darlindeb25
Advanced Members-
Posts
2,063 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by darlindeb25
-
ARCHIVED Does The Insomnia Get Better?
darlindeb25 replied to no-more-muffins's topic in Related Issues & Disorders
Another just like me!!! Yes, of course vitamin and mineral deficiencies can cause insomnia, along with many issues. I have been taking Vit D for nearly 1 yr now, I do finally have my levels up to a more doable level, yet, the insomnia didn't go until my dairy was gone. Low levels of iron can cause insomnia too, as can low levels of Vit B12. -
ARCHIVED Can Undereating Cause Insomnia?
darlindeb25 replied to Gfresh404's topic in Related Issues & Disorders
Believe it or not, the junk food is probably part of the problem. You don't need them for the calories, you want them, there is a difference. You like them, and sometimes we justify eating something like this by saying we need it. You can eat fresh fruit, banana's and grapes can add calories, much better calories than junk food. Junk food is empty calories... -
ARCHIVED Is This Neuropathy?
darlindeb25 replied to Wolicki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What was your B12 level...the normal range is 200-1000...anything below 500 is too low, even if the doctor didn't tell you it is. Yes, it could be neuropathy. Neuropathy can be text book, or it can be random. We all have different symptoms, and the same symptoms. Tingly, hot spots, cold spots, feelings of bugs crawling on your leg, numbness, burning... -
ARCHIVED Must Be Gluten Intolerant?
darlindeb25 replied to Sparkle1988's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We are all individuals, and can't judge how quickly we will feel better by someone else. Feeling much better in one week is great. The tireness may not pass until you build up your vitamin loss caused by the gluten. My tireness didn't go away, several years later I was diagnosed with sleep apnea, and now have a CPAP machine to sleep with every night. ... -
Don't get me wrong, I have never gotten "completely" better. I have just recently realized how I was being glutened, and by "gluten free" labeled foods. I have dealt with health issues for years, at least 30 now. I have terrible headaches all the time, headaches that most people would not even get out of bed with, and I still go to work. I'm just...
-
Its a great link too. He makes it all so much easier to understand. I wish he was here on the east coast.
-
Even with crohn's, if you are in a remission, there is no reason you can't serve. Celiac is not a debilitating disease as long as you go gluten free like you are suppose too. I am not celiac, but I am gluten intolerant, and was every bit as sick as anyone whith celiac or gluten intolerance...I stay away from gluten, I work full time, and never miss work...
-
ARCHIVED Is There A Test For Gluten-intolerance?
darlindeb25 replied to terribeth07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is no scientific test for gluten intolerance, not yet. I'm hoping one day they figure this out. Testing for celiac, is not testing for gluten intolerance. For now, testing for gluten intolerance is a self testing procedure. If you eliminate gluten from your diet, and you begin feeling better, then you should stay away from gluten. -
Oh yeah, this is true of doctors too. Nothing is better than personal experience, and often times they forget that we are not all text book examples. Doctors are getting better at thinking about gluten as the problem, but they still have a long ways to go. They need to listen to the patient, listen to what they are saying. Same thing for the dieticians...
-
Your doctor is wrong, very wrong. As momyxyz says, non celiac gluten intolerance is as damaging, well, actually more damaging to the body than celiac is. Celiac is just one autoimmune condition that gluten intolerance can cause, but there are many other autoimmune diseases caused by gluten intolerance. Gluten intolerance causes autoimmune diseases such...
-
ARCHIVED Happy Birthday Darlindeb!
darlindeb25 replied to larry mac's topic in Introduce Yourself / Share Stuff
You tell them thank you, which one is your avatar, sure is cute. Hope your birthday was good too. Thanks to everyone. -
ARCHIVED Happy Birthday Larrymac
darlindeb25 replied to Lisa's topic in Introduce Yourself / Share Stuff
Hope you had a good day--Happy Birthday. -
ARCHIVED What Proportion / Percentage Of Foods Are Gluten?
