating gluten-free will eventually cause all celiac tests to show a negative result. Some people will test positive even after a few months of eating gluten-free, depending on the damage in their intestine and how quickly their body stops making autoantibodies. You might have enough autoantibodies for a positive...
  14. nvsmom
    Welcome to the board. I tended to get a lot of stomach pain when i ate gluten too - the kind that makes you break out in a cold sweat, but i never had the biopsy done so I'm not sure what my intestines looked while that was happening... It does sound like you have celiac disease or non-celiac gluten intolerance (NCGI). You said you are worried that...
  15. nvsmom
    Having the results and not being able to read them WOULD be frustrating! Hmmm, ttg tests usually have a range of 0-20 (but not always) so i would guess that one is negative. EMA is a titre, meaning they keep diluting it until they can't find the autoantibodies. I think a positive is 1:10 or 1:20, but I'm not sure... These are all just my guesses. I have no...
  16. nvsmom
    I doubt it's anything else. Usually the more positive it is the more likely it is celiac, it's the low ttg tests that often show up with other problems. Hang in there.
  17. nvsmom
    It takes a while for family to learn how gluten intolerances affect us. Give them a few months to adjust and learn - hopefully they will come around. Nutrient deficiencies are common but aren't in everyone. I was not low in anything, and even exceeded the normal range in B12. We're all quite different in how we react to this condition. Hang in there...
  18. nvsmom
    I like Wizard's worchestershire sauce. It's labelled as organic labelled as gluten-free. A bit pricey but I don't use a lot. This is in Canada.
  19. nvsmom
    My kids tested negative too but two of them have problems with gluten so I removed it from their diet. My thinking is that it might be early in the disese for them so that they don't have intestinal damage that is causing a measureable autoimmune response, or they have non-celiac gluten intolerance - either way eating gluten-free works for them. If the...
  20. nvsmom
    I too am a celiac and all of my children tested negative to celiac, although two of the three have pretty obvious gluten intolerance. I think there is a chance it is celiac for them but it doen't make a difference in the long run on their treatment: gluten-free for life.
  21. nvsmom
    I agree too. I think the only difference between celiacs and NCGI's is that celiacs have the intestinal damage... and I have no idea why that is such a defining factor when we share every other symptom and inflammatory response. My only guess is that emphasis on celiac disease comes from a focus on autoimmunity (celiacs tend to get more autoimmune diseases...
  22. nvsmom
    Welcome to the board. I don't know much about genetic testing, never having looked into it myself, but I do know that there are a few people on these boards who have celiac and did not test positive for the "usual" genetic tests. I believe there are other genes that are linked to celiac, but I can not remember what they are. Two positive blood tests...
  23. nvsmom
    A lot of the doctors don't know much about gluten sensitivities and they "wing it" so they appear knowledgable... I wish they would just admit that they don't know and look it up! If you go back to the doctor, you might want to take a list of tests and questions with you so you can get better care, for celiac and Hashimoto's.... And I do think you might...
  24. nvsmom
    Welcome to the board. You have a pretty strong deaminated gliadin peptide IgG test (DGP IgG) test. That usually means that you have celiac disease because that test is highly specifif to celiac disease. As I understand it, that test detects an autoantibody that appears, after the intestine is damaged, that is in response to the gliadin peptide in the...
  25. nvsmom
    I was going to sugest thyroid problems too. Some people, whose thyroid is under autoimmune attack, will swing from a hyper state (jittery, shakey, heart palps, affected sleep, fatigued or too much energy, unusual weight gain or loss and increased appetite) to hypo (fatigue, dry skin and hair, hair loss, cold, weight gain, constipation). If he does get...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.