Lisa

Lister:

How about a Hiatal Hernia. You said sometimes it bluges out below your lungs and you have to push it is and it makes a gurgle sound. I have the same thing.

Also, if your are drinking all that water, your washing all the good stuff out of your body. And go to the drug store and get some B-12 pills. That was the cause of my dizziness.

One way or the other, we're gonna get you well.

Lisa

I have used McCains Irish Oats in cookies without an issue. There has been reference from those before on some of the posts. They do not have a cross-contamination issues that US oat do, according to what I understand.

The issue is not necessarily with the oats itself, but in the grown process as farmers rotate their fields with oats and wheat. Therefore, there is strong evidence of cross contamination in the processing. There may be others that have a sensitivity to oats as well as wheat.

I am sure that others will post with more information for you.

And Welcome

Got any room in your suitcases?

This is exactly why I took the angle of trying to educate the insurance companies as to the effects and financial ramifications of celiac disease. If we wait for the pharmaceutical industry to do anything, we will be waiting a lifetime, but if the insurance industry clues into the amount of money they are losing to this disease, they just might be a strong enough voice to start the ball rolling on educating the medical community.......

Karen

way to go!!! Candian and US health care are a world apart.

Lister:

Good to see you back with us.

If you have a change to get the flu shot, it might be a good thing to do.

Hope you're doing better.

Lisa

Yeah. I would bring my own food and sit down at the table with them. They have chosen a place that you are not safe nor comfortable with. Politely eat your own food and engage in conversation. After all, there may be a wee bit of guilt factor here and maybe next year they will be more sympathetic. ...maybe

Lisa

I am not as informative as the previous posts and I state this up front.

I also think that the reason for the lack of knowledge within the medical field (with the exception of those that study celiac/sprue), is that there is no money in a cure. I don't want to offend any one here. But, I feel that the medical arena has a domino effect. Research needs funding, funding comes from the pharm.(sp) industry. The industry aids and informs the medical community with new drugs for various ailments.

I many have this in all the wrong order. But there is no financial incentive in the cure, just strick diet change. Hence, no pill to cure.....as well as no incentive and we are lost in a world that won't generate monies for all.

Money makes the world go round

Wendy's chilli and baked potato are gluten free

Hugs to us all!!!

I think what bothers me the most is when good friends don't seem to care. Come on, how difficult to make chilli with corn mesa instead of wheat flour. Oh, yeah my circle is getting mighty small.

"I have not heard of gluten guard until recently. I have concerns about their accuracy."

I'm also not familiar with gluten guard, but do you have a specific reason for being concerned about their accuracy? Like, do you know of somebody who's found problems?

richard

Richard:

You may recall, within two weeks or so a member posted regarding Hellman's Mayo, and stated that Gluten Guard says that it contained gluten.

Other, than that, I have no personal experience with Gluten Guard and only heard of it once in this recent post that I referred to.

I have not heard of gluten guard until recently. I have concerns about their accuracy.

I know that many people use Clan Thompson information.

Creme Brulee......ug, I will not stand for that. (unless you are diary intollerant, it should be gluten free)

.......back to reality.

I'm honestly surprised at how shallow people are as well. I live in rural America and nobody has ever even heard of celiac. "Celi-what?!" My closest business friends are telling me to just lighten up and maybe I won't be so sick all the time. They are recommending that I go ahead and eat the forbidden foods and I will feel better. Some have suggested I stop being so stubborn and just take the prescription drugs for masking the symptoms. Some are offering nutritional supplements, convinced that they will surely fix this. Others have even suggested that maybe celiac isn't a "real" disease anyway and is probably just a new fad. My family is completely ignoring the whole thing. I make everyone else's regular food and then eat alone most days. I'm disappointed. I really thought everyone would jump in and help me take on this challenge. But I guess it's all mine.

I think I'm still in mourning. Food was a BIG HUGE deal for me. And along with that, the accompanying fellowship of family and friends. With the discovery of multiple permanent allergies, all of a sudden I can't eat most things I've grown to love EVER AGAIN. That's a long time. And the reality of it is just now starting to hit me.

Your last paragraph really grabbed me. (Talking to myself). I have spend the most of a year plus, with attempts to feel better. Now that I do........should I be angry or should I be grateful. I don't have the answer to my own question tonight, perhaps I may when this day is done.

