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Lisa

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Lisa last won the day on December 26 2018

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  1. Welcome to the forum!

    You most certainly could have a wheat allergy or a sensitivity to wheat. Some researchers think that a sensitivity may be a precursor to Celiac Disease. Celiac can have over 200 symtoms. The Celiac Blood Panel is not aways considered 100% accurate. The blood test can rule Celiac in, if possitive; but, it can't rule it out if the tests are negative.

    The bottom line here is that you feel better off of wheat products. It's sort of like stopping beating your head against a wall - it feels so good when you stop. :rolleyes:

    Your best for a diagnosis either for a wheat allergy or sensitivity is a positive dietary response. And you already know that answer.

    This site is a great source of dietary information. Take a walk around

  2. Have you considered taking her to a naturopathic doctor and maybe trying a saliva test for celiacs? I have been diagnosed this way and was off gluten for 2 months before the test. I tested extremely high positive and the naturopath says he sees alot of false responses from the blood work and the endoscopy you have to be on gluten for as well. Maybe something to consider. I would try her on a gluten free diet and see. As well she could be reacting to soy,dairy,citrus and eggs. These are all things i also have to be off of with the celiacs. Good luck!!!!!

    BRob66,

    A saliva test cannot diagnose for CELIAC(no S).

    There are three means to diagnose:

    1. Celiac IgA Panel - Blood Test

    2. Endoscopy exam/Biopsy

    3. Positive Dietary Response

    Carolinse,

    A blood test would be a start, but you must understand that they are known to be unreliable in children as young as yours. You also might look into gene testing. It can be done through Enterolabs.. Many here have taken that road. And thirdly, you can take your little one off of gluten and see is there is a positive dietary response.

    I would encourage you to speak to your doctor. We are not doctors and there may be an unrelated issue that has nothing to do with Celiac.

    I hope your find your answers.

  3. blueeyedmanda,

    You can use your gas stove withhout electricity. Use a kitchen or fireplace match. Do not use the matches that come in the little books. Light the match, put it by the burner and turn on the gas.

    I hope the weather improves.

    From Sunny Southern California B)

    Phyllis is correct. Like she says, light the match and THEN turn on the gas.

  4. Sorry..Here is the ingredients...cured with water, sugar,salt,potassium lactate,brown sugar, sodium phosphates,sodium diacetate,sodium erythorbate,sodium nitrate. That is all that it says. Thanks Jodie

    It does not indicate any gluten. By law, if is contained wheat it would have to be listed.

    If you don't feel comfortable with the pre-prepared glaze, a homemade glaze can be used:

    Brown Sugar

    Can of crushed pineapple with juice

    Cinnamon

    Cloves....heat to blend ingredients and glaze ham while baking.

  5. According to Dr. Chaitan Khosla, who spoke at the Celiac Disease Foundation 2007 Conference:

    "Celiac disease is not an allergy. This is a disease where the severity of the disease correlates with the exposure. How do we know that? There are many studies that have been done over the past 20 years and perhaps over the past 35-40 years that show you can reach the same degree of severity with a little gluten over a long duration or a lot of gluten over a short duration. It's cumulative."

  6. So why haven't you seen him yet????

    Look, if you complain about not being able to obtain emergency care, and then the one doctor who seems to have a clue tells you to come back AS SOON AS POSSIBLE, you should go back AS SOON AS POSSIBLE.

    I'm sorry, but the fact that you haven't gone back, or even called him back, makes you look like a total flake!

    Is your health important or not?

    Alison, I don't know what you are trying to achieve by your harsh comments and name calling. Motivations possibly. I found it extremely harsh toward a young person with concerns and in distress.

  7. I would like to add something here. Gluten is very tricky and it can hide everywhere. It would certainly expedite you healing time if you eliminate all possible exposure to gluten. This is a disease where the severity of the disease correlates with the exposure. I have found it almost impossible to be 100% successful in the beginning because there is just too much to learn with too many traps.

    Stay at home and cook for yourself if possible. Keep your meals simple. Go dairy free until some healing has taken place. Make sure that your cookware is not scratched, new wooded spoons, new toaster and colander. Check your toiletries and your medications (vitamins) as they can hide hidden gluten....anything that can get into your mouth.

    I recall it took me at least six months before I was comfortable to travel with confidence out of town and away from my designated stops. Two and a half years later, I consider myself in remission and life is good.

    It wasn't always easy, but there is a light at the end of the tunnel.

  8. Hi all-- I have a wierd symptom (for me, at least.) I am wondering if what happened was gluten related (I ate some rotiserrie chicken from the supermarket and I may have gotten some of the marinade from the skin at 6pm the previous day) or if it is the flu. It has not happened to me before. I definitely have the flu that is going around-- aches and respiratory symptoms. But others who got this flu at work did not report the stomach part... just stomach pain.

    Basically, my stomach swelled up with gasses that worked their way out with painful burps, starting in the middle of the night. This increased until I finally threw up at noon. It was almost like a valve in the stomach got stuck shut or something. I am much better today-- felt much better after getting sick too.

    Usually gluten just results in diarrhea for me and it happens within about half an hour of eating the offending food, so if it was gluten, this is a new one. Or could it be that because things are messed up from the celiacs that the flu affected me like this?

    Lisa16

    "I may have gotten some of the marinade from the skin ..." Lisa, I certainly hope that you did not take the skin off the chicken and ate just the meat. If so, you most definately could have gotten glutened. Many rotiserrie chickes do contain gluten and it will contaminate the meat.

    Also, you may find, as you continue with your gluten free diet, that you symptom may change after being glutened.

  9. SNOW!? What in the world is that???

    Yesterday, it was 78 degrees F and today 75 degrees and yet tomorrow it is to be 77 degrees. Talk about squashing the Christmas feeling. :( My daffodils are eight inches tall and the cherry, forsythias and dogwoods are budding out. Sheesh.... (makes sme wonder what we are doing to this good earth <_< )

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