Jump to content

darlindeb25

Advanced Members
 View Profile  See their activity

  • Posts

    2,063

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by darlindeb25

  1. darlindeb25
    Well, the only thing in your list that I can have is salmon and chicken, and only the white meat!!! My diet is much more limited than yours, and believe me, you can live with it. I can't have any grains, I would love some cornbread, I would love to be able to eat rice again, potaotes were my favorite thing growing up...broccoli and spinach, loved them....
  2. darlindeb25
    It is very possible for your husband to have "celiac genes" and not be celiac too. Some people are carriers, some never have their gluten intolerance triggered. You can be DQ8 or DQ2, even DQ1 and not be sick. Also, you and your husband both may have gluten intolerant genes. I have double DQ1 genes, which means both of my parents have to have at least...
  3. darlindeb25
    I did a sleep study last night, and failed it. She says I will be back in a few weeks to test a CPAP machine. I have been gluten free for 8 yrs, I take 3000mcg of B12, my magnesium level is fine, I have had my thyroid tested several times, and always comes back "within normal ranges"! I have sleep apnea, as do 2 of my sons! Ask your doctor about it. ...
  4. darlindeb25
    My celiac support group had a gastro doctor from the area (she is trying to open a celiac center at Stony Brook Hospital) who said many things I did not agree with. She said that if a patient has flattened villi, but a negative blood test, then they can not be celiac. Many celiac's have had false negatives! She did say though, she feels if the blood work...
  5. darlindeb25
    To begin with, what makes you really believe that whole grains are so good for you? They also tell us soy is good for us. If you read about the horrors of soy, you may change your mind about it too. The wheat of today has been genetically changed over the years, and they keep trying to improve it. I do not understand why people do not realize the "whole...
  6. darlindeb25
    I just bought a can of Columbian Decaf at Walmart, and it states gluten free on the can! I use Folgers, 8 O'Clock, Maxwell House, Mr Coffee, Duncan Donuts, and I buy 7-11 Decaf all the time...never been glutened by regular coffee. Be aware...many flavored coffees do contain gluten, as do many flavored teas. I too, have been drinking coffee for well over...
  7. darlindeb25
    I do not agree. I do agree with gfpaperdoll, the scientist do not know yet, they will make a statement, then in time change that statement. Just this last spring, a group of scientists announced they found 7 more genes that they feel may play a part in celiac disease. I too, have double DQ1 genes and I have been told, that means DOUBLE TROUBLE!!! It...
  8. darlindeb25
    As in all vitamins, there is good Vit D, and not so good. When buying Vit D, you should always get Vit D as Cholecalciferol. I just found out that my Vit D is low too. I found Spring Valley Vit D at Walmart, it was $8.97 for 200 coated 2000 IU. Vit B12 is another vitamin that comes in different forms. The best, and easiest for your body to absorb is...
  9. darlindeb25
    Because corn is becoming a fuel, the price has gone up, so many companies have gone back to using wheat starch. Even brands we have trusted for a while now are now showing up with wheat starch. Always read the labels, even your old favorites. My sister is a dietician and the powdered sugar she had been buying from Gordon's Food Service, had been gluten...
  10. darlindeb25
    There are so many things you can get by with without replacing them. The toaster is not one of them. Blowing it out with an air compressor is a great idea, but not the best idea. Those of you who have done this are very lucky, so far. Toasters are not that expensive, and your health is definitely worth the purchase of a new toaster. Many people think...
  11. darlindeb25
    Some doctors offices will call and find out for you, but you can call medicare yourself and ask. There should be an 800# on the back of your card. My insurance does cover my sleep study, but I have an HMO, not medicare. You always can call your insurance company and ask what your coverage is. Believe me, the doctor usually does not know much about which...
  12. darlindeb25
    Sorry I didn't read this before TMB. After 8 yrs of being gluten free, and having so many intolerance's rear their ugly heads, I know I am celiac without a doctor saying so. Even my PCP told me he is 99% sure I have celiac disease, and he didn't know me 8 yrs ago!!! I didn't have the money to be tested 8 yrs ago, and now, I can't be tested without eating...
  13. darlindeb25
    Fiddle-Faddle is so right!!! When we first go gluten free, we need to be gentle on our systems. We need time to heal. Gluten free baked goods are so heavy, always. The flours are heavy, and I think tough on an already very delicate system. I also do not eat out, and honestly do not miss it. It was always such a problem for me to begin with and I...
  14. darlindeb25
    Ask your doctor to do a celiac panel--gene testing. I finally have insurance, and found a doctor who ordered gene testing, quite by accident. He is my neurologist, and he thinks I am not utilizing vitamins and minerals properly, so he ran a load of blood tests. They also do a blood test for celiac, that is not gene testing, and of course, an endoscopy...
  15. darlindeb25
    I have not been a patient of Dr. Green's, but I have attended many of his talks, met him in person many times, even helped him with a book signing at our vendor fair. He knows his stuff, and he is a very down to earth person. He is a very busy doctor though, and takes a long time to see him. As for your numb toes and such, you should see a neurologist...
  16. darlindeb25
    I use Country Life BioChem Superior B12--I get it from I-Herb.com. They say Jarrow is the best, I haven't it yet. Whichever one you try, always make sure it's gluten free. Mine has no yeast, wheat, soy, gluten, milk, salt, starch, perservatives, artificial color or sweeteners. It doesn't taske bad to boot!
  17. darlindeb25
    Malabsortion can cause so many problems. When you do not absorb vitamins and minerals properly, or at all, your nerves starve, and slowly start to die. Going gluten free sometimes repairs all damages to nerves, sometimes not. I too, am one of the people who did not heal. Although, going gluten free has tremondously slowed the progression of my neuropathy...
  18. darlindeb25

