Lisa

Hi all! My name is Lissa, and I'm sixteen. I've spent a bit of time lurking and finally decided to post.

So I had the blood test for Celiac at the beginning of the month, and I finally made an appt to find out the results for the 25th. If I did infact have a postive result, do you think my doctor would asked me to make an appointment? (she has a strict rule about never giving out results over the phone as then she doesn't make the money from the appt)

Anyways, I came across this site while researching Celiac and have found it very helpful. (Thanks!) I've also found you to be very knowledgeable, so I'm asking, what do you think?

I'm sixteen years old. I'm obese (about 250 pounds) but I'm an avid horseback rider and am always running around the barn. I'm about 5ft5" and have never menstruated. GI diseases run in my family, my mother has Crohn's and we're pretty sure (while they were never tested) that my grandmother and greatgrandmother had Celiac.

I have diahrrea several times a week, I'm always tired, and I feel bloated/cramped quite often. But I have to admit, I don't have the greatest eating habits (I'm a fan of carbs) though. I can remember being sick every once in a while for no reason (the diahrrea) from about 11 years old and on. I go through a bottle of Pepto Bismol a month. I don't know if these are bad eating habits, or if it's an underlying problem, which is why we had me tested. I also have bad gas and headaches (although, I can't really be sure if the headaches are a symptom or from my other disorder, Adie's Tonic Pupil - in which my pupil is unreactive and dilated so I cannot focus in light). I'm not sure of any other symptoms.

Anyways, if you could let me know what you think, that would be great. I'm getting quite anxious over this whole issue and I would like some opinions from knowledgeable people. If you have any other questions, please, ask away. Thank you so much.

-Lissa

Hey Lissa:

I am glad you found us and double glad that you are learning from these great people. Well, you certainly have may symptoms of Celiac...headaches, diarrhea, aches and pains and certainly not so good eating habits. All can be signs of Celiac. I know that I used to use glasses to be at the computer, now I don't have to anymore. That's a good thing.

I would recommend not to go gluten free until you recieve your testing results. But in the mean time try to learn as much as you can from this site. If, in fact, you do have Celiac you will a jump ahead.

Celiac of gluten free is definately a life style change. But, I must say a good one. It can relieve your symptoms and helps you eat alot more heathy. After a while, you just feel soo much bettter. It's a little tough in the beginning, but every day it gets earier.

There are a lot of people here that can help you walk through it.

Glad you "de-lurked"

My daughter has not technically tested positive for Celiac, but she did test positive for gluten sensitivity (as well as casein sensitivity), and she has two positive genes for gluten sensitivity. In trying to explain all of this to both sides of the family, as well as friends and teachers, what is the best way to explain this?

Please tell me if I am wrong, but I thought that the difference between Celiac and having a sensitivity to gluten is the intestinal damage? That Celiac will cause intestinal damage but that a sensitivity will not necessarily cause damage? Though she sure does get sick from consuming gluten.

My sister printed out the list of Celiac safe foods and not safe foods from this site, and when I showed it to another family member over the weekend, she said that the list was for Celiac and not gluten sensitivity. Ok, true. Can and should people with gluten sensitivity follow the same guidelines as people with Celiac?

And we are having our daughter allergy tested for gluten and casein. As it stands right now, her docs don't accept the Enterolab results stating she is gluten sensitive. Though I have so much info in my head, that I'm not even sure what the difference between an allergy and a sensitivity is anymore.

Thanks again. Natalie

Whether diagnosed with Celiac or gluten sensitivity, the diet is the same. You are correct, with Celiac if you ingest gluten you will have intestinal damage, with a sensitivity you can have the very same symptoms without intestinal damage. It is often confusing to learn or explain.

Hey Lynne:

If I don't talk to you before tomorrow...MAY THE FORCE BE WITH YOU!!!!!!!!!!!!!!!!!!!

I've taught English as a Second Language on and off in various capacities for over 15 years.

This year I took a year off to regain my health and focus on my other career as a Family Manager .

Now that I've regained my health, I'm enjoying spending more time supporting a very small Japanese church in their efforts to reach out to the Japanese speaking community.

COOL

I just got a really nice bread maker from Williams and Sonoma. I would like a great recipe if someone is willing to give it up. Thanks!

I would wait until Monday. The forum is usually quite on the weekend, let alone Mothers Day Weekend.

Baking is not one of my activities. But, there are many of our members do. I am sure they will post.

