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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Ouch! Poor guy. Hemorrhoids can cause a lot of bleeding but his sounds pretty bad. Celiac and Hashimoto's caused me to deal with constipation for most of my life and I ended up with hemorrhoids too but they don't act up all of the time...To actually become anemic, his rectal bleeding would have to be very heavy; I would guess it would have to be like a heavy...
  2. nvsmom
    Thanks for the advice. I have an appointment in May with a doctor I know is willing to give Armour... or at least T3. When I asked my doctor about natural desicated thyroid he said that his "scientific mind could not allow him to prescribe that". LOL He really said that to me. I wanted to slap the man - I used to teach physics and I think I can handle...
  3. nvsmom
    LOL School of Hard Knocks. LOL
  4. nvsmom
    I have not heard about the link of ttg IgG to a leaky gut. I know ttg IgA is often linked to other diseases (infections like e. coli or autoimmune like Hashimoto's or crohn's) so I assume ttg IgG is as well, but I don't know the connection to a leaky gut. I do know that the ttg tests are pretty specific to celiac (about 90-95% specific meaning that 5...
  5. nvsmom
    I think you doctor is not that well informed when it comes to celiac disease. A positive ttg IgA shows celiac disease (with autoimmune involvement) and not gluten sensitivity (no autoimmune involvement). I would encourage you to follow Lisa's advice and go gluten-free. best wishes
  6. nvsmom
    I think you should try doctor ordered blood tests. If your doctor doesn't want to test you, bring in the positive test to show him and that could help persuade him... it did mine. (My Biocard test line was very faint too, but I ony did one test.) If you visit the doctor, request: ttg IgA (this is the Biocard test) and ttg IgG DGP IgA and DGP IgG EMA IgA total...
  7. nvsmom
    Welcome to the board. The most common blood tests for celiac are: ttg IgA and ttg IgG EMA IgA (sometimes EMA IgG) DGP IgA and DGP IgG total serum IgA (and sometimes IgG) AGA IgA and AGA IgG (older tests not used as much now) The ARA test your doctor used is not used much anymore, and as I don't know much about it I can't comment on it. If you haven...
  8. nvsmom
    I agree that she is a celiac. Every single celiac test that she was given produced a positive result; not many around here get such a clear cut diagnosis. Regardless of what her biopsy says (could be negative if the doctors miss the damage - it happens) I would make her diet gluten-free. You might want to have the doctors check her nutrient levels as...
  9. nvsmom
    Mine are pretty much the same too. No worse but no better.
  10. nvsmom
    Don't let the doctor assume she is right that celiacs can't be big. I am certain that I've had celiac since at least my early elementary school years due to the symptoms I had, and I was a really tall kid. I stopped growing when I was in grade 6 at age 12 when I hit 5'8" and 135lbs... I was taller than my teacher nevermind the other 700 students in the school...
  11. nvsmom
    My boys all tested negative for celiac disease but because I am a celiac, and I suspected issues in a couple of them, I made them gluten-free as well. I was right to do so. Two of my kids health had obvious improvements. We didn't do the biopsy since it would not have changed the fact that they were going gluten-free. I agree with Lisa (she gives great...
  12. nvsmom
    I have no experience myself in the IgG tests... is she deficient in IgA? You didn't mention if she had her total serum IgA tested. A positive ttg (IgA) test is usually around 95 %specific, and a positive EMA (IgA) is almost a sure indicator of celiac disease as the EMA only appears positive after extensive damage has occurred in the gut... Doctors often...
  13. nvsmom
    I'm another that has no problem with trying to go gluten-free. Sure, we can educate people as to what truely going gluten-free is, but if they want to try it - great. I think that letting your friend know that most processed/baked gluten-free goods are usually higher in sugar and fat than wheat flours might help her realize that all gluten-free foods...
  14. nvsmom
    LOL
  15. nvsmom
    My stomach aches and bloating started to go after a few days. After a month my headaches went away and I started losing weight (inflammation most like). My hair started to grow in better. Leg cramps slowed a bit. A bit more energy. After 6 months, my joint pain went away. I'm not sure if it was related because it tends to come and go once or twice...
  16. nvsmom
    (hugs) You've dealt with a lot. I would advise you to go gluten-free. You "could" be a celiac, have symptoms, have other autoimmune problems so are more likely to have celiac, and many of the diseases you are dealing with tend to respond positively to a gluten-free diet even when the patient is not a celiac because it can reduce inflammation. You...
  17. nvsmom
    I too doubt it's something serious. Is it possible that gluten has come into her diet somehow? I have been glutening myself, at low levels, with spicy McCain fries that I could have sworn I checked the label of... I've been having a few every week or so and after 2 months, my stomach aches were very frequent again. Maybe if you triple check the labels everytime...
  18. nvsmom
    There is a long list of problems indicated by a positive ttg IgA but remember that the ttg IgA is up to 95% specific to celiac - meaning if 100 people have a positive ttg IgA, 95 of them will be celiacs. I have seen (somewhere) that the specificity of ttg to celiac is as low as 75% but i can't find that info again...The following link discuses the ttg test...
  19. nvsmom
    I've noticed this from the few times I've glutened myself over the last 8 months. I had a pretty serious reaction to a supposedly gluten-free beer (it was gluten-free to 3 parts per million). It hit really fast... I didn't even finish half of the bottle before i realized what I'd done. was it the barley? was it because it was liquid? Who knows..... Over...
  20. nvsmom
    I had to look it up. Open Original Shared Link I don't have it but those symptoms really do sound a fair bit like celiac doesn't it? (I do have a related condition (low platelets) and many of those symptoms myself but I know I am not low in IgA.) I hope you find some answers in this, good luck!
  21. nvsmom
    Doctors do miss damaged parts during a biopsy if the damage is patchy. I think you are wise to start eating gluten-free again. If you respond well to the diet, I would assume that the positive ttg test you had was from celiac and stay gluten-free for life. Best wishes.
  22. nvsmom
    I have read that grains like rice and wheat, can affect your blood sugar more than table sugar. I remember being shocked that a slice of whole grain bread has more readily available sugar to you blood than a few teaspoons of sugar... Just crazy! (I have read this in books like Wheat Belly and not medical journals though.) I used to have a bit of (undiagnosed...
  23. nvsmom
    Thanks. You are right. I should say that your TPO Ab should be very low and closer to a zero than the upper end of the range. It really is the bigger picture when it comes to thyroid testing isn't it... I guess it's the same with celiac. My TPO Ab was only tested once and it was considered "normal" at 33.8 with a range of 0-34. I just assumed it was...
  24. nvsmom
    I remember one poster, about 6 months ago, who was also a young adult who grew an inch or so after going gluten-free. A growth spurt is common in kids if their growth was being held off but it does happen with some adults too. Hope your legs feel better soon.
  25. nvsmom
    My lactose intolerance started years before I was diagnosed so I'm not of much help. BUT I have heard of health problems showing up after a chronic problem is treated; it's sort of like the bodyrelaxes now that one issue is being dealt with so it focuses on the next one.
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