Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    Thanks for the links, Colleen. The endocrinology appointment I had was not for my adrenals or thyroid issues. It was set up for possible acromegaly. Up here you are only allowed to see a doctor for one reason/problem per visit. She made a few comments to me about my meds, and completely brushed off my mentions of hypoglycemia and shakes, and I am guessing...
  2. nvsmom
    Woohoo! Alberta was warmer than Florida. Nah-na-na-na-nah! It was 10C here most of the day - that's about 50F, right? It's supposed to snow in a day but I'll enjoy this while I can. My MIL called to say their snowdrops and crocuses are up and blooming out on Vancouver Island... the ground here is still so frozen that when I dropped my metal water bottle...
  3. nvsmom
    How okay is your thyroid? Sub-clinical thyroiditis can occur while testing in the normal range - that happened to me for years. The tests you want to check thyroid function are: TSH - should be near a one regardless of the lab's range Free T4 and Free T3 - should be in the 50-75% range of your lab's normal reference range. Do not use T4, T3 , total T4...
  4. nvsmom
    Could his thyroid be a bit off? My hypothyroidism caused constipation, bloating and gas. Hashimoto's can also cause stomach upset and can slightly elevate the tTG IgA. Other foods could be the culprit too. I discovered raw apples and pears give me a celiac like pain. a food journal could help. Best wishes. I hope he is 100% soon.
  5. nvsmom
    I don't know what to think of the adrenal fatigue. I had undiagnosed celiac disease and thyroiditis for decades so I wouldn't be surprised if another organ had "issues". An orthomolecular MD i saw noted my adrenals weren't where he wanted. He never actually used the phrase "adrenal fatigue" with me but he started me on some hormones, some of which I'm starting...
  6. nvsmom
    My kids do not had a celiac disease diagnosis but two of them have definite issues with gluten. They all had a bit of a growth spurt after going gluten-free but my oldest, who I worry over because he is falling off the growth curve, has not really caught up to his potential. He is 11 and his 9 year old brother is taller. He had no weight loss or anemia either
  7. nvsmom
    Thanks Colleen. I think you are probably right that cortisol might have played a role in my higher fasting glucose.It may not be the sole cause, but it's definitely a good guess that it had some effect. I'll get in touch with my doctor and discuss his plan for me. I don't know how long term he is thinking of having me on that so I need to know more.
  8. nvsmom
    Not all celiacs react badly every time they have gluten - I don't. For some things like beer, I balloon up immediately and get pain and headaches. When I was accidentally consuming some wheat starch on fries over a few weeks, I slowly became ill, it was a pretty insidious start to symptoms that I didn't notice until I was ill for a while. Sometimes I would...
  9. nvsmom
    I printed a list like the one Karen gave you and took it shopping with me, every time, for the first few months. You'll get it. I notice you have kids. Have you had them checked? Celiac is a genetially linked disease so there is a chance that your children could have it. Someone with a first degree relative should be tested every two years or so if...
  10. nvsmom
    Welcome to the board. You don't need to keep everything separated unless it's likely to become contaminated before it is used on gluten-free cooking. Things like cutlery are safe if washed well but if your cutlery drawer is anything like mine, it tends to fill up with crumbs and that won't be safe unless the gluten-free person washes cutlery before...
  11. nvsmom
    I usually take my cortisol around 7am with food (it's hard on the stomach), and I did take it on the day of the test - about two hours before it. I am guessing that my meds threw my cortisol results off, but I am mainly concerned that taking cortisol is messing with my blood glucose levels. If it is, I'll get off them as soon as I can talk with my other doctor...
  12. nvsmom
    Wow, our blood are pretty close aren't they!? I think you are ahead of me so far in the research. My search words just aren't giving me much that could cause high fasting glucose beyond cortisol or diabetes or too much growth hormone (acromegaly) which is the concern that brought me to the endo. This article gets into it a bit: Open Original Shared Link ...
  13. nvsmom
