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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    True. I just mentioned those because they are the common symptoms, sort of like stomachaches is for celiac disease. My brother had a dairy allergy that was non-life threatening, with very similar symptoms to Zebra007. Some doctors do IgG tests for food sensitivities, but they aren't widely medically accepted.
  2. nvsmom
    Yes! Yes! YES! (For joint pain - not muscle pain) My joint pain flared up very badly after I had been gluten-free for 2 months. My joint pain was definitely autoimmune related because I would get flu-ish, fatigued, headaches, and then the symmetrical pain would hit my upper body (fingers, wrists, elbows, shoulders). I still remember that the "2 month gluten...
  3. nvsmom
    I'm not an expert so I could get this confused: A food allergy is an Immunoglobulin E (IgE) reaction to something (food or something like mold) that causes a histamine reaction (stuffy nose and itchy eyes). A food sensitivity (intolerance) is not an allergy but some sort of (usually digestive) problem that your body has with a food. Some doctors believe...
  4. nvsmom
    14 pounds of banana chips? LOL That would be quite the bag!
  5. nvsmom
    To me, that sounds like it could be a milk allergy. As far as I understand it, casein intolerance generally has symptoms similar to celiac disease. (I looked into it when researching diet for a family member with Aspergers)
  6. nvsmom
    I tend to get stomachaches and I think my (adult- age 30+ -onset) acne is set off by it. I don't know if I am dairy (protein) intolerant or just lactose intolerant - I suspect the later. I tend to do okay with hard, aged cheeses but ice cream is a problem. I don't like milk much and haven't wanted to drink it for years, so that is easy to skip. I...
  7. nvsmom
    Welcome to the board. Most of us were pretty upset by the diagnosis, the rest of us were relieved to finally have an answer. The first few month on the gluten-free diet are, by far, the hardest. Add to that the fact that many celiacs experience withdrawal in the first few weeks, which often includes more fatigue, headaches, moodiness and anxiety...
  8. nvsmom
    Yep, thyroid. Hypothyroidism is more common among celiacs and can do a number on your hair. My hair thinned on top... as a woman, I'm not impressed. Check TSH (should be near a 1), free T4 and free T3 (should be in the 50-75% range of your lab's normal range), and anti-thyroid antibodies like TPO Ab.
  9. nvsmom
    The vitamins that I know of that can be affected by celiac disease are: D, B12, ferritin, Cu, Mg, K, Fe, K, A, Zn, and Ca.
  10. nvsmom
    The AGA IgA / IgG are older tests. They aren't the best. They will catch some celiacs but they can have a pretty high rate of false negatives. The newer DGP tests are much better if you can get them. Some celiacs' tTG IgA tests are negative. Most will have a positive result but some don't - one of our moderators only had a positive DGP test.
  11. nvsmom
    Welcome to the board. With a deaminated gliadin peptides (DGP IgA) that high, it is most likely that it was caused by celiac disease. False positives are very rare, around 5% of the time (and those are weak positives like a 20), whereas false negatives are more common, up to 1 in 5 endoscopies of celiacs yield a false negative, especially if 4 or fewer...
  12. nvsmom
    When we have an income again, I will may look into those classes. I dunno if I could do a senior class though - I'm 25 years too early. LOL
  13. nvsmom
    Welcome to the group!
  14. nvsmom
    Thanks. Yoga is a nice idea, although almost comical because I am so not a bendy person - my dance teacher had a laugh at me when I was younger. LOL I do enjoy some yoga but only do a few home dvd's. I'm afraid that I won't be attending classes anytime soon. My husband works in the oil industry and was laid off a few months ago, so we're saving as...
  15. nvsmom
    I was convinced that I had lupus when my fatigue and arthritis did not improve immediately on the gluten-free diet. And there has been more than one person around here who had the white spots on the brain typically seen on an MRI from a person with MS, but it was celiac disease related and not MS. There are over 300 symptoms and related disorders to...
  16. nvsmom
    Try saving your gluten meals for later in the day so you day isn't as disrupted.... just your sleep. JK It does help some to eat their gluten in the evening though. Good luck with it!
  17. nvsmom
    Ahh. Got ya! Good luck! ... Great White North... I'd love to laugh and scoff at that but it did snow a bit last week. It's 20C above right now though.
  18. nvsmom
    I like to refer people to this report by the World Gastroenterology Organization, pages 10- 12 it discus the specificity of the tests. It's a good reference. Open Original Shared Link Which military are you joining? Do they take celiacs? I just ask because up here in Canada, they will not take a celiac into basic training but if you discover you have...
  19. nvsmom
    I had periods of months, and even years when I was a child and into my early twenties, where I had very few obvious symptoms to basically none. Symptoms can wax and wane, and change over time. The symptoms I got in my thirties were different than my twenties which were different than my childhood. There can be a lot of variation. Was it the endomysial...
  20. nvsmom
    I agree. Two days is nothing. Most doctors will recommend eating gluten for 2-3 months prior to celiac testing. If you are doing a food sensitivities test from a naturopath (based on IgG testing) then you probably only need a few days of exposure. Those tests will not tell you if you have celiac disease though, and they are not widely recognized as...
  21. nvsmom
    LOL DGP is deaminated gliadin peptides. Don't let the doctor mix them up with the AGA tests (anti-gliadin antibodies) - they aren't as good of a test. Test results can linger elevated for months, or even a couple of years, after going gluten-free - especially the tTG tests. I know that my tTG IgA was still slightly elevated after being gluten...
  22. nvsmom
    There is a chance that you still have celiac disease because the sensitivity of the tTG IgA is somewhere between 75% and 95%, which means it can miss 5-25% of all celiacs. We have more than a few board members who had a negative tTG IgA yet had other positive blood tests or a positive biopsy. It does happen sometimes, although it is not the norm. The...
  23. nvsmom
    Welcome to the board. I agree that eating out may have to be eliminated for a while, or just order drinks while socializing. It's pretty difficult to stay safe when eating at fast food restaurants. Headaches with exercise can happen, although I don't think it is directly linked to celiac disease. Headaches and migraines can be caused by celiac disease...
  24. nvsmom
    That's great! I'm glad things are going so well for you.
  25. nvsmom
    As long as you wash you hands before eating, trace flour on surfaces like doorknobs should not be a danger. The silverware drawer, at least in my house, seems to collect crumbs though - I would wash silverware before using it if there is a chance of contamination. Sterilizing won't "kill" gluten. Gluten just needs to be physically removed by washing...
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