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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    I've never understood why companies always have to use flour when seasoning their fries.
  2. nettiebeads
    Hi Gina and Laura!!! And welcome to the board. Healing rates vary with individuals and amount of damage done before going gluten-free. Other foods might be hard to digest for awhile due to damage. As you get better, you may be able to add some more foods back in. But right now, think baby - easy on the tummy types of foods. I've learned more from this...
  3. nettiebeads
    It's so sad that sometimes it seems like if there was a medication for celiac, people would take it more seriously. Nancy
  4. nettiebeads

    ARCHIVED I Did It!

    nettiebeads replied to a topic in Coping with Celiac Disease

    A Very BIG CONGRATULATIONS!!!!
  5. nettiebeads
    I agree with those who recommend the diet challenge for your child. Non-invasive, and with children you usually get noticiable results fairly quickly. I haven't ever had any of the blood work or biopsies or anything like that. My gp dx'd me via the diet. No gluten = no D. Voila! Dx!! And believe me, I know I have celiac disease. Give me gluten and my...
  6. nettiebeads
    I've noticed that certain types of gluten-free breads give me really bad heartburn. Have you been able to tie it to a certain food type, or is it everything? I haven't been able to tie mine to any particular grain, as all of the gluten-free breadstuffs use so many different flours. If I crave baked goods I know I'll be going for the gluten-free antacids...
  7. nettiebeads
    That's the wonderful thing about celiac. No prescriptions. That's one of the reasons I think that drs underdiagnose it. You stay gluten-free by carefully watching what you ingest, watch for cross-contamination, and always be on the lookout for hidden gluten sources - hand lotions and such that contain oat and wheat germ oil. Be very careful when dining...
  8. nettiebeads
    Sounds similar to mine. It was like I was being sliced with a red hot butter knife. Turned out it was fibroids and one had attached itself to my pelvic floor. 4 1/2 yrs after my hyster. I still get the pain occasionally. Annette
  9. nettiebeads
    Sorry to hear you're still having problems. Are you feeling any better at all? Maybe you have something else going on - some of the posters here mention leaky gut. Are you taking supplements? If so, are the gluten-free? And whay kinds? You may be still getting glutened from hidden sources.
  10. nettiebeads
    I think your "specialist" is specializing in B.S. The bloodwork said celiac. There you go. The biopsy is NOT the gold standard it was thought to be. The samples could be taken from areas not damaged, slight damage could occur where it is misread as normal...You have had a positive test for celiac disease. Two in fact - the diet challenge. The fact that...
  11. nettiebeads
    Hey Joe!! It sounds like yes, you do have definite gluten related issues. You could stay on gluten, keep a food journal and go through drs to have you officially dx'd. Or you could realize that you have had a positive diet challenge for gluten when you went on the low-no carb diet. I was dx'd just with the diet. It was enough for my dr. But the problem...
  12. nettiebeads
    Man, that's interesting. My daughter's grandmother has that - said it's hereditary in that family. I'm really trying to steer my daughter into the wheat free life. Me with celiac disease and being half swedish, and then her dad's family is definitely from an Irish extraction and half of them complaining of stomach problems. She already has PCOS so I'm...
  13. nettiebeads
    Have you kept a food diary to see if there is a correlation between what you ingest and mood swings? I know that my depression would just overwhelm me after I had been glutened, even though I'm on 50mg of zoloft daily. (the zoloft is for long term depression pre-celiac disease). But I do know what you are talking about. If I've been glutened I get such...
  14. nettiebeads
    Hi Cami. I would think that your body is telling you that it doesn't like gluten. You could keep a food journal with dates, what you ate, and any and all or no reactions. Maybe if you did that for 3 to 4 weeks and took it to a dr., he might have some recommendations. Or you could "self-diagnose" as another poster or two have done and go gluten-free anyhow...
  15. nettiebeads
    I have the all cuisine one. Well, really six. All of them are printed in English on one side and the other in whatever language - Spanish, Japanese, Thai, and I foget. (not that many options in my town). It explains to each nationality what we cannot have and what possible cross-contaminations can occure. And there is differences in soy sauces. Thai...
  16. nettiebeads
    Listen to your body - it's trying to tell you that it needs more. More of what is the problem. Your body is healing itself, which takes up energy that you supply in the way of calories. I would suggest more foods, but try to make them as protein dense as possible. I don't know what exactly to suggest as I'm not a vegetarian and haven't ever read up on...
  17. nettiebeads
    Hi Craig, and welcome to the forum!! I noticed on your post you mentioned being 100% cured. But as celiac goes, it's an autoimmune disorder with no cure. What you are doing is altering your diet for 100% elimination of symptoms and gluten reactions. Just like a person with type II diabetes can alter his/her diet so no more sugar is spilled into the urine...
  18. nettiebeads
    Yep, that is so cool! Not that I think it's great to have celiac disease, but I am so looking forward to the day when it'll be like saying you have diabetes - and get an understanding and/or sympathetic nod instead of the blank stare and endless questions.
  19. nettiebeads
    It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge. And wasn't it in one ear that his hearing seems to be acutely affected? ...
  20. nettiebeads
    I'm glad you stuck up for your decision not to have the biopsy. And I doubt if you are imagining things. A biopsy could have shown how much damage was done to the villi, but then again, it could have not shown anythig wrong. Just keep your baby on the gluten-free diet, all people, regardless of age, respond at different rates to going gluten-free after...
  21. nettiebeads
    Most of my gluten dreams are of eating something that I used to love, and then realizing after I'd taken a bite that I shouldn't have done that!!!! The dreams used to be rather frequent, but since joining this site and becoming more vocal and proactive about celiac disease and finally bothering to bake some of my faves in gluten-free form, the dreams have...
  22. nettiebeads
    Same here. I felt so isolated before joining this site. Now it's part of my regular morning routine. My health is so improved because of what I learned here. I can't begin to express my thanks adequately, but a BIG thank you, Scott. Annette
  23. nettiebeads
    Nope, not opinionated, just bluntly factual. Even though I was dx'd with celiac disease 9 years ago, I didn't want to do w/o my cereal and light drinks. I ignored the word malt for years thinking I was okay - I didn't have the overt symptoms of being glutened. But after nine years of this, I finally joined the forum and realized what I was doing to myself...
  24. nettiebeads
    Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months...
  25. nettiebeads
    We now know that there are way more false negatives with these tests than are positive. My dr said that the tests still aren't sensitive enough to thoroughly test for celiac. But since you had a positive, you know what you have to do. And believe me, after awhile the gluten-free diet will become second nature. And you will SO enjoy being healthy that...
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