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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I'm another who took a long time to come down. My last tes was at over a year gluten-free, and it was just about normal (20.9 with and upper limit of 20) but that was after I was put on some steroids so that may have affected it. I will be having myself tested again this summer, and I'm curious if it will go up now that I'm off steroids. I do have a thyroid...
  2. nvsmom
    Most I have seen say a gluten challenge should be 8-12 weeks with 1-2 slices of bread per day or equivalent.
  3. nvsmom
    The DNA testing is Greek to me too. It looks like she has the DQ2, which is associated with celiac disease, but about 30% of the world has that yet only 1% of the world has celiac disease. A positive genetic test just means that she is in the 30% group of people most at risk of developing celiac disease, and not that she has celiac disease. She only had...
  4. nvsmom
    In my opinion, Estrella Daura's labeling is very misleading. I had one of those a couple of years ago, and halfway through the beer I was checking the label because I could feel the pain coming on.... Maybe my bottle wasn't "de-glutened" enough but I'll never have it again.
  5. nvsmom
    LOL We had those rules!
  6. nvsmom
    I hear you on that! I skipped the biopsy myself after having a positive tTG IgA and EMA IgA. I feel quite a bit better gluten-free, so I think I did the right thing.
  7. nvsmom
    I'm glad you are doing so well!
  8. nvsmom
    About 5% of celiacs are deficient in IgA so it is a good idea to get that checked just in case... Someone has to be that 1 in 20, right? I don't believe IgG deficiency is linked to celiac disease at all. The tTG tests are very good tests but they can miss a few people. If possible it gives a more accurate result if other tests are run too. The anti...
  9. nvsmom
    The DGP tests are one of the fastest to turn positive if gluten is sneaking into your diet. Is it possible that you are getting some gluten in soy sauce, lotions or hair products, BBQ sauces or cross contaminated food like butter? That test is pretty specific to celiac disease, so if it's positive, it is probably due to celiac disease - especially when...
  10. nvsmom
    I didn't reaize the upper limit of her lab was 15 - she's almost double the upper limit.... that's getting beyond slightly elevated
  11. nvsmom
    I'm sorry you have no support. Perhaps start doing the grocery shopping and only buy gluten-free foods? If it is not in the house it will be harder for them to eat it around you.
  12. nvsmom
    There is a chance that the biopsy could have a false negative. Celiac damage can be patchy so the more sample taken the better - 6 is considered to be a good starting point with more being better. More samples will mean a more accurate test. Enjoy gluten this week. A couple of servings per day should be enough but if more can be tolerated, might as well...
  13. nvsmom
    That would make more sense! The article sounded like it was just protecting the intestines, which is why I wondered how effective it would be overall. Thanks. It was partially that line that made me think it was just prevention of intestinal damage.... they missed a lot of info.
  14. nvsmom
    I just don't think stuff like that will be safe for celiacs. Will protecting my villi also protect me from hair loss, arthritis, osteopenia, cognitive issues, migraines and constipation? I think something else is going on in a celiac besides villi damage... just my opinion though.
  15. nvsmom
    I agree. Funny except for the vinegar thing.
  16. nvsmom
    People don't always react, and by that I meant that they are showing no noticeable symptoms. You can be sure that an autoimmune reaction has begun in his body, but it might not manifest with regular symptoms. Some people have symptoms that seem to have nothing to do with gut issues. My 12 year old cousin was diagnosed after he had cognitive issues. Others...
  17. nvsmom
    There are a few god lists. Here are some: /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/ Open Original Shared Link Open Original Shared Link In Canada, there is a law that if a food contains, or may contain, gluten, it must have a warning on it's ingredients list. And if it doubt, skip it.
  18. nvsmom
    If he is eating 100% gluten-free, it does not immediately matter if he does have celiac disease because you are treating him anyways. It would not make sense to do a gluten challenge since he will be eating gluten-free anyways. If he is eating gluten, just not everyday, then it does make more sense to do a three month gluten challenge every few years and...
  19. nvsmom
    Some doctors like to make sure it is celiac when dealing with the tTG IgA because it has a small (about 5%) false negative rate BUT that occurs mainly in the weak positive tests, like if the upper normal limit was 4 and she scored a 5. 100 is a high result regardless of what upper normal limit was used. There are many other blood tests you could do to...
  20. nvsmom
    LOL.
  21. nvsmom
    Winter clothes? That's nuts. Up here we don't get fall clothes in the stores until August.... In May we are still getting an occassional snow fall. LOL It's going to close to 20C today. No rain. Scattered clouds. No breeze.... Lovely.
  22. nvsmom
    For an endoscopy, the gluten challenge is shorter, 2-4 weeks, so it might be doable. If there is no doubt that she has celiac disease, then it is most likely not needed. Some like to get it done to look for other problems, and others like to do it so they have a starting point to comapre back to if things do not improve on the gluten-free diet. Some have...
  23. nvsmom
    Her daughter does not have a diagnosis yet, and the doctors are dragging their feet, so that makes it hard, if not imossible, to make him comply.
  24. nvsmom
    Funnily enough, I never had pms breast tenderness until after I went gluten-free at age 38. I'm another who doesn't want anything touching them when they are sore. And taking off a bra at the end off the day? Ouch! I suppose I could be approaching menopause, but my cycles are much much more regular after going gluten-free and getting the optimal treat ment...
  25. nvsmom
    You might want to consider taking some T3 in addition to your T4 meds, or try some natural desiccated thyroid (like Armour or Erfa's Thyroid). It could make a big difference, and T3 will drop your TSH. I was on a full replacement dose of Synthroid (around 180 I think), and we could barely get my TSH down below a 3 - I felt the same as I did when my TSH...
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