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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I never thought about knowing if he snuck food because of his allergies.... That makes a lot of ( unfortunate ) sense. Poor kid. My tTG IgA seems to be getting lower but the last time it was checked, when it was almost normal (20.9 when normal is less than 20) I was on some mild steroids so that may ave affected it. Prior to that I was having numbers...
  2. nvsmom
    Try to have as many celiac blood tests done as possible; sometimes the tests miss people so the more tests the better. These are the most common celiac disease tests: TTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA Total serum IgA (a control test) AGA IgA and AGA IgG (older and less reliable tests) It is recommended that one consumes gluten...
  3. nvsmom
    The slightly elevated tTG IgA could be due to his thyroid problems. I've been gluten-free for almost years but my tTG IgA was still hovering above normal - I'm guessing my thyroid problem is keeping it up as I am 100% sure I have not been glutened in the past year. That being said, it is possible that he's had a bit of gluten while out of sight. As...
  4. nvsmom
    If you suspect your rash might be dermatitis herpetiformis, you might want to see a dermatologist about it. they can biopsy the area next to the rash and that will often diagnose celiac disease. Most people go through the blood tests first as it is less invasive. Ask your doctor for these tests: tTG IgA and tTG IgG DGP IgA and DGP igG EMA IgA total serum...
  5. nvsmom
    Good luck with the biopsy. Make sure they take at least 6 samples, more is better. Sorry to hear your daughter tested positive for celiac disease. That tTG IgA test is specific to celiac disease about 95% of the time - only 5% of tTG IgA positives are caused by something other than celiac disease. The other causes of a positive tTG IgA (that 5% of...
  6. nvsmom
    Washing most things with soap and rinsing well is usually enough to get rid of the gluten.Scratched and coated frying pans should probably be replaced as should damaged plastic utensils or collanders that could hide gluten. If you have an old cutting boards that could hide gluten in cracks, you might want to buy your own. You will probably need your own toaster...
  7. nvsmom
    Some people experience withdrawal in the first few weeks gluten-free. I remember the headaches and fatigue - nasty. I hope you continue to feel better.
  8. nvsmom
    I had reconstructive surgery on my knee a couple of decades ago but a young adult heals at a crazy rate so I can't compare. My uncle had both of his done a few years ago when he was close to 70. He was a farmer and couldn't even walk his yard anymore. Since the replacements(about 8 months apart), he is working his farm well and walks on a treadmill and...
  9. nvsmom
    Thanks!
  10. nvsmom
    Being gluten-free for 3.5 weeks could cause false negative results for some people. If the tests end up being negative, you may want to do a gluten challenge and then test again. Normally a gluten challenge is 8-12 weeks long, but you may be able to get away with less since you were not off gluten for long - the full 12 weeks is ideal though. If you...
  11. nvsmom
    You have a great grasp on all that. Thanks for the summary.
  12. nvsmom
    If the celiac disease tests come back negative, then you can probably assume that you have non-celiac gluten intolerance (NCGI). NCGI has all the same symptoms as celiac disease except for the villi damage, and it is much more common ( in up to 10% of the population). There are no blood tests for NCGI at this time, so diagnosis is by a positive response to...
  13. nvsmom
    Like Lisa said, it depends on the individual. I have never vomited from gluten - ever. Only pregnancy does that to me. Lol
  14. nvsmom
    I think a lot of us do not realize how badly we were feeling until we start getting better. Feeling poorly was our "normal". I'm glad you know you need to keep eating gluten before you get tested. Not having that knowledge has really messed up many people's diagnosis, so i'm glad you have read up on it! When getting tested, get as many tests as...
  15. nvsmom
    My boys entered a grades 4-9 Canadian heritage / history project fair this weekend and they did soooo well! I'm a proud mommy. My 11 year old won the grade 6 category with a project on the history of coins in Canada. My 9 year old won the Hugh Dempsey grand prize of the entire fair with a project on the Battle of Juno beach (D-day) with a lego recreation...
  16. nvsmom
    It's been snowing for 24 hours now.... If it hadn't been 20C recently (just two freaking days ago) the accumulation would have been well over 8 inches, but as it was we still have 4-6 inches of snow... and we still had to shovel our driveway. I am so ready for spring! The trees are finally starting to bud, well some of them are anyways. LOL Hopefully...
  17. nvsmom
    Excellent! Can you post that in thebaking section so others can see it too? Thanks!!
  18. nvsmom
    Autoimmune problems run in families, and if you have one autoimmune disease, or near relatives who have one, then you are more likely to develop one. For instance, I have throiditis and ITP, and I have cousins with celiac disease, rheumatoid arthritis, and quite a few family members with thyroid problems... and that's just the obvious ones I know about,...
  19. nvsmom
    I would try to get testing - some doctors need a bit of prodding... and education. She really hasn't had any celiac disease tests, if those results you mentioned is all the testing she had done. She is having D, and emotional issues - that's enough symptoms to go ahead with testing. Your history of autoimmune disorders also makes it more likely that she...
  20. nvsmom
    I don't think the intestines have nerve endings for pain. WhenOpen Original Shared Link it states: " ...There are no nerve endings in the intestine, so this procedure does not cause pain in the gut...." There are a lot of nerves in the intestines but they aren't for pain as the ability to feel pain or heat in the intestines is not going to benefit an...
  21. nvsmom
    I think I would put myself at 80% better. I was an undiagnosed celiac since babyhood, so I have a few permanent health issues that aren't going to improve, and a few others that I don't think will go completely (as there still hanging in, at a much reduced severity, after almost 2 years gluten-free.
  22. nvsmom
    Good luck on Tuesday!
  23. nvsmom
    LOL My guess about the non reaction would the painkillers caused it. Perhaps they numbed it? Took the edge off? Or a side effect moderated your usual glutening reaction? These are just guesses though.
  24. nvsmom
    I don't know much about private testing, but I do know it's available. Perhaps start a new thread asking about Cyrex labs or other labs available through the UK. I think there are a few around here who did private tests. I did do a home Biocard test, which was a tTG IgA test. In Canada it's about $50, and it's basically the same ones the labs run except...
  25. nvsmom
    IgA levels are only significant to celiac disease because 5% of celiacs are deficient in IgA, which is more than the regular population. Many celiac disease tests are based on IgA testing but a celiac with low IgA will show false negative on those tests (tTG IgA, EMA IgA, AGA IgA and DGP IgA). Because of that, you'll want to request the IgG based celiac...
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