Lisa

So I am still wondering, has anyone tried the Gluten Digest pill or the Gluten Ease. The Gluten Ease is being sold in the Gluten Free part of the Store. I told you the pharmacist said it was going to do the job. Well I had blood work done this week and after being on Gluten Digest for 3 weeks all my blood work is Awesome, She even checked my Glidian Levels. Wanting to know if anyone else has tried it? My collage kid and my 13 year old is having the time of their life with NEW found foods they never ate before.

With all due respect, I think you are deluding yourself and subjecting your children to unnecessary risks.

Best of luck to you.

Yes, others here have had symptoms such as yours. The neurological symptoms seem to be the last to subside.

Lea & Perkins Worchestire is gluten-free..........

Lea & Perrins is gluten free in the US - NOT in Canada. (just a little added detail )

I clicked on the link that I posted and it came up for me. It's current, because the wind is blowing like crazy here and I got dizzy watching the bird.

This used to confuse me - the "no autoimmune response ". I'm gluten intolerant (negative biopsy). I have no other autoimmune diseases causing a leaky gut, but I definitely have what I would call an autoimmune response. e.g. twitchy legs, nights sweats, brain fog, aching joints, depression, extreme fatigue, brain fog, sometimes migraine. I also have malabsorption issue when eating gluten.

I have seen some recent papers on this but can't just find them.

Perhaps I really am pre-coeliac but I'll never know.......

I think the difference is one has caused visible gut damage - the other hasn't ...... yet.

A negative biopsy certainly does not rule out Celiac. The location of the biopsies can be hit or miss. I had six biopsies and two were positive.

I am impressed by your good memory Lisa!

It's selective, trust me! (just ask my husband)

After 5 months of trying to differentiate between the two, I still don't understand.

Is celiac disease differentiated from gluten intolerance in testing? I know celiacs can't eat gluten obviously. I assume gluten intolerant people have similar symptoms, but is there less damage? Does the severity of symptoms differentiate between the two?

I've been gluten free for over 5 months, with incredible results, so it doesn't much matter. I had overt malabsorbtion symptoms, along with brain fog, diagnosed "ADD" (yeah right) at 15 yrs old, and reoccuring depression since childhood, including stiffling anxiety (all of which have DISAPPEARED). Life-changing.

So it doesn't matter to me if I ever get officially diagnosed (no insurance anyway).

But this one point on the difference between celiac disease and gluten intolerance still bothers me.

This is according to my understanding. Celiac Disease is triggered by an autoimmune response from gluten and due to that response damage will occur in the small intestines.

A gluten intolerance will creat the same symptoms but there is no autoimmune response and no damage will occur. Although, it is often thought to be a pre-curser to Celiac Disease.

Thanks for the welcome! I went gluten free about 6 months ago and my life has changed so much. This is such a great resource. I've spent countless hours googling and searching different celiac forums over the past 6 months. So much to learn.

I *would* like to announce that today I found a GREAT substitute for Cadbury mini eggs, and as long as they still make this product, I will never even consider eating Cadbury. It's the Hershey's candy coated chocolate eggs. They look similar to Cadbury mini eggs, but they are just a little bigger. I think they taste GREAT! Just like mini eggs, maybe even better. And these eggs gave me NO symptoms. A happy stomach, all day long! Not even a FLUTTER of a questionable feeling. And it's been over 5 hours since I ate them. So I'm a happy girl today 'cause i loved the mini eggs. BTW, there's NO "natural flavors" listed on the Hershey's Candy-Coated eggs. None of the ingrediants on them look questionable either.

Yeah, but it's still a Hershey product (grumble, grumble, grumble)

*

Hello everyone,

I just had my endoscopy this afternoon which confirmed my Celiac (had tested a "strong positive" on my bloodwork from about 3 wks ago). The results revealed Duodenitis with ulcerations (lots); evidence of scalloping og mucosa as well. They took multiple biopsies, too, but those results won't be back for about 2 wks. My question is...what comes next? Should I contact my G.I. offices and ask to meet with the dietician? Or just dive right into Gluten-free eating? Any advice would be greatly appreciated.

Thanks very much,

Scott-in-PA

Welcome to the Club Scott!

Most of the information regarding the gluten free diet can be found here. With your biopsy concluded, you can begin the diet immediately.

I would recommend a good metabolic panel to see if you are deficient in vitamins and minerals and go from there. Start the diet simply. Meat, seafood, rice potatoes, fresh veggies and fruit prepared simply is a good start. You can add things as you master the diet. A new toaster is a must as is older wooden spoons and scratched non-stick pans which would hold gluten from your pre-dx'd time.

The diet is fairly complex overall. Learning to read labels is the only way to be safe and cross contamination is a common trap. Reading here is the best information you can find.

Again, welcome.

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I spelled them wrong. The chocolates are wonderful

I just got off the phone with an extremely rude Hershey employee. He first mumbled when answering the call, and when asked to speak up since I couldn't make out anything he was saying he was just plain out and out rude with lots of tone and attitude in every word he spit across the line. Jerk.

Anyway, the loser told me that any and all allergens such as wheat must be listed on the bag, so basically to assume there's no gluten in the product if wheat is not listed.

