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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    There are many of of around here with arthralgias caused by celiac disease. It's an annoying yet pretty common symptom, and sadly is often one of the last to improve on a gluten-free diet.. Rheumatoid arthritis can co-occur with celiac disease as they are both genetically linked autoimmune diseases. I have a cousin with celiac disease and her brother has...
  2. nvsmom
    It could be celiac disease, the symptoms would fit. Unfortunately, very young children can be harder to diagnose than adults so make sure he has as many test run as possible. The blood tests to ask for are: tTG IgA and tTG IgG (anti-tissue transglutaminase) - most common tests DGP IgA and DGP IgG (anti- deaminated gliadin peptides) - new tests, and...
  3. nvsmom
    Someone around here said IBS is doctor-ese for "I Be Stumped". Apples gave me the same raw stomach pain that gluten would sometimes do; it was difficult to stand up straight and not grimace.... it's weird what can bother some people!
  4. nvsmom
    I agree with Karen. A small amount of gluten will usually not show up in blood tests. The gluten may set your body back a couple of weeks, but it won't take you back to the same level of damage as when you were undiagnosed... I'm assuming you are a diagnosed celiac? If you already have a diagnosis, there is no real need to test if you consumed gluten...
  5. nvsmom
    Are you still going to try the biopsy, or at the very least try the diet for 3 or more months? I get flushed face and neck (roseacea) and raw apples give me a terrible stomach ache. I also have problems with hypotension but mine is postural - if I stand up quickly I lose my vision almost every time (until I started taking florinef) and I had no vitamin deficiencies...
  6. nvsmom
    I did go hyper thyroid when I first switched to a T4 & T3 medication (Erfa's Thyroid - similar to Armour). My Free T3 went just above my lab's normal range and I felt pretty jittery - just not right. It was such a complete 180 degree switch from where I had been previously that I knew immediately what was going on. I'm sure others can have a more severe...
  7. nvsmom
    Definitely not cool. Which product were you using? Was it the Source of Life Liquid? Open Original Shared Link Open Original Shared Link Hope you feel well again soon.
  8. nvsmom
    As a "thyroider", I agree with Arlene. Thyroid problems can throw your whole body out of whack, and it does not help that many of the hypothyroid symptoms can mimic celiac disease.Thyroid problems can be kicked off by untreated celiac disease too, so technically your thyroid issue could still caused by gluten.... it may still be that polluting force! ...
  9. nvsmom
    Ah gosh. Thanks. Sorry, I had your story mixed up... Three weeks for the endoscopy should be enough for accurate results there, or as accurate as that test gets. There is a chance of false negatives for that test too, especially if they don't take at least 6 samples, so don't expect it to give you a 100% guaranteed correct answer. To have accurate...
  10. nvsmom
    I'm glad you found something to help you keep things moving. I've thought about trying that but I've been too chicken. LOL
  11. nvsmom
    How scary for you. (hugs) I have read that celiac disease gluten ataxia and such can mimic ALS but I do not know much about it. You have only been gluten-free for 6 months, and it appears that you are one of the unlucky ones whose autoantibody levels falls very slowly. I would interpret high antibody levels to mean that your body has not yet stopped...
  12. nvsmom
    It looks like the results for the anti-tissue transglutiminase IgA test (tTG IgA) which is one of the celiac disease tests. According to that test, the Neal negative is ess than 10; you had a 1.8 so that is normal. There are many other celiac disease tests that should be done if you suspect celiac disease. The tTG IgA can miss between 5-25% of all celacs...
  13. nvsmom
    The rheumy can't explain my pains either... for decades they couldn't explain my stomach pains and hypothyroid-like symptoms either. LOL Good luck figuring it out. I hope you find some answers.
  14. nvsmom
    It can be a good idea to test the TSH, free T3 and T4 for thyroid issues too. My TPO Ab never tested as abnormal so they won't call it Hashi's, but my thyroid barely works anymore.... Lazy thyroid? Idon't know. LOL Congrats on your successful doctor training.
  15. nvsmom
    The first test is a control test to make sure you have enough IgA for accurate celiac disease testing, and you do. Your AGA IgA and AGA look fine; so does your tTG IgA. The tTG IgG is pretty close to abnormal... If you suspect celiac disease, I would recommend getting the DGP IgA and DGP IgG tests done and perhaps the biopsy. If further testing is unavailable...
  16. nvsmom
    I skipped the biopsy myself; positive tests and a family history was enough for me too.... Once your family sees you sticking with the diet, they'll probably come around - mine did.
  17. nvsmom
    I agree that a rheumy might be a good idea. Pains that move and shift to new spots for no apparent reason are not the usual aches and pains. I understand not seeing docs about it - I really dislike going to doctors... a lot. And some pains the doctors don't see because they move on. It might take a month or so for pain to really grow enough for me...
  18. nvsmom
    That's definitely the safe, and smart, way to go. Good luck with the diet!
  19. nvsmom
    My knees and hips crack with pain too. My knees are getting arthritic from playing too hard in my teens and twenties. I am pretty sure it is a soft tissue problem but I haven't seen a doctor about it yet because I don't want more knee surgery yet. My hips have started to lock, crack and cause me a fair bit of pain in the last year or so. I am guessing...
  20. nvsmom
    I think for most adults, getting the biopsy done is a personal choice. Some like to have it done so they are absolutely sure they need to go gluten-free, but that sometimes backfires as false negative biopsies are not rare. Others like to know what starting point their intestinal damage is at in case they want to come back and check it. Medically, I do...
  21. nvsmom
    Those may not be celiac tests that you have listed there. The Immunoglobulin A, G, and M (IgA, IgG, IgM) are just measurements of the immune response in different area of the body. The IgA is made in the mucosal linings of the body (mouth, intestines, etc) and is deficient in 1/20 celiacs. IgG is the most common immunoglobulin found in all bodily fluids...
  22. nvsmom
    His symptoms all started with an illness, didn't they? It is possible that he had a psoitive tTG IgG from his sickness - on occasion a severe infection can cause a false positive tTG IgA, and I'm assuming a falsely positive IgG. Concerning celiac disease, I think you have two options: Continue to eat gluten and retest every couple of years, or sooner...
  23. nvsmom
    I have not found anything on what could cause a false positive in the DGP IgA test, and I've looked. I find reportings of false positives that disappeared but more often than not, I found that the false positives (called false because no villi damage was found during the endoscopy) were suspected to be caused by early celiac disease or a mistake during the...
  24. nvsmom
    I didn't do a gluten challenge, but it sounds familiar (alternating between rabbit pellets and logs, migraines and fatigue but can't sleep... yuck). I don't have much advice except to hang in there. Drink lots of water. Caffeine can sometimes help with migraines - in the morning only. And taking melatonin at bedtime can help you fall asleep better. ...
  25. nvsmom
    If that was a Canadian or American test, I would guess that the Gliadin IgA was the anti-gliadin antibodies or AGA IgA test. If so, some doctors think that it could indicate non-celiac gluten sensitivity (NCGS) or celiac disease. I'm afraid that I do not know of any other causes of a positive AGA IgA besides some sort of gluten (gliadin) sensitivity. If...
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