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AlwaysLearning

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Everything posted by AlwaysLearning

  1. AlwaysLearning
    My pain in this area appears to have been caused by the B12 deficiency that came from malabsorption. It persisted after going gluten free, but has improved since getting my vitamin levels tested and supplementing. I'm two months pain free after six years of recurrent issues so I'm hoping this was the answer. But if you do get tested for deficiencies and...
  2. AlwaysLearning
    Yes. Most people mention that they can't go into bakeries that make gluten products because of the dust in the air, and I've walked out of a restaurant where I was seated too close to their prep area for making pizza. I have been glutened from cleaning an area where wheat-based kitty litter had previously been used, though without gastro symptoms, just sinuses...
  3. AlwaysLearning
    Congratulations on getting a diagnosis and starting down the right path. That first month is sure to be full of accidental glutenings so I wouldn't beat myself up too badly about it. Gluten is hidden in so many foods (and kitchen utensils) that it can be tough to get rid of hidden sources right away. Just keep at it. In three or four months, the accidental...
  4. AlwaysLearning
    My sinuses like to participate in my glutening parties, even playing host if the source was from air-born particles.
  5. AlwaysLearning
    This was years ago, but the only thing off during the testing at a yearly physical was extremely low cholesterol levels. Despite that my doctor asked me if I was a vegetarian and my answer was no, and that I had never been, his treatment recommendation was "Eat more steak." and he sent me on my way. For years I complained that I had abdominal pain. I can...
  6. AlwaysLearning
    I can say that all of my stool issues went away within two days of going gluten free though abdominal pain seems to be related to additional vitamin deficiencies that I'm still working on. This is the first time I'm hearing the phrase "end stage" in relation to celiac. And as far as I know now, even those with celiac sprue can heal if they manage to figure...
  7. AlwaysLearning
    First, I just wanted to say that I'm soooooo sorry to hear that you have had to go through all of this. For years I had abdominal pain above and to either side of my belly button, my one symptom that persisted even after I went gluten free. Mine appears to have been caused by a B12 deficiency (easy to test for, easy to treat) and has gotten much better...
  8. AlwaysLearning
    Someone here had the idea of combining keeping a food diary with foods changing every four days to try to narrow in on possible culprits. I love that. Much better than eliminating everything and ending up eating too much of the same thing. The four day cycle could help you get more variety back into her diet and split up some of the things she is currently...
  9. AlwaysLearning
    Vitamin deficiencies are common for those who have been malabsorbing and can cause all sorts of symptoms all on their own. I'd get those tested. Otherwise, a food diary could help you figure out if you have any additional food sensitivities. Most doctors seem to know a lot less than the people here who have lived it, so you're in the right place. Knowing...
  10. AlwaysLearning
    In addition to any gluten testing, I'd definitely get my vitamin levels checked if you haven't already. B12 deficiency can cause severe abdominal pain which can come and go and is common amongst those who don't eat animal products. Then keep getting all of the vitamins checked for the rest of your life so that you know how much you need to supplement. Vegetarian...
  11. AlwaysLearning
    Sorry that you're feeling lousy. Those poor bacteria, getting blamed for causing food poisoning when its those darned gluten brats doing the dirty work. I'd put those cookies on the do-not-buy list for the future, but I suppose you'll have to keep the parents.
  12. AlwaysLearning
    Gemini, I was thinking that jumping to a conclusion that sjogren's is a likely problem here may be a little hasty, especially considering that the original poster hasn't mentioned any complaints with dry eyes or dry mouth. By no means am I saying that sjogrens isn't serious or that using drops if you do have it isn't needed, just that there are many causes...
  13. AlwaysLearning
    Well, I'd have to wonder why the cat peed on the bedroom carpet. Perhaps he/she doesn't care for gluten either? You guys are making me miss having a cute and fuzzy, high maintenance purring machine around.
  14. AlwaysLearning
    I don't know much about sjogrens, but anything with the word "syndrome" in the name raises a red flag to me. It normally is used when the medical establishment doesn't understand something well enough to diagnose properly or treat. If I were in your shoes, I'd probably hold off on testing for sjogren's ... for now. Looking them up just now, I see that the...
  15. AlwaysLearning
    When I get exposed to gluten dust only, sinus pain and pressure come on pretty quickly and bother my ears and throat as well as my head. I just feel as if I'm starting to get a sinus infection and may have to clear my throat more than normal. The rest of the reaction is fairly typical - irritability, then headache, then the fog. I would think just a puff...
  16. AlwaysLearning
    I totally feel the same way. I say go ahead and blame the gluten for everything. I can't think of one medical problem that I've ever had that wasn't caused by it, either directly or as a result of another problem it caused. And it makes it much easier to forgive family for bad behavior when I realize that they could just be in the middle of a gluten reaction...
  17. AlwaysLearning
    Sorry to hear that you still have to deal with temptations around you. Darn those kids! Here are some ideas for go-to snack foods. (One of my first posts here was looking for ideas to fill that nitch.) • Make popcorn - as in the kind you cook in a pot on the stove yourself. It is a good comfort food, has that crunch and a touch of salt that we crave, ...
  18. AlwaysLearning
    Though I totally understand frustration with doctors, I wouldn't skip them entirely. I went to every type of doctor I could think of for more than 20 years before I finally figured out that gluten and I were not friends. But at the very least get your hormone levels tested and have tests run for vitamin deficiencies. If you have hypothyroidism, you may...
  19. AlwaysLearning
    GottaSki, sorry. More questions. If you don't mind, I'm curious if you ever figured out why weren't you healing in the first four years? And out of concern, I have to ask, have you at least started to heal now? And I'll admit, I'm only questioning going through with the invasive testing for those that who are already certain that gluten is causing them...
  20. AlwaysLearning
    GottaSki, I have to ask. For purely MEDICAL reasons, what good is the endoscopy/biopsy in your opinion? I know that some people like to get retested later to confirm that healing is taking place, but what benefit is this other than peace of mind when the treatment doesn't actually vary at all? I'm all for follow up appointments, monitoring hormone and...
  21. AlwaysLearning
    I once ordered a salad at one of those places that makes it right in front of you, watched them wash all of the utensils that would be used, get out a "clean" cutting board and wash it ... and I still got glutened from my greens despite not having dressing. I figure eating out is a thing of the past for me, for the most part. I still have one sushi place...
  22. AlwaysLearning
    TurdFerguson15 said he was already gluten free, which means a retox would be needed for any testing to be done at this point. But good to learn that less gluten may be required than what others have said elsewhere.
  23. AlwaysLearning
    When it comes to juicing, getting a juicer and making some delicious drinks that can replace a meal is just fine. I personally think that fresh apple/carrot/ginger juice is ambrosia. But only drinking juices as they did in the documentary and not eating other solid food is not something a person with past malabsorption issues wants to do. Fruits and vegetables...
  24. AlwaysLearning
    There are pros and cons to having a celiac diagnosis. Pros can include being able to follow up to monitor the healing process, can carry some clout when dealing with friends, family, or even doctors who don't believe you, or could help you stay motivated to avoid gluten. In some countries with nationalized health care, there are monetary benefits to help...
  25. AlwaysLearning
    When you return, have them test all of your vitamin levels again, not just the D and the iron. I know B12 deficiencies are also common and have some pretty horrendous symptoms (and are much easier to treat). I do hope you get the answers you need, and soon!
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