I willl have to read through this whole post, sounds fun, but have one for you:

On a road trip and eating at a new restaurant. Talked to the manager and he talked to the chef. He appeared fluent with the gluten stuff, as waitress was standing next to him while the conversation was going on.

We order. "My husband and I will share the filet and please put the demi-glaze on the SIDE so my husband can enjoy it"....."no problem".

When it arrived, the filet was plopped on top of the demi-glaze sauce. Call the waitress over, "I'm sorry, I can't eat this, as I asked that the sauce "on the side". I just died when she said this, "Well, it's not actually on the side, just under the steak".

My husband talked to the manager, who was somewhat familar......new steak and some really good wine on the house. They should have fired the dumb a$$. Who knows?

Bev:

Glad to here you have a great hook up with the suds.

I will be more festive tomorrow, but tonight I want to biach.

I live in a town of 6,500 people, have three privately owned resaurants with no chain restaurants. No gluten free menu here, for sure. When we go out with friends, it's hamberger, dressed no bun; king crab leggs; or,small broiled seafood combo. I can not tell you how sick of that I am.

I frustrate Jim totally, because I still want to go out. Not for the food, but you see everyone in town on Wednesday night and it's fun. ( We are not podunk here, but rather cosmo for a small southern town).

I guess I just an experiencing a "mourning attack".......sauces and creams and french foods, drool.

OK, reality check: I cook better than any restaurants in town. And, for that matter, we have had more wonderful meals since gluten free.

I think that I am typing myself out of my "own" funk. Shut, the power of words.

I'm Chill'in and looking forward to tomorrows Beef Stew. It's good, easy and I will post.

Thanks Metta:

It has been a very frustrating day for me. I zapped my post, because it was TOO reflective of my mood.

There are so many ups and down of this crazy thing that we all have. But when, last night, a "friend" brings some homemade, sausage italian bread and says, "I know you can't have this, but just smell it and see how good it is" and slides it by my nose....really pisses me off. I am angry at them for the inconsideration, but I am also mad at me, frustrated and angry.

I'm frustrated that I have to be one to entertain. Most people are afraid to cook for me, but also, not willing to ask or to try.

Just another day in Celiacland.

I had my endo today, and to my surprise the GI said that I have acid reflux. I have never had any issues with heartburn or anything related to it. He immediately prescibed nexium, but I am not in favor of taking medications if I can avoid it. I need to do some more research on reflux, I guess, so I can determine how necessary it is. I was out of it, so I didn't get to discuss it with him...he talked to my husband.

The GI did not see any evidence of celiac, so we'll just wait on the biopsy results and go from there. At least this is done so I can carry on with trying a gluten free diet!

He must have seen evidence of gastritus, which can be seen by having acid reflux.

I know that you are glad that it is over. Let us know about the biopsy reslts, and hope you are feeling better gluten free.

gone

Kris:

For obvious geographical issues, please be my ears.

Over the hump now, down hill from now!!!!

Hey Ladies and Richard:

On the topic of eyes....

Since going gluten free for over a year now, I don't seem to depend on my (20) grocery store reading glasses near as much as I used to. My reading/focus ability seems to have improved.

Any witnesses out there? Can your eye sight improve, ever so slightly?

(I just read the last page, so if I am interupting, sorry )

Lisa

Hi everyone,

I should know the answer to this already, having been gluten-free since the summer of 03', but I've always avoided most nuts, thinking they were somehow not safe for us Celiacs. I thought I had read somewhere a long time ago that macadamia nuts especially were not safe. I know this makes no sense and I must have been reading a very unreliable site at the time, but I wanted to ask if nuts are a part of your diet and what brand you eat. I have a can of Planters Deluxe Mixed Nuts here (made by Kraft of course) and there's nothing on the label that would scare me, but since this hasn't been a part of my diet for so long I wanted to double-check and get some opinions. Thanks!

If it is Kraft and no gluten listed.......it should be fine.

They are saying it is a pre-existing and/or genetic condition and not elegible for coverage. Does not matter that we knew nothing of this.

I personally think that is a bunch of crap. You are getting a biopsy to confirm a diognosis. Be persistant and get a letter from your doctor. There is NO reason why they should not pay.

I just wanted to add to be sure that you have someone with you who can relay what the doctor will tell you.

I remember him being present, but have no recall what he told me.

Good luck

The doctor can tell you what he saw during the scope, but the biopsy (ask for 6 - 8 samples) will have to be sent off to be tested.