Jump to content

alesusy

Advanced Members
 View Profile  See their activity

  • Posts

    80

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by alesusy

  1. alesusy
    thanks for the information, Anti-Soprano. Possibly your gut was frailer because of the glutening, though, and reacted to the med...
  2. alesusy
    I have found out most of the food I give to my two cats contains either "wheat flour" or a more generic "cereals" (Royal Canin Ageing and Ultra light, and Hill's k/d in pouches). I'm going to change their diet. However - did anyone have inklings and/or established that the food they gave their cats was actually a cause of glutening? thanks alessandra...
  3. alesusy
    Too much sugar (cakes, muffins etc) is bad for me and I can only take limited quantities of caffeine. Thanks, dani nero. It's important. However the level of anxiety I have had these last few days was a MAJOR thing...
  4. alesusy
    Well, thank you all. Adelaide, I will bear in mind your suggestion - I did go to an eye doctor and a brain scan is a possibility but I've been doing so much stuff and so many exames that I'm really fed up. I have found out, however, that all three pet food I have been using contain either "wheat flour" or generically "cereals". I have two cats. They eat...
  5. alesusy
    Well, I had it twice, but I asked to be anesthetized because I really, really, really hate having things in my throat. However they will spray something in your throat to numb it. My own GP told me he had several while fully awake and he never asked to be asleep because he never felt he needed it. The tube is really small. How much you will feel depends on...
  6. alesusy
    One must have been there to understand. For instance: why have I been feeling so off key for the last couple of months (at least?) Why did I spend the last ten days with persistent dizziness, GI problems (although not awful), huge tension in my shoulders and most of all, disabilitating levels of anxiety (crying jags, hypocondria totally out of control...
  7. alesusy
    "package flipping"! I love that definition.... May I add my Italian experience? We have a very active AIC association here (Associazione Italiana Celiachia). They actually print (and also have on their website, constantly updated) a list of all gluten-free products on sale in Italy, including those you find in normal supermarkets(which mayonnaise to buy...
  8. alesusy
    Hi Surviormum, did you have your endoscopy? it's nothing to be scared of - didn't you have one when first DX? A combination of viruses and glutening is always a possiblity and it may multiply esponentially the effects, I think. Give us news... alessandra
  9. alesusy
    You know, I'm wondering about the same exact thing. I've been sick on and off for months now and it dawned on me the other night that ONE possible cause of CC is a hair spray I bought in March in France. While I am NOT certain that it does contain gluten, it is a possibility (I'm not an expert in chemistry). I use it on my wet hair, spraying it on and then...
  10. alesusy
    Thank you, Adelaide. It sounds very interesting. However, I do not suffer from headaches. I used to get migraines years ago, awful migraines, but for the last year the only headaches I had were tension headaches related to my aching jaw and my gnashing teeth at night (they reced drastically if I exercise to relax the jaw joints). However, I was already...
  11. alesusy
    Well, thank you all for the advice. Frankly, I do not think I have got MS and I sure hope I don't... I'm going to see an eye doctor on Monday . But there are days when my eyesight worsen noticeably, and then it gets better. It is hard NOT to think that it is related to something I ate, and to the reaction my gut has to it. The difference in vision from...
  12. alesusy
    Yes, I am 5 months gluten-free and while I'm ok for a good part of the time, I haave often "new" symptoms or recurrence of old ones, but with slight variations... Mainly: gut problems and D - blurry eyes, almost as if my vision has gone down - periodically aching legs - itchiness particularly on legs, not DH and no rash, or at least, very moderate rash...
  13. alesusy
    And something else: if you have to trust an unknown restaurant try going for a small family run place rather than a massive operation. They usually take the time to listen and understand (they need the clients).
  14. alesusy
    Hi there Can I add something? I do eat in restaurants, and not only gluten-free certified places (however there are lots in Italy where I live). When I do go to a 'normal' restaurant, I tell them that I am celiac and ask them what I can have on the menu. The answer tells you a lot. The waiter telling you "not the fries because we share the frier for everything...
  15. alesusy
    Thank you, Kristen It's very good news for you and it's so encouraging for everybody else. Personally it's just what I need to hear today!
  16. alesusy
    thank you, steph. Very interesting article. I hope it is not my case, of course, but it's worth giving it a try for some weeks!
  17. alesusy
    Sorry for the outburst - it's a NO day. I believe that - as somebody aptly put it to me - I might be "gluten light" rather than "gluten free". I particularly believe it on such days as today (and the last two days before...), when I'm somewaht dizzy, blurry eyed and itchy all over and I wonder whether this is celiac or SOMETHING ELSE. I know it happened...
  18. alesusy
    Patience is the main thing. I don't mean resignation: I mean do not get scared if your symptoms take time to clear. Everybody's different. What I can tell you for sure is that if you manage to get really gluten-free, SOME symptoms should clear soon, in the space of a few days. My main symptom - gastro problems - is still there after 5 months gluten-free:...
  19. alesusy
    Oh I have, thank you. I'm OK now. One of the benefits of feeling generally better is that I deal better with "bad" days. I mean I'm able to think now "it will pass"...
  20. alesusy
    It's really a matter of being flexible, isn't it? I have some basic answers but they change with the situations. Sometimes it's OK to bring along your own food, sometimes it's OK to eat beforehand, sometimes it's better to deal with the caterers. If I do that, I will always speak personally at the very least to the waiters and more often to the owner or to...
  21. alesusy
    thank you. I am as careful as possible - I believe!. I do read labels carefully but of course there may be gluten in products where it is not specified. And it does happen that I have to eat out or at a friend's house. I try to stick to grilled fish or meat and potatoes. I must say, I spent two weeks travelling in London and Prague and I ate out practically...
  22. alesusy
    I mean, maybe I don't have to ELIMINATE THEM apart from an initial period of depuration but the fact is I've been having problems after consuming certain foods or rather, vaste quantities of certain foods and I couldn't find a connection but now it seems there might be one... especially coffee, cola, nuts, chocolate, strawberries and red wine! I had noticed...
  23. alesusy
    Amazing. Thank you. IAlmost 5 months gluten-free and I'm still struggling with periodic digestive problems and with new skin symptoms I never had before. I'll have a go at eliminating or cutting down on those foods...
  24. alesusy
    I'm almost 5 months gluten-free and doing generally much better in terms of energy, intestinal problems (bar bad days here and there), mental clearness etc. However I am very surprised to see appearing new symptoms which seem to be typycally celiac and I did not have before. Such as: irregularity of my menstrual cycle and, most notably, the appearing of small...
  25. alesusy
    Very hot topic for me. I'm almost 5 months gluten-free at this point and my periods are totally out of whack. They started in November, my last month before diagnosis, with a couple of 14-day cycles and one episode of long spotting before the period. Then I went gluten-free after DX and it got back on track. Last month, though, I had a 35 day cycle and this...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.