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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    LOL
  2. nvsmom
    Thrombocytopenia is possibly a bit more common among celiacs than everyone else. You doctor should be told it is linked to celiac disease. Open Original Shared Link I'll come back later... company arrived.
  3. nvsmom
    I would doubt that celiac disease is causing new symptoms after two and a half years gluten-free but there could be ongoing problems from damage done to the body by celiac disease that is not going to get better. Neurological issues seem to be the ones that often linger after someone has gone gluten-free, that and pains. There are some issues that just...
  4. nvsmom
    I think a section on NCGI would work nicely. They have the same responses to gluten that the celiacs do, just minus the intestinal damage. They are 100% gluten-free just like the celiacs. I think if we could set it up as a gluten-free NCGI thing it would work. We would have to make a point that it is not a "gluten-light" board though - it's not for people...
  5. nvsmom
    Glad it's all done. Be sure to check all labels. I remember tossing / giving away lots of soup cans, boullion, soy sauce, teriyakii, worchestershire sauce, mixed spices, malt vinegar, barbeque sauce, sausages,and mixes (spaghetti, taco, meatloaf spice envelopes). I got rid of all baking supplies like sugar and baking soda, that might have had a flour...
  6. nvsmom
    That could be withdrawal, although the rash would not be (as far as I know). Withdrawal usually includes a lot of fatigue, moodiness, headaches, and some stomach issues. Because you went gluten-free so recently, you could still be getting gluten sensitivity symptoms - they can continue popping up for weeks or months after going gluten-free. You need to give...
  7. nvsmom
    That sounds right to me. I missed that your blood glucose spiked up to 170... that's not good. It sounds like you could be wading into type 2 diabetes or prediabetes. A glucometre might be a good investment to make just so you can check if that was unusual. Type 2 diabetes is not linked to celiac disease - as far as I know.
  8. nvsmom
    Are the bumps quite itchy? Celiac disease can sometimes manifest as a skin rash called dermatitis herpetiformis. This link has some info: Open Original Shared Link A biopsy taken from beside the rash can also diagnose celiac disease. Celiac can cause pain in a few ways. I am familiar with the arthritis aspect of it. Shoulder/ armpit/ chest pain sounds...
  9. nvsmom
    You might want to try the milk substitutes made from almonds or coconut. Things like coconut cream in coffee or tea made it easy for me to skip milk. There are even cheese, yogurt, sour Eggs anre not considered dairycream, ice cream,and butter (all made from dairy) substitutes that are very good. Eggs are not considered dairy.
  10. nvsmom
    Thyroiditis can mess with your stomach and can actually cause a weak positive result for the anti-tissue transglutaminase (tTG IgA and tTG IgG) which can cause intestinal problems. It is possible that your thyroid problem is affecting your health. That being said, there is a strong link between thyroiditis and celiac disease, so if you have a gluten intolerance...
  11. nvsmom
    It seems a GI usually does the blood tests again (tTG IgA and IgG, DGP IgA and IgG, EMA IgA) and the endoscopic biopsy... That's really all they can do at this point. Some will run the genetic tests but that only tells you if you are in the minority of the population (about 30%) who have the genetics that make them more likely to get celiac disease than...
  12. nvsmom
    Some of those symptoms are common celiac disease or non-celiac gluten intolerance (NCGI) symptoms (IBS, bloating, D, anxiety, hair problems, lactose intolerance, fatigue) so I think you might as well get tested. I tend to get flu-like symptoms when I'm having an autoimmune flare-up (probably not linked to celiac disease except for the fact that celiac disease...
  13. nvsmom
    Welcome to the board. Those could be symptoms of celiac disease so you may as well be tested. These are the tests you want: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA (a control test) AGA IgA and AGA IgG (older, less reliable tests that are not used as frequently now) Do not stop consuming gluten before testing or your tests...
  14. nvsmom
    There's no easy answer for that. You'll just need to stay very vigilant. I don't always have horrendous reactions to gluten either but my symptoms do tend to grow worse with time. If you do feel "off" re-check everything - shampoo, lotions, vitamins, all food labels, spices - and you'll probably find something. I've glutened myself over a period of a...
  15. nvsmom

    ARCHIVED My Heart

    nvsmom replied to CaliSparrow's topic in Related Issues & Disorders

    Yeah!
  16. nvsmom
    What about keeping some gluten-free bread at home? Udi's bread isn't bad - I like it toasted anyways. LOL Maybe make yourself some muffins and freeze them for emergency snacking? Almond and coconut flours are filling and healthy. I like to add flax meal and protein powders to all of my baking too. I use coconut oil or Earth's Balance in my baking for...
  17. nvsmom
    For a good year, and I actually still use it, I used a cheese substitute called Daiya. It was not good (at all) on sandwiches but when melted into things like eggs, chili, pizza or baked potatoes, it was really rather good. I've started eating some cheese again (small amounts) and I am more liberal with the lactose free types. Harder cheeses seem to...
  18. nvsmom

    ARCHIVED Ants!

    nvsmom replied to GF Lover's topic in Introduce Yourself / Share Stuff

    My husband was partial to lighter fluid and a match... I made him tame his redneck ways once we had children. LOL We are at war with carpenter ants here. They invaded a wall and chewed a header above sliding glass doors into fine cardboard... the ceiling was starting to sag. Darn things! The room is stripped down to the studs at the moment.
  19. nvsmom
    I'm sorry that you are having such a tough time. Have you tried keeping a food and symptoms journal? Since you also have allergy issues, you might want to add in an activities and locations portion to the journal as well. Some people findputting it down on paper helps them see the patterns. Have you considered lactose intolerance? about 50% of celiacs...
  20. nvsmom
    Do you know the ranges of your lab tests? I am guessing the upper range was 4, but sometimes there are labs with ranges up to 20 or only up to 1. If the upper limit was 4, it looks like your celiac disease tests were normal except for possibly the DGP IgA (5) but I would need to see the normal range to be sure. I know little about the endoscopy so...
  21. nvsmom
    I'm glad your A1C came back normal. When it's elevated, it indicates a blood sugar problem - diabetes. You really don't want that. I hope you are able to get the celiac disease tests done. Good luck!
  22. nvsmom
    For most people, quite a few months are needed to see the most benefits from the diet. Six months is the norm it seems. Some people are fully well at three months but others take a few years. That being said, most people show some improvements in the first few weeks although those who experience withdrawal tend to feel worse before they feel better. Most...
  23. nvsmom
    I was thinking of her the other day too. She was just a lovely person.
  24. nvsmom
    Welcome to the board. I doubt the tuna is contaminated with wheat from a crop rotation. Gluten is the protein in the seed of wheat which would not get into the soy. Any wheat missed in the harvest would just be a seed on the ground and not harvested from the soy plant. I doubt they would let any wheat germinate either so it is most likely not growing...
  25. nvsmom
    It should be fine, as long as you are careful.
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