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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Welcome to the board. As Peter said, it's hard to comment on test results without a lab range, but ttg ranges are usually up to about a 20 and a 78 is far beyond that, and a 1992 is astronomically high. With ttg IgA tests that are soooo positive, there is little doubt that celiac is causing that result. When ttg test results are close to the normal range...
  2. nvsmom
    If you recently went gluten-free, you might still have enough autoantibodies to test well. Some people stop making them as soon as they stop gluten, but for others it can take months for it to leave their system. If it was just in the last week or so, you could consider eating a bit more gluten for a few days and get tested, but if you've been off gluten...
  3. nvsmom
    That's true - without proper education, people who switch to gluten-free foods might end up lacking in some nutrients if they are (unknowingly) making poor food choices. Too true... it's sort of sad that the food we buy in grocery stores often isn't what we should be eating, isn't it?
  4. nvsmom
    If you are eating gluten at all, it might be worth your while to get tested BEFORE you commit to the gluten-free diet (it sounds like you are eating gluten light at the moment). Who knows, you might be consuming enough gluten to register positive blood tests - it doesn't take much, but do the tests sooner rather than later (when the autoantibody levels drop...
  5. nvsmom
    I've had a lot of joint pain in the past, much of it in my fingers... It truely is annoying when it's hard to hold a pencil or hold a book to read. I'm not sure if my pain was from my untreated celiac or hashimoto's, or if it's from something else. Anyway, my joint pain took about 6 months to go away after going gluten-free, but my joint pains tend to last...
  6. nvsmom
    I think your IgA, IgG and IgM are measurements of the total serum amounts of those antibodies. I'm basing that guess on the normal reference range for your IgA, which is usually about that amount... It is just a guess though. The total serum IgA is often measured in celiacs to ensure that you have enough antibodies for the actual celiac tests that use...
  7. nvsmom
    I know celiac disease can affect fertility but it doesn't always, just like not everyone experiences the same gastro or neurological symptoms in this disease. I think that untreated celiac can lead to other health problems (like PCOS or Hashi's or lupus) that causes infertility though.... but not in everyone. I have had three children and one, very early...
  8. nvsmom
    I agree with Ollie's mom, those breads and cereals are only fortified because they are processed food-like substances. There is not anything in wheat that has nutritional value that you can't get in better ways from healthier foods. The food manufacturers fortify those foods so that people will be more likely to buy them.... Sort of like how they started...
  9. nvsmom
    LOL Funny... but a bit scarey at the same time!
  10. nvsmom
    Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage...
  11. nvsmom
    Welcome to the board. Your EMA IgA was abnormal. That is a very specific and sensitive test for celiacs. A positive result shows up only after there has been a significant amount of damage done to the small intestine.... As a general rule, when an EMA is positive it's probably celiac (something like 97% of the time). It is not clear which glia din tests...
  12. nvsmom
    I think those nutrient deficiencies vary a lot from person to person. Some people seem to lose their deficiencies quickly and others take a lot of time, and then there are a few people like me who had celiac their whole life yet my nutrient levels are fine, or they execeeded the norm (like my B12). My D was near the low end of normal but hey, I live in Canada...
  13. nvsmom
    Your neurological symptoms (depression) and your tingling, mouth sensations, itching and pain certainly sound like gluten intolerance symptoms to me, and there is NO way to tell celiac symptoms from non-celiac gluten intolerance (NCGI) symptoms - they are the same. I don't know what symptom you think you are missing... that's a lot! I don't believe...
  14. nvsmom
    Yes, ditto Bartfull about the withdrawl. I remember feeling pretty tired and soooo grumpy from about day 3 to day 14 (approx.). Hang in there (if your testing is complete) and try to possibly increase your protein and fat intake - that's thought to help keep your blood sugar a bit more stable. ... or do what I did and eat gluten-free junk food/ comfort...
  15. nvsmom
    IgA is a type of immunoglobin that works in your digestive tract against infections. Here's a basic description: Open Original Shared Link If IgA is low, then you won't show autoantibodies that use Iga in your blood work (ttg IgA or EMA IgA). If you have normal IgA, then it means you can have an ccurate ttg IgA, EMA IgA and DGP IgA blood test done. For...
  16. nvsmom
    I wouldn't go into detail either. A simple " I'm too sick for work" should be fine as long as you aren't missing a tonne of work. I hope you feel better.
  17. nvsmom
    Welcome to the board. I agree with Karen, I would switch them to gluten-free foods (over the next few months) as much as possible. Health-wise, there is not a single reason that they should eat gluten - it's mostly a taste and texture preference, but preferences can change. Have you had your children tested for celiac yet? There is a genetic link...
  18. nvsmom
    No, you can always pay to have someone else butcher for you. We just do it ourselves because it's a cheaper and it's a fun social time with our family... well, the chatting is fun while we work. LOL
  19. nvsmom
    If you can get the tests done, now would be the best time because some celiacs (and Non-Cleiac Gluten Intolerant people - NCGI) find they react even more strongly to gluten when they have been off of it for a time. Some find it very "unpleasant" to go back onto gluten for 4-8 weeks to be tested. If you do want the tests, these are the most common (from...
  20. nvsmom
    If you are near farms, you might be able to find a local farmer to buy beef from. We have a farm in the family and do our own butchering, so I know exactly the diet my beef had and how lean my cuts of meat are. Because of our great meat supply, we eat a few days a week... and I've never had low B12 so maybe it has helped. LOL
  21. nvsmom
    Welcome to the board. When (if) you request celiac testing, these are the most common ones you might want to request (before going gluten-free): ttg IgA and ttg IgG EMA IgA DGP IgA and DGP IgG total serum IgA AGA IgA and AGA IgG (older tests) Celiac can cause nutrient deficiencies like low B12, D, ferritin, iron, calcium and potassium. That can affect...
  22. nvsmom
    Many celiacs do not test positive in all tests, There is a chance you are a celiac, especially if your total serum IgA level is low, or if your celiac disease is fairly new as a positive EMA IgA only shows up once there is a fair bit of intestinal damage, and that can take some time to happen. It could also appear negative if you were gluten-free prior to...
  23. nvsmom
    I looked through the labs quickly and did not see any celiac blood tests. The IgA and IgG you mentioned have normal ranges that are the same as what is usually seen for the total serum IgA (or IgG) tests - which just tests to see if you have enough IgA or IgG to have an accurate celiac test. The most common celiac blood tests are: ttg IgA and ttg IgG EMA...
  24. nvsmom
    Yes! there is a chance they have silent celiac - without any symptoms (yet) or they could have symptoms that you haven't recognized as being caused by celiac (like headaches, short stature, ADHD, etc). Yep, get them tested, and RETEST every few years because celiac can become active at any age if they are eating gluten... that is if you don't make all...
  25. nvsmom
    Are you taking zinc sublingually? As I understand it, zince is best absorbed in our mouths.
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