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sunny2012

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About Me

Diagnosed by biopsy 20 plus years ago.

Participated in research leading to blood tests.

  1. sunny2012 started following IMU-856 Shows Promise as a Potential Treatment for Celiac Disease and Researchers Use CRISPR/Cas9 to Produce Low Gluten Wheat Strains
  2. sunny2012
    Genetically altering plants has serious risks. CRISPR-Edited Cells Linked to Cancer Risk in 2 Studies "In the studies, published in Nature Medicine, scientists found that cells whose genomes are successfully edited by CRISPR-Cas9 have the potential to seed tumors inside a patient. That could make some CRISPR’d cells ticking time bombs, according t...
  3. icon dixonpete reacted to a comment: IMU-856 Shows Promise as a Potential Treatment for Celiac Disease
  4. sunny2012
    "reduction in gluten-induced damage to their intestinal villi" REDUCTION in damage. Those who got the drug and participated in the gluten challenge had LESS damage than those who got the placebo. How much less? How much damage are those of us who have celiac supposed to accept as normal? What makes anyone think that damage to this critical...
  5. sunny2012
    I went to Las Vegas, NV U.S.A. We walked up to a hostess and mentioned gluten free. She asked if I have Celiac. Then she actually took me to the kitchen window to observe how they handle the meat and keep the entire kitchen separated with spices that are gluten free never touched by anyone who also handles gluten items. As she spoke, a wait staff member walked...
  6. sunny2012
    A burger just has to have a good bun or it is just fried ground meat. I wish I lived near you.
  7. sunny2012
    I have been gluten free for around 20 years. I thought I was finally "safe". NO WAY! I suddenly was really weak and sick for a week. Turns out I had a GI bleed. My GI specialist has a couple of patients who were almost as sick as me who eventually ended up with GI bleeds. He is trying to start some research to figure if this is random or a result of the long...
  8. sunny2012
    Personally, when it comes to medical procedures, I don't think "buyer beware" should be our acceptable level of risk. I have enough troubles with Celiac and the consequences of 40 years struggling to get a doctor to actually look at me instead of simply writing me off as a "mental case". I guess I made my suggestion in the post above. Changes do happen...
  9. sunny2012
    What frightens me most is the those who contracted HIV and Hepatitis from a colonoscopy. The contamination percentage for those is only 3%! Yet, people have contracted Hepatitis and HIV from colonoscopies! How often do those actually involved biopsy while diagnosing Celiac ALWAYS involves multiple biopsies? With a contamination rate of nearly 25% AND multiple...
  10. sunny2012
    I was contaminated by hubby baking cookies! I never even went into the kitchen. He spent an hour wiping down every surface. It was just from breathing in the flour in the air. The nostrils empty into the stomach. Then there are the surfaces when it settles. It can even get into the cabinets - doors are not air tight. I'd suggest that mom stop being allowed...
  11. sunny2012
    ALL scopes are very difficult to properly clean. The rate for contaminated scopes is only slightly better for gastroscopes at 24 percent found contaminated. Compare that with 30 percent for duodenoscopes and the risks of serious infections is essentially equal for all upper GI procedures. information about dirty scopes of all sorts were known in 2013...
  12. sunny2012
    It is great to be able to laugh about this.
  13. sunny2012
    That should have said Eliminate gluten = feel better, THEN stick with it; otherwise seek further professional advice from your doctor.
  14. sunny2012
    Eliminate the gluten, feel better, stick with it. Otherwise, see your doctor for further investigation.
  15. sunny2012
    Check out the type of endoscope your doctor wants to use. They can't be cleaned well enough to prevent antibiotic resistant bacteria surviving and several people ahve been made sick or died. Check out this article before you go so you can check to be safe: Open Original Shared Link
  16. sunny2012
    You have to read this article before you decide to go thru an endoscopy. It is not the really safe procedure that we all thought. The risks of death from anti bio-tic resistant bacteria is very real. If you feel better on the gluten free diet and then get that sick eating it again after a short time, sounds to me like Celiac. You are already positive...
  17. sunny2012
    It just amazes me that these things are slowly making their way back into a Celiac's diet. When I was diagnosed nearly 2 decades ago, anything derived from wheat was considered unsafe. Celiac can kill when we eat anything with even trace amounts of gluten. I nearly died from it. There is no real reason to eat such things and risk ruining our health. I sure...
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