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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    Constipation also refers to feces that are difficult to expell, so bowel moevements are infrequent or incomplete. It otfen has to do with slowed digestion when the feces moves too slowly through the bowels so the large intestine has time to remove too much water from the poop, leaving it hard... and unpleasant. As far as I know, constipation is when...
  2. nvsmom
    Grave? Nasty! That's a tough one. That one probably won't help with keeping weight on either. 300 mg of levothyroxine? Is that what you are taking? If so, I'm surprised you are taking so much with a history of being hyper. I probably have the dosages mixed up or something. Good luck with the GI on Monday!
  3. nvsmom
    We're semi-arid up here, so if we get a couple of centimetres of rain, that's a big deal. Sunniest city in Canada here... course in the winter the sunny sky translates to -25C, but still...LOL
  4. nvsmom
    It looks like a good protein powder, and I am a fan of protein powders - I add it to most baking I do for my kids... even cookies. LOL It looks like there are good things in there that are known to help the gut and with healing. If you are looking for a protein powder, you might as well try it.
  5. nvsmom
    Aw, that sucks. I hope you figure it out soon. You could always try testing for food sensitivities. Although it's not recognized by doctors, I have some friends who were helped by that.
  6. nvsmom
    Finally! The tulips are blooming, the trees are starting to leaf out and my apple tree is starting to blossom...and we finally had to cut our grass. Spring! Spring has been late this year, and I'm guessing it will only last a couple of weeks before it flips into summer. LOL
  7. nvsmom
    I could not get the orthomolecular link to open either. My orthomolecular doctor suggested using L-glutamine to help with healing of the intestines.
  8. nvsmom
    I completely agree with Ravenwoodglass. Start the diet now and in a few days you'll probably get agreement form the biopsy. Most celiac damage does need to be sen with a microscope, there are very few around here who had damage that was visible to the naked eye.
  9. nvsmom
    The first few months going 100% gluten-free are a bit stressful but once you get in your groove, it gets much easier.
  10. nvsmom
    I'm glad you are feeling better, and it's great that you did not get the withdrawal headache. Soy sauce could be helping to keep your numbers high. I do not believe that fermentaion removes gluten. If a product starts out with gluten it will end up with gluten except in distillation (like in hard alcohols). There are gluten-free soy sauces...
  11. nvsmom
    The Tissue transglutam Ab IgA is the anti-tissue transglutaminase immunoglobulin A (tTG IgA) and indicates there is an attack going on in your endomysial linings of your intestines. Over 100 could be very high (like 200 or 500) or it could be 101. That does seem high to me for being gluten-free - I would suspect some cross-contamination with a number that...
  12. nvsmom
    A positive test after 4 month gluten-free is not the most common thing, but it is far from unusual. Some of us had very high levels that take a while to go down. Most are down to normal by one year gluten-free. If it is still abnormal in over a year, a slight elevation could be caused by thyroiditis, crohn's, colitis, diabetes, chronic liver disease...
  13. nvsmom
    Liver problems, IBS like symptoms and anxiety are all possible symptoms of celiac disease. I did not experience those, but there are others around here who have. Welcome to the board.
  14. nvsmom
    Hang in there.
  15. nvsmom
    LOL I like that one! Sometime people say and do stupid things when faced with illnesses or poor health, and some people are just stupid.... You friends will sort themselves out eventually. Yeah, some of them will still roll their eyes and slip in the snide remarks - it comes from ignorance. As you get more comfortable with the diet comments will...
  16. nvsmom
    Oops! Sorry I missed your reply. Yes, three month is a long time. Some can get away with a two month gluten challenge, but if you get a negative result at two months it is tough to know for sure if it is accurate or a false negative. Are you starting to feel a bit better on the gluten-free yet?
  17. nvsmom
    LOL I'm not sure what I think of that!
  18. nvsmom
    I have not seen other people complain about too concentrated of urine with relation to celiac disease before. My guess is that you are dehydrated, but it could be a medical condition causing that or just not enough water. If you are concerned, you should see your doctor - kidney problems are not something to ignore. Open Original Shared Link Open...
  19. nvsmom
    ((hugs)) Glad the IgG based tests are getting done. It's a shame it is a fight, but it is good that you are getting it done. Hang in there.
  20. nvsmom
    I would agree that it's coming down pretty well. Even if his lab was 101, his tTG IgA is now reduced by about 60% in 4 months - not too bad. Some people's lab's come down very quickly, even within a few weeks but most people take longer. He is taking a bit longer to get to normal than many, but it's on the way down. My levels were still a tad bit high...
  21. nvsmom
    It would make sense to me to see the specialist, but I never did see a specialist so I don't know how helpful it would be. I guess it depends on the doctor, some are better than others. I'm sure someone else will chime in with more help that I can give. Good luck!
  22. nvsmom
    How frustrating for you. I hope he realizes that he is not the centre of the universe soon. I hope you and your daughter are feeling better in the meantime.
  23. nvsmom
    The Biocard test actually tests for the tTG IgA (anti tissue transglutiminase immunoglobulin A) as well as the (total serum) IgA. There are two "windows" on the test stick, sort of like a pregnancy test. The first window will show a line if you have adequate levels of IgA (to prevent false negative) and the second window will show a line if you have abnormally...
  24. nvsmom
    Most people have some improvements within the first few weeks (like stomach aches) but many symptoms take months to sort themselves out. Most people are quite noticeably better after 6 months gluten-free but some symptoms, often ones to do with the brain and nerves or some pains, can take a year or two to improve. It varies wildly between people. Because...
  25. nvsmom
    The DGP IgG test is one of the most specific tests for celiac in the world. It's specificity is 99-100%. It doesn't get any better than that when it comes to labs tests. See page 12 of this report for more info: Open Original Shared Link I agree with cyclinglady, you are probably in the earlier stages of celiac disease (meaning in the first few years...
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