Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I think that depends on how long it will take to see the GI. In my city, it takes a year to see a GI for suspected celiac disease unless there are very severe symptoms. If it is going to take a long time you might want to go gluten-free while waiting, otherwise it might be simpler and more accurate to keep eating gluten.... I am pretty sure the GI will want...
  2. nvsmom
    Is your IgA (Immunoglobulin A) low? Is the normal 170 and you are less than 2 (<2) ? If so, low IgA will cause false negatives in any IgA based tests (tTG IgA or DGP IgA - which I think you had done). What are the normal ranges of your celiac disease tests? The ranges vary from 0-1 up to 0-20.
  3. nvsmom
    The reason the doctors want to repeat the biopsy is because they think it might be celiac disease but they didn't find the proof. They need more damage to happen during the next 6 months before they try again to find the damage in a biopsy. For someone who probably has celiac disease, that just seems cruel to me. He has a positive tTG IgG. That test...
  4. nvsmom
    Welcome to the board. Congratulations on your little one. Many celiacs find their disease is kicked off by a traumatic or major health event - pregnancy and childbirth has done that for more than one person around here. To answer your questions: For the most accurate tests, you need to be eating gluten (equivalent of 1-2 slices of bread...
  5. nvsmom
    Can you get him in to see his normal doctor today? Autoantibodies can stay in the system of some people for weeks or months. If you get him tested now, you might get answers without having to wait for weeks. Ask for the: tTG IgA and tTG IgG (anti-tissue transglutaminse) DGP IgA and DGP IgG (deaminated gliadin peptides) - the best test for young children...
  6. nvsmom
    It looks like you've been positive (or almost positive) in every celiac disease test you've had done so far... You definitely belong here. Welcome to the club. LOL I'm not sure what your Tissue Transglutaminase is; my guess would be the tTG IgG and it is quite positive. The Gliadin Peptide Ab IgG is the DGP IgG and you are very close to being positive...
  7. nvsmom
    My labs listed the tTG test as tissue transglutaminase too. My guess for interpreting your labs is you had the AGA IgA and AGA IgG (anti-gliadin antibodies in both IgA and IgG), as well as the tTG IgA. The AGA tests are older tests that are not very reliable (low sensitivity and specificity) but some doctors believe that a positive AGA can indicate ...
  8. nvsmom
    Do not feel bad about not asking for the test names. I was brought up to trust doctors and it took me almost four decades to realize that I should not trust them so completely with my life... This was after they had brushed off abnormal test results for years without telling me. That's quite a strong positive result - two and a half times the upper...
  9. nvsmom
    Just remember that some celiacs are symptom free. No GI symptoms at all. My cousin was diagnosed based on cognitive problems and ADD. Also, some celiacs do not always get immediate symptoms. My symptoms tend to worsen over time, although I usually do feel a bit off when I eat gluten. It is possible that the excitement and adrenalin from travel helped...
  10. nvsmom
    Great response... wonder what she was actually expecting you to say or does she always speak before thinking... Good ones, Kareng! LOL
  11. nvsmom
    Welcome. I agree with Greenbeanie, it's good idea to call the GI's office. They'll often hurry things along for a child who is suffering. If you still have to wait the 4-6 weeks, you could probably have her go "gluten-light" for a couple of weeks (ie, 1 cookie per day or half a muffin) and then resume the full gluten challenge (1-2 slices of bread...
  12. nvsmom
    I agree that those could all be possible celiac symptoms, but an itchy throat does sound allergy related. It is possible to have celiac disease AND and allergy to wheat; someone around here had that double whammy although i can't remember who it was. IBS... Someone aound here said that IBS is a doctor's way of saying, "I Be Stumped". It's just a chronic...
  13. nvsmom
    I hope you feel better soon. 1) should I be getting new cookware etc to ensure no cross contamination occurs? You really only need to get rid of things that are scratched up, as SkullGirl said. 2) if so what all should I replace? Pots, pans, cuuttingboards, plates, utensils? I got rid of a teflon pan, a seive-like collander (I kept my other one), scratched...
  14. nvsmom
    I think that could be the problem right there - you are very new. It can take weeks to years for our bodies to stop making autoantibodies like tTG IgA. It could just be a blip on your road to recovery. Do you keep a food and symptoms journal? It can help uncover other food sensitivities like lactose intolerance, tomatoes, nightshades, soy, etc. Raw...
  15. nvsmom
    Other nutrients that can be a problem are Ca, A, B12, Fe, Mg, K, zinc, Mg, and Cu. Hypothyroidism can also cause fatigue and it linked to celiac disease. It might be something to check out.
  16. nvsmom
    It is possible but usually if you rinse your hands very well, you should not have soap on you anymore. It could be cc but I am guessing that the most likely culprit is just that you are still fairly new to the gluten-free diet and there are still autoantibodies causing you issues. It can take weeks to years for the body to stop producing autoantibodies,...
  17. nvsmom
    Make sure the area BESIDE the rash is biopsied and not the actual rash itself. The autoantibodies are found beside the rash. I've had what I thought was dh flare up on me when I'd been gluten-free for quite some time. I'm still not sure if that was it. I imagine that dh could still crop up in the first few month gluten-free since most people's bodies...
  18. nvsmom
    Yeah... It's a dangerous way to test for a disease. I can't think of many other tests where you have to make yourself sicker in order to get a diagnosis. Imagine if they did that with cancer, heart disease or diabetes. If he can't handle the challenge, you can always skip the testing and go gluten-free. I did that with my boys and their tests were...
  19. nvsmom
    Very good point. He's hurting himself by eating gluten, but I don't think he needs to be retested because he already knows that he has celiac disease. He just needs to go gluten-free before he ends up with more health issues.
  20. nvsmom
    Ditto the other ladies. They give great advice. I did want to add that the endoscopic biopsy only requires 2-4 weeks of the equivalent of 1-2 slices of bread per day to get the most accurate results (which will catch about 80% of celiacs). You could probably go gluten-light or maybe even gluten-free, for a while if your symptoms are getting extreme....
  21. nvsmom
    I am so sorry that you have such little support.. I hope you get very clear results after going through with the gluten challenge. Best wishes.
  22. nvsmom
    Ouch! LOL
  23. nvsmom
    I like an egg bake. Cold is good too.
  24. nvsmom
    How does one get an exercise-induced small intestine injury? I just can't picture how that could happen.
  25. nvsmom
    Welcome. I don't know about the burping, but loss of bloating is a pretty sure sign that wheat is a problem for you. Do you think you have celiac disease? Celiac is an autoimmune reaction to the protein (gliadin/gluten) in grains such as wheat, barley, rye, and others. If you think it is celiac disease, and you want to be tested, you need to be...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.