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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    I know, and I was gone only 4 days. How's the new job going Stephanie? I'm hoping MSFL hasn't given up on us, I sure hope he gets relief and his health back soon.
  2. nettiebeads

    ARCHIVED Restaurants

    nettiebeads replied to Miki's topic in Gluten-Free Restaurants

    There's a link somewhere for the triumph dining cards. i don't leave home without them. And since you have Celiac, you must be very careful about cross-contamination issues. At one restaurant I used my cards and got something safe (probably eggs) and was told by my server that it would take a little while as the cook had to clean the grill before fixing...
  3. nettiebeads
    Believe me, if we could, we'd want all of our tests to be wrong about celiac. But it's not horrible and life threatening (if addressed properly) and you can live a very normal life with a wide variety of yummy foods. Have you done the diet at all? What kind of symptoms do you have? Why was the biopsy ordered in the first place? And usually the biopsy...
  4. nettiebeads
    I agree with nini - if you feel better when you're off of gluten, then stay off of gluten. 100% gluten free. No oats, barley, rye, malt, spelt, durham, tricale (sp?) or any wheat substitute that is still basically a wheat. Check your cosmetics and toiletries. After awhile, when you've been gluten-free and feeling better, you will learn to equate gluten...
  5. nettiebeads
    I agree with Rachel. We need more info - how long sick, symptoms, why did you go for the testing in the first place? My dr thinks that most of the testing that comes back negative is because the tests themselves are not as sensitive as they probably should be. Let your body be your guide - have you tried the gluten-free diet? Let us know. Annette
  6. nettiebeads
    I've read on another thread or celiac forum where one man was prescribed a round of steroids to get the inflammation in his intestines to settle down so that he could begin healing from his celiac. I'm sorry that this thread created such a ruckas; I've been on this forum for 5 months now and am really embarassed by some of the postings. On average, the...
  7. nettiebeads
    Don't forget sprinkles on top of the frosting too! If you could wait and take the time to add them.
  8. nettiebeads
    Hey! I resemble that remark!!!! but I've had bad eyesight way before developing celiac. And the age thing isn't helping either. But so long as I can see a beefcake calendar or a SALE! sign I guess I won't worry.
  9. nettiebeads
    I was able to maintain a regular weight after developing celiac, but after a divorce, knee injuries, fallen arch, I packed it on. But I've cleaned up my diet (finally eliminating the last gluten source) and started working out more. Last year I maintained a net weight loss of 1.5 lbs. So far this month I've lost 3, but have been working out and have firmed...
  10. nettiebeads
    I've been on 50 mg of zoloft for 5 yrs now. My dr and I are going to try weaning me starting this April or May. I had been glutening myself for a very long time (pesky malt) and when I finally cut that out (thanks to this board) I started feeling loads better. I did try on my own w/o success and confessed to my dr. He told me it was way too soon, gave...
  11. nettiebeads
    Yes, you decided you wanted to have celiac on purpose just to be weird I think most people just open their mouths w/o engaging brain. Tiresome, but at least we all have this board to come to where people understand, sympathize, and empathize. I Love you All! Annette
  12. nettiebeads
    I agree with Tarnalberry. Continue with what the drs recommend, but try the gluten-free diet also, since the diet won't interfere with what the drs have planned. And who knows, it may provide some relief for your friend. Can't hurt.
  13. nettiebeads
    How big is your company? If it has more than 50 people, you should talk to the HR about FMLA and see if there is a way around your illness until you get a proper dx and get healthy again. Unfortunately, Celiac isn't considered and disability because it doesn't affect (supposedly) your ability to do your job. Good luck and keep us posted!! No matter what...
  14. nettiebeads
    I find your thinking very logical. There are times I'm standing in the kitchen wanting something to eat, I mean wanting, not needing, and I think about indigenous people and what they eat. They definitely eat to live.
  15. nettiebeads
    Their version of potatoes au gratin. The commercial versions have wheat, but the wal Mart brand doesn't. Go figure. For a really quick meal, I add a can of chicken and green beans and bake. Tastes good, gluten-free, and great for lunch the next day.
  16. nettiebeads
    I got the healing response from my mother, too. But she was saying that while I was giving her her shower. She needs me to help her with things because she has: 1. spinal stenosis (doesn't have full use of her legs), 2. mitral valve prolapse, 3. type II diabetes.
  17. nettiebeads
    The fact that you are exhibiting some symptoms means you are having problems with gluten. The disease has 200 symptoms, and all of them can have a wide range of effects. I don't know why drs insist on getting a "medical" dx. You responded to the diet challenge. That's all it took for my gp to dx me 9 yrs ago. And I've never questioned the dx since any...
  18. nettiebeads
    I think it's very likely. Your daughter had to get her celiac gene(s) from somebody right? I never had the weight loss aspect of the disease. And right now I'm working on losing over 50 lbs. So no matter what the blood work indicates, you might want to try the gluten-free diet anyway. Nothing to lose, lots to gain!
  19. nettiebeads
    That's my philosophy, too. We're mere mortals and so who are we to question the whys? Annette
  20. nettiebeads
    I had major surgery and a couple of minor out-patient procedures after developing celiac. The gas isn't a problem with being put under. Is it an out-patient procedure? I'd just be very careful if he's offered any food by someone at the facility. Even after clearly stating CELIAC - NO GLUTEN on my menu at the hospital, I was still given crackers (individually...
  21. nettiebeads
    I bet he was thinking "militant mom nut case" but we know how important the difference is between wheat free and gluten free. I wonder if the Better Business Bureau would be interested? It is false advertising. Annette
  22. nettiebeads
    No, but mine has been going up every year, although very slowly. I have no idea why either, unless it's age. I don't eat much fat because my gall bladder does not like it at all! Definitely need a dr's look-see.
  23. nettiebeads
    LOL! That is about the best answer there is. But you do have to cut the lay people some slack because they don't get it. Look at how many in the "trained" medical communitydon't understand celiac at all! My pet peeve is a coworker of mine - Anything I pick up "it's got gluten" even if it's my food I brought for myself; or he'll say "I've been glutened...
  24. nettiebeads
    Thanks for the info!!! Although why is epidemic used in the title? It makes celiac disease sound like something you could catch. Too bad it isn't because I sure would throw it back!!!
  25. nettiebeads
    I've made pizza for myself several times now. I use a cookie sheet because it's easier to cut into serving sizes and freeze. And when thawed out the pizza tastes just fine.
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