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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I was hungrier the first few months too and I let myself indulge. Unlike ndw3363, I was a bit above my ideal weight and I ended up losing weight (about 15lbs) in the first few months, which I can only attribute to the inflammation and swelling going away. After about 3 or months my appetite fell right off. I eat a LOT less now than I did before. I usually...
  2. nvsmom
    Welcome to the board. I only have a couple of things to add to the good advice already given. First, hang in there for those first few weeks during which time some people go through a withdrawl. Some people feel a bit worse before they feel better so if it happens to you, wait it out and it will pass. Second, when you go back to the doctor for nutrient...
  3. nvsmom
    I've heard many stories about negative biopsies after positive test results. It seems to be fairly well accepted that in those circumstances what has probably happened is that the doctors missed patchy intestinal damage. There is a LOT of surface area in the intestines and I'm surprised they don't miss the damage areas more often. Good luck with your...
  4. nvsmom
    Welcome to the board. I too used a Biocard (ttg IgA) home test and ended up with a very faint line. I kept putting off going to the doctor before this so it was a great prod in the right direction for me. I took my test in to see my doctor and he retested my ttg IgA as well as my EMA IgA which both came back very positive. I've been gluten-free ever...
  5. nvsmom
    I get so cold my fingers and toes stiffen up, and if I touch anyone they yelp like I'm an ice cube. My body temp rarely goes much above 97F, and if I go outside in the winter and don't move much I'm shivering with teeth chattering within minutes. I have under treated Hashimoto's and I'm hoping it will improve as my meds get closer to the ideal point. ...
  6. nvsmom
    I know I'm lactose intolerant and have been for at least 10 years. I would still eat dairy like icecream and cottage cheese, and I would just ignore the stomach aches because I had them so often anyways. LOL I honestly don't know how long dairy has bothered me; I wasn't too observant about my diet in the past. It could be since childhood (I'm sure I...
  7. nvsmom
    Has his thyroid been checked? Night sweats, anxiety and a messed up digestive tract can be symptoms of a thyroid under attack (sounds a bit like Graves disease). Thyroid testing could be something to consider at well; if he does get tested, make sure you get copies of the labs and research his results as doctors are notorious for declaring a (thyroid) lab...
  8. nvsmom
    It is coffee that rumbles my belly. Tea and colas don't do it to me. I'm fine with that though; my morning coffee gets my gut going better than fibre supplements ever could. LOL
  9. nvsmom
    Any type of gluten intolerance is a GI's area, and if the GI says something is causing your symptoms, then it's not made up... right? You have a Gluten Intolerance, you're just not sure if it's caused by celiac or not. I think doctors are starting to see gluten intolerance almost as a spectrum disorder like autism; there various forms of autism out there...
  10. nvsmom
    It's fairly unusual to take synthroid along with natural dessicated thyroid; I've read many poeple do not do well with that for some reason. Perhaps the NDT is causing a problem for you. Have you considered trying a synthetic T3 like Cytomel instead? Not all meds work right for all people, and maybe you need to try something new. From what i undestand...
  11. nvsmom
    As far as i understand it, if you are a celiac, you need to remove all gluten or you will not heal but perfect healing is not guaranteed. A non-celiac gluten intolerant person will also feel very badly if they eat gluten but is is yet unclear what damage (if any) is being done when they eat it... I would guess something is going on because otherwise why would...
  12. nvsmom
    Welcome to the board. I'm sorry your daughter has to wait so long for a biopsy. That is so very very wrong. If you need that biopsy, I really hope they hurry her through the line. I agree with txgal, it sounds like a hemorrhoid. they can be quite surprising and turn toilet's water red if it is newly bleeding with a bowel movement. Best wishes...
  13. nvsmom
    Before I knew I had celiac disease or hashimoto's, I had my doctor check my thyroid (I was having symptoms) and my TSH went from a 6.8 to a 4.7 in two weeks entirely on its own. I just took my doctor's word for it that I was normal and didn't realize that was high (our outdated lab goes up to 6.0 for its reference range). When they "discovered" my Hashi...
  14. nvsmom
    Welcome to the board and, as Mushroom said, to the club. I agree with everything she said. With an EMA titre that high, you probably have a fair amount of intestinal damage from celiac disease, and then with so many other positive tests... I'd say there is virtually no doubt about it. When you see the GI doctor, you might want to ask about nutritional...
  15. nvsmom
    I'm sorry to hear you are unwell, but welcome to the board. If you think you could have celiac disease, and think you would like a formal diagnosis (it's a helpful incentive for sticking to the gluten-free diet for many) you should resume eating gluten and get tested very soon. Eating gluten-free will cause all celiac tests to eventually show up as (false...
  16. nvsmom
    (((HUGS))) That's a hard thing. I hope he bothers to educate himself.
  17. nvsmom
    Yeah!
  18. nvsmom

    ARCHIVED Diabetes?

    nvsmom replied to Jade Pray's topic in Related Issues & Disorders

    Since you have been gluten-free for so long, I think it is wise of you to look into other autoimmune causes. A few other autoimmune disorders you might want to consider are: Hashimoto's thyroiditis - can cause weight gain, head aches, appettite changes, cold intolerance, dry skin, fatigue, easy bruising and hair loss. If you get tested for this, your...
  19. nvsmom
    Welcome to the board. In my opinion, you don't need an official diagnosis but many (if not most) celiacs find it helpful to have a diagnosis because it re-enforces the fact that you must stay 100% gluten-free. It can be difficult for some to stay gluten-free when they eat out, are visiting, or feeling down or unwell if they do not have a definitive...
  20. nvsmom
    Welcome to the forum. I like your avatar too. I'm from western Canada, and I've never thought about Alabama being hilly or mountainous... I have much to learn. I am normally one of the peope who says "why bother" when it comes to a biopsy after positive blood work. If the doctor doesn't sample the affected/damaged areas then a celiac patient might...
  21. nvsmom
    L-glutamine can help with healing of the intestinal linings, and a probiotic might help his stomach with helpful bacteria... Sorry he is unwell. I hope he feels better soon.... I would indulge my kids with a bit extra computer time or a cartoon from the library. Pampering makes their brains feel better anyways.
  22. nvsmom
    I'm glad her intestines improved; to me that would be a clue that removing gluten was probably the right thing to do. Because celiacs arefrequently intolerant of milk, you might want to consider removing it from her diet too. I know people might hassle you about "where will she get her calcium?" but calcium from dairy is not easily absorbed; it is better...
  23. nvsmom
    I'm sorry to hear of your loss. (hug) i have heard that having untreated celiac disease can possibly cause miscarriages. I wouldn't be surprised if the withdrawl and body changes that one would experience in the first few weeks could throw a mother's body into enough of a tailspin to make pregnancy difficult. Another problem could be that those with...
  24. nvsmom
    Yes, I think Shadowicewolf is right. The celiac panels include that test as well as: Ttg IgA and ttg IgG DGP IgA and DGP IgG EMA IgA AGA IgA and IgG (older tests and becoming less common) If you do want testing, now is the time. Many celiacs appear to react worse the longer they have been away from gluten so eating gluten for a few weeks 6 months or...
  25. nvsmom
    I do best with that diet too.
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