darlindeb25 replied to justinclarke's topic in Gluten-Free Foods, Products, Shopping & Medications
I honestly do not think anyone has figured that out. If you are gluten intolerant, any gluten is too much gluten. Anything made with flour..breads, pasta, crackers, cookies, cakes...all has too much gluten. As far as that goes, "gluten free" labeled foods have too much gluten for lots of gluten intolerant people. The US doesn't actually have a standard... -
ARCHIVED Us Produced Malto Dextrin Is No Longer Safe
darlindeb25 replied to Oonagh's topic in Gluten-Free Foods, Products, Shopping & Medications
Not everyone heals at the same pace, not everyone heals, even Dr. Green tells us that...they do not know why some do, and some don't. I do have very good control over my foods, because I do not eat "gluten free" labeled foods, nore nearly anything processed. I do react to 5ppm. and if you don't, thats wonderful for you. Yet, don't try to tell those of... -
ARCHIVED Us Produced Malto Dextrin Is No Longer Safe
darlindeb25 replied to Oonagh's topic in Gluten-Free Foods, Products, Shopping & Medications
See, another study on celiac's alone, that doesn't mean it's the same for everyone. I am not celiac, or so some say, yet I am gluten intolerant, and this study means nothing to me. Maybe the little bit of gluten they eat does not bother their villi, but that same amount of gluten makes me very ill, and it effects me in different ways. Gluten also attacks... -
ARCHIVED Going Round In Circle With My Dr, Can Anyone Help Me?
darlindeb25 replied to ninconpoop's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When you exhaust all testing, and you do not get a diagnosis of celiac, that does not mean you aren't gluten intolerant. They do not know how to test for gluten intolerance yet, and it's much bigger than celiac. They are only concentrating on celiac for now. gluten damages much more than just villi. gluten can attack your brain, it depletes you of vitamin... -
ARCHIVED Us Produced Malto Dextrin Is No Longer Safe
darlindeb25 replied to Oonagh's topic in Gluten-Free Foods, Products, Shopping & Medications
Exactly! It hasn't been proven..no one knows for sure, they are just guessing. They do not know enough about gluten intolerance yet to know how much is too much. Celiac disease is not the end all of gluten intolerance. We who are not diagnosed with celiac, have issues too, and we develop autoimmune diseases too...we don't want gluten in... -
ARCHIVED Us Produced Malto Dextrin Is No Longer Safe
darlindeb25 replied to Oonagh's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link Sept 22, 2009 CORN HIGHER THAN WHEAT; AN UNPRECEDENTED SITUATION IN THE GRAIN MARKET. September Options Close in New-York at 63 1-2 Cents Per Bushel, 3 3-8 Cents Higher than September Wheat -- Little Excitement, However, and the Sales Small -- Enormous Sales of Wheat -- "Shorts Running to Cover" the Explanation. CORN HIGHER THAN... -
ARCHIVED "organic Barley Grass"
darlindeb25 replied to elle's mom's topic in Gluten-Free Foods, Products, Shopping & Medications
I would get rid of the vitamins...too much of a chance, in my opinion. -
ARCHIVED Is Anyone Able To Explain This?
darlindeb25 replied to KLFrosty's topic in Introduce Yourself / Share Stuff
For years, before I knew anything about gluten, I thought toast was my best friend. and all that time, I was feeding the monster. Of course, I craved bread, which is another symptom...craving the very thing you can't have! I never could pinpoint what was effecting me, I was sick nearly every night and some mornings...everything seemed to be an issue. ... -
ARCHIVED All Of My Labs Are Normal So Far...
darlindeb25 replied to Tabasco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My sister, the celiac dietician told me to learn to love prunes. Actually, I have always liked them, and she loves them. She also always tells me I need to use flax in my diet, but flax makes me ill, so I ignore that advice, but maybe you could use it. It doesn't contain gluten, just doesn't agree with me. Make sure your supplements are gluten free... -
ARCHIVED Elbow Rash Like Never Before After Drinking
darlindeb25 replied to dogle's topic in Dermatitis Herpetiformis
Good advice. I could be the designated driver, but choosing the safe drinks, that's another story. There isn't any that I can drink anymore. -
ARCHIVED Car/motion Sickness Vs. A "glutening"
darlindeb25 replied to elle's mom's topic in Related Issues & Disorders
This means you are doing a great job of keeping her gluten free. It doesn't mean that she can't get CC's somehow. I know this is a tough one, but when I travel, I take my own pan. It's the only way I don't get sick. My oldest son, my youngest, and myself have all been victims of car sickness. My mom said I used to have a big problem as a toddler, my... -
ARCHIVED All Of My Labs Are Normal So Far...
darlindeb25 replied to Tabasco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tabasco...all those tests are telling you is, you aren't celiac. That doesn't mean you arent gluten intolerant. Gluten intolerant is just as bad, often times, I think it's worse. Doctors do not recognize us as having a problem with gluten, so they tell us not to go gluten free...we just keep causing more damage then. Had I not gone gluten free 9 years...