    ARCHIVED Headaches

    darlindeb25 replied to texas's topic in Coping with Celiac Disease

    Years of experience, that's my source. We used to call Dannon, ask gluten free status, they would never answer. Then they told us (my sister and I) they do not use dedicated lines--they told us, THEY are the source. Dannon states they will not say gluten free, and this is from your own post:
  19. darlindeb25

    ARCHIVED Headaches

    darlindeb25 replied to texas's topic in Coping with Celiac Disease

    Just a note about Dannon yogurt--Dannon can't be trusted. They have been notorious over the years for being unsafe and the only yogurts they will list as safe are plain yogurts...most of us do not want plain. Besides the fact, they do not dedicate their lines. Now, for the headaches. There are many reasons for headaches, outside of celiac disease. ...
  20. darlindeb25
    Welcome to the forum!! Nope, I am not alone, my sister has been gluten free for 8 yrs too, and our dad will be gluten free for 4 yrs in Nov. We consider this a family trait now!
  21. darlindeb25
    I'm sorry,I do not agree, replace them! Wooden spoons are the same as a wooden cutting board, you can not get them gluten free. You are very lucky if you are not getting CC'ed from these, or maybe you do not realize you are being CC'ed from them. Teflon pans are another culprit. They get scratches in them, and the gluten lodges in those scratches, it...
  22. darlindeb25
    Clicking on the link in Rollingalong's post cause's me problems for some reason. So I researched this myself and I found this, very interesting: Open Original Shared Link I found this very interesting: I never read that celiac disease effects twice as many females!
  23. darlindeb25
    The link wouldn't open for me either, but I think I found it: <a href="Open Original Shared Link disease.htm" target="external ugc nofollow">Open Original Shared Link disease.htm</a> I agree with elonwy. I truly do not think doctors and researchers know enough yet about this disease to say which is which. I believe gluten intolerance is...
  24. darlindeb25
    You are going to find this true of any disease. How many diabetics do you know that follow their diet to the letter? Their lifestyle change is not near as strict as ours, and many still can't or won't adapt to the change! How many people with heart conditions do you find not following their doctor's orders? There is always going to be a percentage that...
  25. darlindeb25
    I tried to respond to this thread this morning, but the forum was being obnoxious, it ate my post, then just wouldn't work properly at all, so let's try again!!! This is very true, and very sad. It really does nothing for we who actually need the clinical trials to be done, and done properly. I rarely ever buy gluten free foods, meaning, I buy...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.