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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    The fatigue is always the last to go when I've been glutened. The length of time to feel any effects from going gluten-free depends on severity of damage, just how gluten-free you really are and your own body's natural healing rate. My dr. dx'd me years ago just by the diet alone. Much less expensive and invasive as other tests, and just as valid.
  2. nettiebeads
    Never heard of it. Sounds interesting. How would one participate?
  3. nettiebeads
    Please stick around!!! You'll still be following the gluten-free diet, I assume, and the gluten-free lifestyle, and the coping of the two. I'm sure you'll have questions and insights to share. But I am happy for you in that there is no damage to your innards like what celiac disease does.
  4. nettiebeads
    Great idea!!!! I'll have to do that - electronic AND paper! Thanks!
  5. nettiebeads
    I use cheap Clairol Condition hairspray (Walgreen's). When I called the number on the can Clairol explained that they sold that division to some other company (sorry forgot the name) so I called them and they took a day to get back to me. They explained that the chemist confirmed there is no gluten in the ingredients of my spray but in fairness, since I'm...
  6. nettiebeads
    Hey stef, where have you been? I'd love to see you at any of your competitions. I had a red belt in Tae Kwon Do for years, never could break my boards for my black belt. I kinda miss it - it was great excersize and discipline.
  7. nettiebeads
    There are times I think I should be wearing latex gloves at work - just to remind myself of all the hidden thingys out there. I was not aware of carbonless carbon paper. And I deal with triplicate Purchase orders every day.
  8. nettiebeads
    Everybody reacts differently, and as time goes by, I'm finding out I react differently, depending on type/severity of gluten. I finally gave up my cereal with malt for flavoring, and I'm feeling better than I have in ages. But had a dining disaster at a seminar three weeks ago, and ended up with D almost right off the bat, and that had never happened to...
  9. nettiebeads
    Yes, stress and celiac disease do not go together well at all! Just got over a mild glutening myself this week - and the emotional toll was way worse than the physical this time. It is very common with celiac disease. I felt like I'was the most horrible person in the world, why did I bother living.... What saved me this time was reconizing that I did have...
  10. nettiebeads
    I'm so sorry to hear that you haven't had a def answer yet. IBS is a syndrom based on ruling out other things. So far the celiac disease hasn't been ruled out so IBS can't be definitly ruled in. And tell your family (or let them read this) that NO ONE ELSE IN MY FAMILY HAS celiac disease!!! I'm the only one! and I didn't develop it until I was in my mid...
  11. nettiebeads
    All of my reading re: celiac disease links celiac disease with other digestive issues and hormonal (like thyroid and now pcos). I kinda doubt that there's a link, but then again, the more research done with regards to celiac disease and its effects the more pervasive it seems. But I'm leaning more towards another abnormality causing it. My mother has mytral...
  12. nettiebeads
    It's not an inherited condition? Were you born with it or did it develop later in life?
  13. nettiebeads
    My SIL made this for me one Tday. Plus she made hers with fat free cool whip so it had only one point on the Weight watchers she was on then. It is good. Thanks for the recipe!!!
  14. nettiebeads
    I don't understand why your dd's drs are masking the symptoms. It is not normal for a young child to have constant stomach pains. There is something wrong, obviously. Why are they wasting time? I'm concerned because if it is celiac disease then damage is being done, plus the malabsorption issues which can cause lots of other problems, especially in a...
  15. nettiebeads
    I'm glad you were able to track down the gluten source, but it's a shame you had to do it at all. I know people don't mean to be so ignorant, I once had a server bring me a plate of chicken penne telling me no gluten was added to it!!!! Obviously constant vigilance is our lot in life.
  16. nettiebeads
    Let's see, you're her mother, the nurse is an RN; I'd put the odds that you know better. Since celiac disease has 200 symptoms, to me the pain can be anywhere the damage is manifesting itself. When I first developed celiac disease the pain from the gas was deep inside and down. Now when I get glutened (not on purpose, mind you!) it seems to be upper and...
  17. nettiebeads
    bk and jrom - how long were you sick before dx? bk - as you learn it will get easier. As someone stated earlier, the closer to natural the better the food is for you. And as your body continues to heal, the ups and downs will get less. I finally figured out I had been hurting myself because I was ignoring the word malt. It is definitely a four letter...
  18. nettiebeads
    I disagree with your dr re: symptoms. Some people with celiac disease do have bloating, weight gain and constipation. I definitely have the c. Sucks almost as bad as the d. Have you tried scaling your diet way back to fresh meats and just veggies (canned or frozen or fresh) just to see if there is improvement? I agree with Kati in that gluten thingys...
  19. nettiebeads
    There's still a lot of things about pain that professionals don't understand. Remember, medicine is an art really, not an exact science like physics. It is very common for one area to be in trouble but have the pain manifest itself in another area. One of my coworkers went to the ER for upper abdominable pain, was told it was gastritis, two days later...
  20. nettiebeads
    Kids are amazing creatures. Please give her a big hug from me for being so smart, and you get one too for being such a good mom!
  21. nettiebeads
    When I had attacks it was in my upper right quadrant, then progressed to both sides. The other attacks I was so nauseous that I couldn't hold down water. But I haven't had problems for ages with my gb, thank God!!!
  22. nettiebeads
    It's a very good possibility. The foul diahhrea is from malabsorption issues. I used to have a severe problem with mouth ulcers during the first two years of my celiac disease - lived in a house full of kids and I KNOW I was cross-contaminated a lot. Plus life was stressful at the time. Have you tried going gluten-free? But if you go gluten-free, then...
  23. nettiebeads
    I've used pepto, Wallyworld gas-x, ginger tea helps, chamomile tea does too. Also just curling up with a heating pad helps the tummy to relax some. Hope you're better soon (My tummy just gave me a sympathy twinge - it feels for you!)
  24. nettiebeads
    I agree with Ursula - don't worry about what others think - You're being a good mom trying to keep one child healthy and have another regain her health. The biopsy isn't the gold standard that most dr's think it is. And why should you dd have to get worse before she can get better, especially when something as simple as the gluten-free diet could help her...
  25. nettiebeads
    I don't know about the bloodwork, but the catches you are turning in are to measure malabsorption issues. A very high fat in the samples points to malabsorption and rules in celiac disease. Have you just simply tried the gluten-free diet? That's what my gp did to me 9 years ago. I haven't bothered with anything else, but am thinking about the gene testing...
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