    I recently saw an endocrinologist about a history of high IGF-1. I was concerned I could be developing acromegaly. The endo's retest was at a good level (as seen below) but she has agreed to test me further with acromegaly specific test (OGTT GH suppression). So that's all great. Some of my other results are...wonky though and I was wondering what you all...
  14. nvsmom
    My hypothyroidism had a large impact on my energy. Treating it just halfway made no difference, I had to get it to the perfect level with a different medication that is normally prescribed - and it took almost a year to get there. Hypothyroidism can slow your metabolism by 30%; if it's a factor for you, treating it can make a great difference. If you...
  15. nvsmom
    I get sick less often now that I am gluten-free but some of my autoimmune issues (it's not uncommon to have more than one AI disease) would produce symptoms that felt like I was sick (headaches, fatigue, sore joints, sore throat from ulcers), and those don't happen as frequently anymore either. Another reason to get tested soon is that for the tests to...
  16. nvsmom
    Yes, I think you are right. We're all different and used to different things... 30C is warm but not oppressive? LOL When it hits 30C up here, which is usually does for a week each summer, I am melting. It's not warm enough for air conditioning up here unless you are in the richer area. The bedrooms on the upper floor get sooo hot but I can't justify AC when...
  17. nvsmom
    Congrats! That's great! My oldest son's mild asthma completely cleared up over the last year of being gluten-free too... Wheat is just evil.
  18. nvsmom
    The Gliadin Ab is probably the older (and less reliable) AGA or anti-gliadin antibody tests. It looks like your AGA IgA and AGA IgG are normal. Serum IgA is a conrol test to see if your body makes enough IgA for accurate IgA based testing (in your case, the AGA IgA and tTG IgA). About 5% of celiacs are IgA deficient. Yours is normal so testing should...
  19. nvsmom
    Ahhhh, but it's my fat that feels cold! When I am outside, or just sitting still too long, my extremities get cold and that seems to sadly include my butt. It's cold to the touch. My hands, feet, outer hips and nose get cold too. Unfortunately my chest does not come close to qualifying as an extremity... nope, not close at all. LOL It definitely takes...
  20. nvsmom
    It's beautiful up here. Warm chinook winds are a blowin'. Must be close to 10C. My only complaint is that all the snow is melting, and we have had a lot of snow this year! There are still 5-6 foot piles of snow on the sides of all the driveways, and you still have to step up onto the side streets from the shovelled sidewalks, but now the sidewalks are...
  21. nvsmom
    This is a good report to take to the doctor's office too. On page 12 it shows how specific and sensitive all of the tests are, as well as showing that sensitivity goes up if multiple tests are run. Open Original Shared Link Best wishes
  22. nvsmom
    Yes, those could be symptoms of celiac disease, you might as well get tested. This is list of symptoms to consider, and perhaps to give to your doctor: Open Original Shared Link Request as many tests as are available to you: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA (control test) AGA IgA and AGA IgG (older and less reliable tests...
  23. nvsmom
    LOL It is quite the list isn't it? I was thinking thyroid too. I was also thinking of weight loss. When I lose weight, I am very sensitive to cold - cold will bother me a lot and I wear more layers. Maybe your body isn't fighting to hold onto weight as much now? Just a wild guess though.
  24. nvsmom
    Infants and toddlers tend to test with less reliablity than adults too - there's a higher chance of a false negative. Getting tested is probably a good idea though; better to catch it earlier rather than later! This is the full celiac blood test panel: tTG IgA and tTG IgG (tissue transglutiminase antibodies using immunoglobulin A and Immunoglobulin G...
  25. nvsmom

    ARCHIVED Gluten Detox

    nvsmom replied to aglaze's topic in Coping with Celiac Disease

    Yep, sounds like detox to me too. It's not fun.It usually only lasts a few days to a few weeks for those who experience it. Hang in there, it will probably be done in a week, or the end of January at the latest. L-Glutamine can help with healing of the mucosal lining. It might be something to look into for a while too. Best wishes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.