Now after reading this thread, I realize he was giving me the run around that all you seem to be used to and know how to get through. I'm still learning about the right questions to ask. So this thread has been very helpful.

I was debating getting another bag of the mini eggs today, getting so close to Easter and all, but I suppose not. This thread confirms my fear. A month ago I ate a couple bags in the course of 2 weeks, thinking they were gluten free but noticing just a touch of reaction.

I thought the reaction was in my mind since it wasn't a full blown attack. But I can see now my symptoms very likely came from that since my typically strict diet hadn't changed.

Welcome Schilds to the Forum!

I am sorry that you found a rude customer relations person. I have called many companies and most are helpful and considerate. It is obvious that the personal that you spoke with is uneducated about wheat vs. gluten.

I feel that something should be clarified. Hershey has NEVER said that their product and especially Cadbury Mini Eggs contain gluten. Rather, they have stated that they CANNOT CONFIRM that they do or do not.

I have eaten quite a few of them in the past and I have never gotten sick from them and I suspect that they are gluten free. This has been my own personal experience and it may differ from person to person. But, with the current disclosure policy of Hershey, I will no longer purchase their products.

Glad that you have joined us.

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Spring must be here. Virginia's annual Eagle Cam is up and peeping into the nest. This is wonderful to watch.

I just had some Chocolate Skiddles yesterday....they are wonderful. AND, they are labeled gluten free.

Gin,

Keep in mind that neither of the test are 100% accurate. The biopsy can be hit or miss and the blood test can vary greatly. Make sure that these are the test you need to have for the Celiac Panel:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

If the blood test returns negative for Celiac, try the diet. The diet in itself is a diagnosis for Celiac Disease of gluten intolerance/allergy.

The bottom line is to feel better, whatever you may call it.

My dad bought me a second hand bread making machine by Oster. I'm not sure how to bake the bread for a gluten-free diet. It does not have settings to make gluten-free bread, so I'm not sure what settings to enter. Do i use settings for white bread, wheat, sourdough????? How long do I bake it? Is there a web site that explains all this, with how to bake bread with a bread machine?

"A second hand bread machine" draws a big concern from me. It is very difficult to clean a previously owned bread machine and the chance of you being glutened by cross contamination would be great.

Thoughtful of you dad though.

Although every ones reply is helpful , the original post is four years old and perhaps no longer relevant.

That's one of the odd things about a message board, our queries can live forever.

I'm glad that you're feeling better. Every day gets easier.

Lisa was correct (as usual)....as of this thread below, (2006), M&M's contain wheat glucose in New Zealand.

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What a memory

OK....recently it was posted that "wheat glucose" is considered gluten free because of it's refinement. Maybe Kaycee CAN eat those M&M's???? ramble, ramble, ramble....

Oh, yeah....no crunchy M&M's.

Lisa was correct (as usual)....as of this thread below, (2006), M&M's contain wheat glucose in New Zealand.

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What a memory

Yeah, an obscure memory about M&M's in New Zealand. Odd

Patti, do you remember that we had a member from New Zealand who said that M&M's are not gluten free there? Or am I dreaming again.

Your PMS symptoms may be turning into perimenopause symptoms. I began with Peri symptoms when I was 35 and it ran for a good ten years when I advanced to the big Menopause.

I think that the hormonal change makes you more sensitive to everything. (feel free to ask my husband)

As many have noted, Hershey will NOT disclose the source of their "Natural Flavors" due to it being outsources and they consider that information "Propriety" and not subject to disclosure.

ALL of Hershey products that contain "Natural Flavor" are NOT considered gluten free, as per the company's customer service supervisor.

Pity

Hershey should be removed for the company safe list of those who will clearly disclose.

Hello,

I'm confused about what my Doctor has tested me for and what vitimins I should be taking supplements for. Apparently all my bloodwork comes out looking good, but I don't think I'm being tested for some vitimins I should be checked for. I'm still very fatigued all the time and think this is the reason. All the numbers below are within range so I didn't bother posting everything, but this is what I have been tested for. Please help with suggestions. I'm making an appointment tomorrow and need some answers. I should be feeling better by now, but am still really tired. Thanks!

WBC

RBC

Hemoglobin

Hematocrit

MCV

MCH

MCHC

RDW

Platelets

Neutrophils

Lymphs

Monocytes

Eos

Baso

Glucose Serum

GLom Filt Rate

Vun/Creatinine Ratioj

Sodium,Serum

Potassium, Serum

Chloride, Serum

Carbon Dioxide, Total

Calcium, Serum

Protein Total, Serum

Globulin, Total

A/G Ratio

Bilirubin, Total

Alkaline Phosphatase, S

AST

ALT

On my own, I've been taking a multivitimin, extra C, Calcium, Magnesium, Zinc, D, B12 and B6. I have not taken any probiotics or enzymes yet. Are these necessary?

Hi Joni,

I am by far an expert!!! Have you been tested for Thyroid? I believe that low thyroid could cause fatigue. Here are the tests I had:

TSH

Thyroxine (T-4)

T3 Uptake

Free Thyroxine Index