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alesusy

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Everything posted by alesusy

  1. alesusy
    thank you. This is what I've been thinking - going grain free, possibly keeping in rice and quinoa for now, and apart from that, meat, poultry, olive oil, veggie but no nightshades, fish. I want to keep eggs in because I love them, but... who knows. Fruit and nuts. Then I talk about it to the new doc who scoffs and says THERE IS ABSOLUTELY NO SCIENTIFIC...
  2. alesusy
    I've just made two years gluten-free as a certified celiac and lactose intolerant, and five months ago after a bad bout of diarrhea I had a bloated and painful tummy. The bloeating eventually went away but the pain persists. Normally concentrated in my upper right quadrant but can also move around to upper right and lower right and lower left; it can be a...
  3. alesusy
    thank you for the infos. I'm trying... will have a go at it
  4. alesusy
    Hi there. I've been here as Alesusy but cannot find my account... I am now 2 years into gluten free and in the last six months my GI distress (never totally disappeared) has deepened to constant colon pain - never huge but always there. A virtual colonscopy showed diverticulis but apparently they are not inflamed. Question: anybody got definitely better on...
  5. alesusy
    Andirubes, it still happens to me.. after 18 months gluten-free. To be fair, I have actually been glutened, I think, but it was on my FIRST day of holiday (and then I got glutened again as soon as I got back to Rome having steak and roast potatoes in a restaurant I've been to before. How do I know? well--- the explosive consequences coming in one hour later...
  6. alesusy
    Unfortunately not much. I'm writing to say that it happens to me as well; very stiff neck/shoulders together with intestinal distress, particularly on the left side, with awful jaw stiffness and tension headaches around my teeth and my lfet eye (right side achey too but not the same way). I've had massages, physioterapy aimed at the jaw, and both help. best...
  7. alesusy
    Well, this is VERY interesting. Since going gluten free, my periods have become irregulars - either 20 days, or 35/38 -. Since I was 47 when DX, and 49 now, I thought "perimenopause" and tried to live with it. Now I think there are all sort of links between hormones and gluten. There is at least one study about celiac disease and hormones which I heard...
  8. alesusy
    Hi there everybody. I want to thank Sandsurfgirl... I am Italian too and I am gluten-free since December 2012. it's been a long road and I am still sick - not all the time, but often enough to bring me to my knees, or rather to have a feeling of malaise, even if my antibodies have long been in the normal range. My gut is very delicate (I was a 3B marsh...
  9. alesusy
    hi there! I'm getting tested for vitamin D but I don't know about B12. I will ask this doctor I'm going to see to prescribe me a full panel. My GP - the public health system one - is nice but I think he can't stand to see me around any more. I did keep a food journal for quite a while. I know my staples are rice, chicken and apples - and some vegetables...
  10. alesusy
    Hi guys! I've been absent lately because... I felt much better all in all. I measure my health by the number of medical searches I do on Google and by the number of specialistic visits I book. The question is: do your symptoms after a glutening vary? I am not certain that I have been glutened. I was dx in December 2012 and all last year until August...
  11. alesusy
    so I'm on holiday and doing, I think, fairly well and being pretty careful after 9 months gluten-free and thinking that actually I do not know how strong a reaction can I get from gluten and maybe I'm one of the lucky who don't get any reactions at all. Then I go out for dinner (normally I eat at home or in carefully selected places) in a very popular place...
  12. alesusy
    I don't know about the huge clots, I'm afraid. DilettanteSteph thanks for the input about aurea migraines. I suffered from migraines as a teen and around my 20s but then they tapered off. This aura thing is totally new and came on AFTER I was off gluten. My gastro doctor declared they have nothing to do with each other. Maybe after going off gluten I've...
  13. alesusy
    I think I am blessed with several friends who took the time to learn what I can eat and cook it special. Also, I'm not the only one. I have invited people over for dinner quite successfully too. Frankly things are much easier when you start feeling better, which in my case happened about 7 months after gluten-free, and I can tell you, I'm not HEALED yet...
  14. alesusy
    Hi Dilettantesteph You are the first person to tell me about an aurea migraine with no pain from gluten trace exposure. Are we taking about the same thing? Colored haloes all around object, fragmented vision lasting for about 20-40 minutes? thanks
  15. alesusy
    You're making me think that my extreme sun sensitivity is not a matter of age but of depleted skin resources due to celiac disease... who knows! It would be a nice thing...
  16. alesusy
    thank you both for your insights I will see how it goes this month. HRT or at least a progesterone cream would require that my hormones tests show an imbalance, which they didn't last month, when I had the perfect cycle for the first time in six months. Since these tests are quite expensive I'm not ready to undergo them again. I'm sure the relationship...
  17. alesusy
    I don't know why they gave him a platform. The article seems to me both biased and ignorant, philosophically not medically speaking. I personally believe that mind and body are not separate entities: our mind IS in our bodies, made of nerves and neuroconnections. So of course what we think influences our sicknesses, and the reverse is true as well. Bu destroyed...
  18. alesusy
    I'm extremely sensitive to the sun and get burned quite easily, with splotchy red patches. The sensitivity did worsen with age - perhaps also because I get less holidays and less time at the seaside and my skin is less accostumed to the sun, but also because it gets drier with age. However I never connected it to celiac disease and in my case frankly I think...
  19. alesusy
    Dear all I'm not certain this is the right forum, I hope so. This is a post mainly for women who were dx over 40 and I'm writing it after months of trial and experience... I am 48, I've been gluten-free for more than 7 months now and things have been going better, in terms of energy and gut problems (and antibodies, which have dropped within normal range...
  20. alesusy
    I've been told by a homoepatic doctor to eat following my blood type. While I'm willing to give it a try in my own home for several reasons that I'm explaining in another post, I'm not going to subject to new difficulties all my patient friends who had to learn how to feed me gluten free. Nor will I skip meals in restaurants for this. I mean: I'm B and I...
  21. alesusy
    Snacks, yes and yes again. Crackers, and peanuts bars, etc. Imperitve is to find a place selling gluten-free stuff and buying some to carry around. You absolutely HAVE to eat more and the safest way is to find some time to stock food so that you'll have enough for a few days at a time. Cooking:: I have survived abroad getting Uncle Ben's 10 minutes rice...
  22. alesusy
    They say the intestines are our "second brain". Of course stress can give you glutening symptoms. THink of it like this: our bodies react to stress in the organs which are usually the most delicate. It might be headache, heart palpitations, D (whenever I'm really stressed or really scared I'll have D, and it's quite a common reaction for non celiac people...
  23. alesusy
    I tend to agree with people telling you that you should go. I hope we don't sound patronizing. But as stated by many, it's not about food, it's about socialization. In my six months gluten-free I've gone to many events and I would not want to skip any because already people are thinking it's difficult to feed me. My strategies include: eating before or after...
  24. alesusy
    I spoke yesterday with a GE doctor who has (to me) - the advantage of being a celiac herself. She told me that she was DX late in life (as me) and that it took OVER ONE YEAR for her villis to grow back and that until then her BM were anything but 'normal'. I'm almost at six months and vary from 'normal' (farily rare) to 'very loose' (often) to D with pains...
  25. alesusy
    thank you all. I feel much better today. My gut is almost normal, but I have to wonder once more at the incredible things that gluten does. I mean: intestinal problems, ok. Dizziness, come with the digestive intoxication. But anxiety? How does THAT work? And the vision loss? That is really, really weird... especially when you get your vision back and wonder...
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