This topic was started several years ago. We have so many new people on the forum and I thought that it would show some insight. I remember, it did for me. We had homemakers, scientist, engineers, medical techs, therapists, lawyers, teachers, nurses, MD's, professors, stay at home moms who home school.

It is so interesting that we all have a common bond, yet we do.......(I'll leave at that)

I raised my kids in a small NC town and my husband worked for a major airline and he was MIA a lot (especially during the teen years ). I was always involved in community projects. For several years I have been involved in our local Preservation Commission to insure the historical integrity of our town.

What do you do?

I would rather see your beautiful face than a hockey player.

Thanks, Lisa!!!

lol...the funny thing is that we have looked for a different wedding band for me.

However, a very nice 2007 Toyota Camry is looking to be parked in my driveway, sometime between now and mid July....so I'm going to count that as my gift .

3 years....hard to believe. I was sick at my wedding with undx'ed Celiac....dx'ed 3 months later.

THREE YEARS, NO WAY! (yelling), man I gotta get a life. Looking for a project, any suggestions? I am a little depressed this week. I went to Roses to get a shower curtain liner and they gave me the Senior Discount and didn't even ask my age - I don't qualify. So have fun now, it gets a little pitsy in about 30 years.

Guess this whole thread is off topic in so many ways, but fun.

Ann, hope we have cheered you up a bit. Appparently, there are screws loose in many of us and I am first to stand up.

Congratulations on you anniversary! It truely a monumental task.

THREE CHEERS FOR YOU.!!!

Thanks for the laugh, Lisa :)

So our anniversary is may 30...right before the full moon

Wow, how time flies. Laura, tell that handsome hubby of yours that a nice diamond studded anniversary ring would be quite appropriate, a necessity when you go to all those black tie event in the city. Gotta keep up girl! (You get the good stuff in the early years and as the years pass you get the weed-eaters and leaf blowers).

If the date slips by me, I hope that you have a wonderful celebration.

xxoo

I've made my first cake from scratched, gluten-free of course, and it was really good! Some of you have read my whining about the brownies I tried to make and feed the dog. I am so excited! Just had to share.

Jo.R, I am so sorry, we just missed you birthday. Happy Belated Birthday!! To sit down and have a big piece of homemade birthday cake is a gift in itself.

How long have you been married?

Close to 30 years to a part-time husband for 26 (he traveled three to four days a week overseas) now he is retired full time. I have twice as much husband and half as much money.

Don't know if this is much help, but for me (recently discovered dairy/cass issues) it take a few consumptions to react, or a more generous serving. As in today's lunch: I had salad with my own gluten free blue cheese dressing, mimosa (could be Tropicana, gluten related) and creme brule. As we speak, I am about half the size of the Hindenburg.

But he still has to eat the Altoids.

Ya'll are grossing me out!!! shivers - been married way too long.

Lister:

You sell yourself short and it is too easy to cop out. So you have had a crappy upbringing, so your on your own, so you don't have any support that may be just the way it is.

Does that mean that you have to carry that burden on your back for the rest of your life...NO!.

Quit living under a blanket of crap and grab your life again. It's all attitude babe, it's all attitude. Only you can pull yourself up.

You can look into public housing and it is salary based. Contact you local public service page in the phone book.

Find a local Community College in your area and many companies support classes and it guarantees employment on completing the coarse.

You have so many options here. Please don't cop out, get your butt motivated.

You got something to prove, or are you gonna be a slacker. I bet on the prove side

Hello everyone, I just randomly came across this sight and it seemed like a good place for some info.

Here's my story about two years ago I was diagnosed with PPD and anxiety. a couple of month later I began to have new symptoms such as, finger and tow tingling, all over pain, sharp joint pain, weekness to the point of not being able to walk, falling over. Recently my sight is starting to go. I've been diagnosed with Fibromyalgia.

Two weeks ago my doctor said to try to go Gluten free and see what happens. I had the blood work a couple of years ago and it was negative. So I've been gluten free, I think for about two weeks.

My anxiety seems to be clearing up and I seem to be thinking a bit more clearly. But my body still HURTS and my eyes are getting worse. I also don't seem to have the traditional tummy problems.

My questions would be does this sound like Celiacs to you?

Wouldn't the blood test show it?

Is it worth it for me to move on to more invasive testing?

If anyone has any thoughts I'd appreciate it.

Thank you.

