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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I'm sorry my post was a bit scarey. I was about to reply to your reply to me, and then I scrolled down and saw you went to the doctor. You periods aren't too heavy (I got up to 20 days once LOL) and without bruising I would guess it wasn't too critical. I'm glad you got it checked out though... I'm sorry it wrecked your Friday night though. So your...
  2. nvsmom
    1: do you react twice as much asbefore if not more? Than when you were on gluten? No. I react about the same. In fact I have been accidently glutening myself every other week with a few glutened fries for two months... It took me that long to finally figure out why I've been feeling worse and worse lately... This was after 6 months gluten-free. 2...
  3. nvsmom
    A titre (as I understand it) is essentially when they keep diluting the sample until the point when they can no longer detect the EMA. I had a positive titre at 1:40. It would start lower, and I'm not sure how low or what a negative is... I just know it's lower than 1;40. So it would go like 1:10, 1:20, 1:40, 1:80, 1:160, 1:320 etc. 1:160 is a pretty serious...
  4. nvsmom
    (((HUGS)))
  5. nvsmom
    I'm sorry you are so unwell. Have you had your platelet count checked? Petechiae are tiny bleeds - hemorrhages - under the skin that can be innocent (from too much coughing or vomitting, or certain medications) to more dangerous problems like serious infection or autoimmune disease (I had this with ITP). Open Original Shared Link If things get...
  6. nvsmom
    Congrats!! That's awesome!
  7. nvsmom
    Welcome to the board. Your gastro is correct, if you want to do further celiac testing you need to resume eating gluten. I guess the main question is if you feel the need to have further testing. Some people feel most comfortable having the blood tests and a biopsy (so doctors can get a baseline of damage and look for other problems) while others feel...
  8. nvsmom
    Welcome to the board. The total serum IgA test is actually not a celiac test. It is just a test to determine if you have adequate levels of IgA to do the other IgA tests (ttg IgA, EMA IgA, DGP IgA) that do test for celiac. I don't believe slightly elevated IgA levels mean anything but I am not knowledgable in that area. His ttg (IgA or IgG?) test...
  9. nvsmom
    Oh yes. I hit withdrawl too. Very nasty. Hang in there. I felt poorly - meaning worse than normal - for about 2 weeks. the migraine and the moodiness was quite annoying... I'm sure that I was quite annoying at that time too. LOL Hang in there. It will slowly ease up until one day you will notice you are feeling better. I would guess you could be feeling...
  10. nvsmom
    It sounds like you came up with a great compromise in a very graceful way. You still get to spend time with your friends, they get to host, you get to eat snacky foods and you won't be ill... Very nicely done. I hope it's a fun evening.
  11. nvsmom
    I love hearing you ladies' success stories... it's heartening. It really is all about choices, isn't it? We choose how "tight" we keep our diet, or not. We choose whether eating out (beyond a basic salad) is worth the risk, or not. I truely appreciate that about this disease, because with my other autoimmune problems I had/have very little control...
  12. nvsmom
    Good luck!
  13. nvsmom
    Those tests will give you a good idea if it's graves too, but by the sounds of it, you seem to have more hypo symptoms rather than hyper. You'll want your Free T4 and FreeT3 to be in the upper 50-75% range of your lab's normal reference range (ideally). Those antibody tests should basically be at zero. You might as well get your TSH checked too; that...
  14. nvsmom
    LOL Cheers to us paranoid super sleuths. I will be more careful in the future... It's just sort of funny because I had become a bit smug thinking " this gluten-free thing isn't so hard". I almost deserved that little smack down back to reality. lol I think it was the fries that were getting me. I haven't had them for a good week and the stomach...
  15. nvsmom
    I never had a biopsy either. Some doctors don't push for one when you have a positive EMA IgA because that test indicates that there is a significant amount of damage in your intestines already. That test, along with a positive ttg IgA is a pretty clear diagnosis. Did they check your iron, ferritin, calcium, D, B12 and potassium levels too? Celiacs are...
  16. nvsmom
    That happens more frequent than you would think. If the damage is patchy, it means that the doctors missed the damaged parts in the biopsy. I can't remember if he had any other blood tests beyond the ttg (IgA?)? If the biopsy is normal, I would really push to get the complete blood panel done before he goes gluten-free so he won't have to go back onto...
  17. nvsmom
    As Neroli said, the ttg IgA can indicate other problems like an infection (ex. e.coli) or other autoimmune diseases (Hashimoto's) but when she also has two other very positive test results, I would say that it is almost a certainty that celiac disease is the problem, but I'm not in the medical field and this is just my own opinion based on what I have learned...
  18. nvsmom
    Can you go to a wlak in clinic or see a family doctor to request the test? Biocard sells home tests for ttg IgA but it would take some time to get to you. Hang in there.
  19. nvsmom
    Have you had your thyroid checked? Over 10% of celiacs have thyroid issues, which is higher than the regular population. Hashimoto's (hypothyroidism) is the most common and fits your symptoms very well; Graves disease is the hyper aspect of it. These are the most common tests for hypothyroidism: TPO Antibodies - Should be virtually zero TSH - Should...
  20. nvsmom
    Welcome to the board. Looking at the tests, it appears that you do not have celiac disease, but as you said, there is a chance you are one of the false positives. Did the doctor test you total serum IgA or IgG levels? If you don't produce enough IgA, then your tests using that (DGP IgA and ttg IgA) will be negative regardless of whether you have celiac...
  21. nvsmom
    It could... everyone reacts so differently to this disease. There are celiacs around here who became so thin and malnourished that they were advised to use a feeding tube and then there are others who are a hundred pounds overweight before diagnosis. As for the gluten intolerant, that can be awful and cause vomitting and extreme GI issues, where as some celiacs...
  22. nvsmom
    Welcome to the board! As the other posters suggested, nuts or bars (I like Lara bars myself) are really easy to have on hand in a pocket. Many hors d'oeuvres will be gluten-free like veggies or fruit. Many meats will be too but you'll have to double check that with the wait staff. As for business dinners that are buffet style, if you let the staff or...
  23. nvsmom
    LOL ... Better than every 3 months too, eh Mushroom?
  24. nvsmom
    Welcome to the board. I'm sorry to hear you haven't been well. I used the Biocard home test which tests ttg IgA levels, as well as tests for adequate serum IgA levels. A positive ttg IgA test will usually indicate celiac but it can indicate there are other autoimmune diseases like Hashimoto's, and it can also be raised from infection like e.coli. The...
  25. nvsmom
    I think I got too comfortable with eating gluten-free and thought I had it down pat... Oops. I have been feeling like something is glutening me since January and I haven't been able to figure it out. I double checked all of my supplements and vitamins thinking it might have been there. I dropped all Dream milks (was using coconut for cooking).... That wasn...
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