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Chaff

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Everything posted by Chaff

  1. Chaff
    Oh dear. I'm going to have another gluten nightmare tonight from this. This is EXACTLY the kind of thing I'm always mildly terrified I'm going to do. But hey -- another reason to go see Les Miz again in the theater, right?
  2. Chaff
    The only time I saw this mucus was the first day I reintroduced gluten in preparation for my celiac testing. I had been gluten-free 6 weeks and the first thing I ate led to all the things you describe. I ate the same dish the last day of my 6 week gluten reintroduction period, and saw nothing similar to it. I agree this could easily be the mucous lining...
  3. Chaff

    5 wks in: still C and blotating BUT BRAIN FOG IS GONE. Wow. So this is what living feels like.

    1. Chaff

      Chaff

      Ha! "Blotating."

  4. Chaff
    Thanks, jebby! I was thinking 3 months may be best for serious running. Probably some two-milers a couple times a week should be my limit before then. Ugh, this gut healing thing is such a drama queen, am I right? Geez, you have my attention, just heal up already.
  5. Chaff
    Ooh...I bought myself a gluten-free gift box subscription. Stupid, pointless things to get. I didn't even think -- I just put in my credit card number as soon as I saw it. Open Original Shared Link Of course, now I'm off casein, and it's probably all going to be mac'n'cheese and cheese straws and I don't know what. But still -- kind of excited about...
  6. Chaff

    Cheese Requiem

    Chaff posted a blog entry in Thesmophoria

    I've lost cheese! I put two and two together and am now on a two-week casein elimination diet. HOLY COW. It's day 4. (On day 2, my rennet arrived in the mail. It was a sad day.) I just made a dinner for my husband and me that took an army of hands. There was my gluten-free pasta, his gluten-ful pasta, my homemade meatballs with fennel seeds...
  7. Chaff
    No, there are a million of these, aren't there? But thanks for the tip -- I'll steer clear of that one!
  8. Chaff
    Here's a good one: By a high school student, but it won some award and looks pretty professional. Also only 3 minutes!
  9. Chaff
    Thanks for posting! Very helpful to hear how people are doing a couple years in. And gives us newly diagnosed folks some hope!
  10. Chaff

    Rats. Now I have to do a casein challenge. There go my cookies for two weeks. :(

  11. Chaff
    I think the difference is we do it to live, the "lifestylers" do it to be cool.
  12. Chaff
    MitziG -- can you clarify the intolerance connected to KP? Is it casein or lactose? This is the first I've heard of it. I'll google around tomorrow, but I was hoping you had more information.
  13. Chaff
    It's expensive in terms of money, but cheap in terms of not feeling like crap all the time. But that still costs money. The problem is that there is a lot of trial and error. What particular formula of supplement works for one person may not work for another. Very frustrating. There are some cheap solutions, but I'm not a fan of them. People go...
  14. Chaff

    My first gluten-free toast with olive-oil "butter"! IT TASTES LIKE REAL FOOD. =)

  15. Chaff
    I'm working on that -- the doctor has ordered the tests. Unfortunately, I can't take a prenatal since they have iron in them (I have a genetic iron overload disease). But in general any iron-free multi with extra folic acid and omega-3s does the trick, too, I think. I hope, anyway. Thanks for the advice on waiting until my vitamin levels are up. I...
  16. Chaff
    As someone with unexplained infertility and recently diagnosed with celiac (no thanks to doctors -- but blood-test confirmed elevated tTg), I want to know when I can start trying again. I've already had my miscarriages, and there's no point in just getting more of them. Is it when tTg is back down? Science, why are you so slow? This is not encouraging...
  17. Chaff
    Yes, but also: It sounds like your husband's family is not really aware of what celiac is at all. It does sound crazy if you're hearing about it for the first time -- I think we all were like, "What can kill you? Wheat?!" when we first heard it, too. They don't seem to be aware that we're talking about something that can kill you and your children here...
  18. Chaff
    Meh, my body's kind of an idiot. We do have showers and a tiny locker room. Running five miles to work is awesome!
  19. Chaff
    Hm...well you likely either have lingering intestinal damage or some food intolerances. If you have damage still, you could try some digestive enzymes and probiotics, like the ones in the Newbie 101 thread, if you haven't already. If you have food intolerances, you could keep a food diary to try to identify them. It sucks, I know. Can you identify a...
  20. Chaff
    Hi Everyone, What role does exercise play in the celiac recovery phase? I was training for an ultramarathon when I began suspecting a severe set of food intolerances. I became so weak from the elimination diet that I had to stop running (couldn't get enough calories; reacting to everything). I lost seven pounds on the elimination diet, a lot of which...
  21. Chaff
    Losing weight seems to be mostly about intake for a lot of people -- recent studies on exercise are saying that it is good for your body, but not necessarily for weight loss. It seems that people respond very differently to exercise, even hard-core exercise, and some people will lose weight on it and some won't. I can't eat meat because of an intolerance...
  22. Chaff

    I never realized english muffin crumbs were scary before. Now I just hear ominous music when I see them on the counter.

  23. Chaff
    Good list, and thank you for sharing it. It would be great if anyone else with only a handful of foods they can eat without problems could post their safe foods, too, to give everyone else ideas. I'm going to go try fennel now! A cousin of a friend has severe fructose malabsorbtion, and your list is very close to his. He can eat: exclusively grass-fed...
  24. Chaff
    I get this, too, and have my whole life. I *think* it could be a malabsorbtion issue. At least, for me that seems to be what causes it. The Mayo Clinic has this to say on how they treat it (Open Original Shared Link): "Open Original Shared Link found that up to half of celiac patients don't heal completely even with a gluten-free diet. At Mayo, people...
  25. Chaff
    Thanks--very helpful!
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