Welcome

Some of our member are asymptomatic regarding the intestinal issue. And many more are self-diagnosed.

The Gold Standard was considered the endoscopy and biopsy to confirm celiac, but now the research is indicating the true diagnosis is positive dietary response, as testing can be inconclusive.

I was confirmed by biopsy, having no knowledge of Celiac prior.

I would recommend that you do a full blood work up and see if there are any nutritional deficencies that might contribute to your symptoms.

If you choose further testing, you must remain on a gluten diet, otherwise the testing will not be as true. If you just want to feel better without testing, continue on the gulten free diet and see what happens. For some people it's important to get a medical diagnosis. That is your choice.

You have found youself on a wonderful site. Most doctors don't have the information that these good folks have. Read from here on the posts and if the shoe fits..... ask away.

Pedro:

When I first started the diet V-8 Juice bothered me and I presumed that it was just a little bit too much acid for me. Now, I have no problem with it and drink one daily.

I have never used Amy's so can't advise on that. All of Classico sauces, both white and red are gluten free. Maybe you can try those after some time.

Now- I tried calling the dr's office but they had already left for the weekend. Now we just have tp be wheat free- does that mean he can have white flour ??? Because we can have gluten. Please help. Trying to figure out how to make bread for him. He hates the gluten free bread but if i can make it with regular flour that would be great. Any help would be great thanks

sarah

Sarah:

You need to talk to your doctor and get some defined answers. What test has he done? What are the results? What is your doctors opinion?

Negative for Celiac, but have a wheat allergy is not saying anything much. You need to define this a little bit from your doctor.

After you get those answers there are some things that will be helpful to you.

Most all flour are wheat based....white flour, wheat flour are all the same. All is dangerous for someone who has Celiac or a wheat intolerance/allergy.

Make sure that you call that doctors office on Monday morning and ask:

I want the result of his tests

What does that mean

Do we need to do futher testing.

Get those answers first , that's a good start.

But to answer your question about wheat bread vs. white flour bread...NO

You have found you self a great source for informatin. Tried and true! Welcome and please feel free to ask away.

Please - recheck the pringles chips. Lays Staxx are produced on a dedicate line.

A LITTLE bit goofy?????!!!!!

A horse walks into a bar . . . . .

Bartender asks: "Why the long face?"

Just warming up. Haven't gotten to the "hind lick maneuver" stage yet.

ONE BIG MASSIVE ALTOID??????? My question would be "which party will be the recipient of such a curiously strong peppermint? Simply a question, that's all.

And where is... I presume it is the mail MAN.

LLB:

Congratulation! You are now in control of your own health without the needs of a mirage of drugs. What's not good about this.

Yes, there may be an adjustment, but it is very doable. Perhaps you can find that hidden creativity in culinary arts. Eating out can be done, just with careful attention.

I certainly can understand you being overwhelmed. That's very natural.

Going gluten free presented a series of events/feeling for me.

1. You madly learn everything you can get you hands on. That will take several months.

2. You learn to read labels, call companies..you best friend is a www. address or a 1 (800) #.

3. You learn your staples..certain products that you can trust (we can help with that)

4. You settle in with you diet, can have people over for dinner with gluten free dinner and they don't

even know.

5. Sometimes, you will go to the grocery store and get really angry, perhaps cry and just kind of mad

with the world feeling.

6. You learn to dwell on the positive side and ignore the negative.

7. Acceptance and comfortable with your choices.

I was diagnosed at 50 and 52 now. You can do this and we have the best support system available anywhere. Including the most knowledgable celiac experts you can find....right here.

Please feel welcome and as I know you have many question. Your questions will be answered by the most informed people you can find.

Welcome to our world.

I don't know whether this is celiac related, but it is high pollen season where I live. In the early evening, I have to take out my contacts especially when the wind is blowing. My eyes get very irritated.

I have learned that all road don't necessarily leads to Celiac.

I have to give you all my sympathies and all the kudos that I know. Being a teacher has got to be the hardest and least acknowledge profession in the world. I have had my little one-two with a few teachers, but never without respect. (well, yes a few who verbally demeaned my children)

You deserve a wonderful summer respite. I hope it's a wonderful one.

Jessica:

You had a blood test that was positive for Class II Wheat allergy. I am not familiar with Class II. Maybe someone else knows what that means.

Do you know the type of test that you doctor ran?

Sounds good. Just a reminder, slowly.