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Lisa

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Lisa last won the day on December 26 2018

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  1. Thanks for the link to the article, Momma Goose. That's interesting... I just started reading the site. Is there a subset of members here who don't have prominent GI symptoms?

    Also, can I change my diet after doing my Celiac screen or are there possibly more tests? It's really hard for me to keep eating wheat, etc knowing that it may be contributing to my problems.

    Thanks,

    Mike

    Hi Mike,

    Some here have been diagnosed with Celiac subsequent to other things such as diabetes, fibro., RA and other things. Many here only have neurological issues.

    You might be lucky and have an informed doctor. Unfortunately, many of us have not. If you test positive for Celiac, yes, you can begin or continue with the gluten free diet. If not, a GI may want to do an endoscopy/biopsy for further testing for Celiac.

    But the bottom line is, if you feel better on the diet, you most likely have Celiac Disease, a gluten intolerance or a gluten allergy. All require a diet of gluten free foods. A positive dietary response is also a diagnosis.

    Many here are self-diagnosed and feel good about it. Not knowing too much about you, I hope this is helpful. There is a vast amount of information on this site. Take a walk around. And welcome.

  2. Can anyone share some insight on how I should characterize myself? My blood tests had come back positive (all extremely high) showing gluten intolerance and suggesting Celiac Disease. My GI did a biopsy which showed borderline Celiac (as he called it)... some inflamed areas, other areas were fine. I decided to get the gene test done because I have 3 small boys and wanted to know if I carried the gene so I could have them tested as well. It turns out, my genetic test came back with a very low probability. So... does that rule out Celiac? If so, does it make sense to say I have a gluten intolerance? I have had such a positive response to eating gluten free (after about 3 weeks, I actually feel normal!) And what is the main difference between Celiac and gluten intolerance?

    Any advice would be greatly appreciated! :)

    Welcome!

    If you had a positive blood work, in addition to your biopsy result, your positive dietary response, you have Celiac. Any ONE of these things can diagnose for Celiac. There is no such thing as borderline. Ya do, or ya don't.

    There is a 20% change that you will pass on the Celiac gene to your first degree relatives.

    My best advise is to read, read, read from this site. It's the best around. And feel free to ask any question. That's why we are here. ;)

  3. i need to know the brands of some really good snack brands!!!!!!!!!!!!! all i eat right now r natural ruffles!!!!!!!!!!!!!

    i <3 them but they can get old!

    ~Anna Louise~

    This is a list of companies who will clearly list all forms of gluten. All you have to do is look for wheat, malt, rye and barley. It's easy.

    Open Original Shared Link

  4. Are they safe or not? There website states that the beef broth contains hydrongized (sp) wheat. I have read that this is not safe. However, I just read that they have been tested and pose no gluten responce. Help! My son loves mc donald ff! Thanks

    Great! You know both sides of the arguement. :D There have been very extensive discussions about french fries on this site. You can do a search. It has always amazed me that something as simple as french fries can birth such emotions and how important McD's is in the life of Americans. (Sorry, I digress. McD's has a long history here). :o

    It's a personal choice. I enjoy them without issue.

  5. Thank your for posting that. I don't think that I have ever read a response from Dannon.

    But, my preference is Yoplait who LABELS their product as gluten free. I really like to support those companies who do.

    BTW, any time you see Modified Food Starch (in the US) you can always assume that it is derived from corn unless otherwise stated as "Modified Food Starch (wheat)". Wheat must be listed if used.

  6. So according to the Pinkberry website, their yogurts are all gluten free. However, due to regulations they have different ingredients in California than in all other states. I was just in their store in Los Angeles and ordered some yogurt, when I noticed the ingredient "starch" on the list. I went ahead and ate it because I remembered seeing the gluten free statement on their website, but when I got home to check I found that they change their ingredients for California. Does anyone know what the deal is or had problems with Pinkberry? I emailed the company about it and I'm going to be really upset to hear that I can't eat it anymore! :( Hopefully it's potato starch or something...

    If it was dervied from wheat it must be listed. You mentioned that you "ordered" yogurt, so perhaps you were cross contaminated with dipping untensils.

    Starch does not concern me.

  7. If it were me.....I would rely on a 2008 listing, calling the company and reading labels. The bottom line is that you need to learn to read labels and not depend on lists, as they stated, things change frequently. Lists can be wonderful in the beginning.

    WARNING:

    Campbell's US and Campbell's CANADA have TWO DIFFERENT GLUTEN FREE LISTINGS. What may be gluten free in Canada, is NOT in the US.

    ....another reason to learn to read labels.

    Here is a listing of COMPANIES who will clearly list all forms of gluten:

    Open Original Shared Link

  8. McDonalds fries have gluen. :(

    .

    The Celiac Disease Foundation, the Celiac Sprue Association and The Gluten Intolerant Group have independently tested McDonalds French Fries and the testing showed no significant levels of gluten. There is a risk of cross contamination. BUT, this is a discussion for later and no need to overwhelm dreamindarlin.

    Some choose to eat McD's Fries, others don't. I believe it's a personal choice.

    Yes, it would be WISE to be tested. Continue to eat gluten until all testing is finished.

  9. Many of us have dealt with the shock that you are experiencing now, with with ourselves or close family members.

    I too, came home from the GI and looked it up on the Internet. I found this site and I haven't left. This place and the good people here will get you through this.

    Celiac can be diagnosed by three means: 1) blood testing; 2) endoscopy/biopsy; 3) positive dietary response. Other than the positive dietary response, testing is not as accurate as we would like. But, I believe that the envelope for a positive diagnosis range is too narrow.

    Your son does have Celiac according to his biopsy. He does not have to have surgery, nor medication to fix this problem, just a change in diet. Birthday cakes, pizza, grilled cheeses are still available with just a small adjustment. And, how lucky you are that you found an answer so quickly before other associated illnesses effected his young little life. Many people here have gone years and years suffering before they recieved a diagnosis.

    Also, please know that the tendency for Celiac is inherited. You might find that others in your family has similar issues, as well as you or your husband.

    The diet can be tricky in the beginning, but there are many of us who will walk you through it.

    It's not the end of the world, it's the beginning. ;)

  10. A lot of the main stream hot dogs are gluten free including Oscar Meyer. All of Boar's Head meats (including hot dogs) and cheeses are gluten free. Nathan hot dogs are NOT gluten free.

    Bacon, all you have to do is look for "wheat" on the ingredients listing. Barley, malt and rye would not be an issue in bacon. I buy Smithfield and Oscar Meyer bacon.

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