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mamamonkey

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Everything posted by mamamonkey

  1. mamamonkey
    Hi all! I am newly pregnant (6 weeks). I have been strictly gluten free for about 2 years (since official dx) Since I have been pregnant, my gut is way not happy. I'm having some of the same symptoms I had pre dx (D, gas, belly pain). I am absolutely sure I have not been glutened. I have been eating more dairy than usual bc it's a quick protein snack. I...
  2. mamamonkey
    I'm not an expert, but I have noticed that the longer I am strictly gluten free the more sensitive I am to smaller and smaller amounts of contamination.
  3. mamamonkey

    ARCHIVED Migraines

    mamamonkey replied to Hyper1's topic in Related Issues & Disorders

    Going gluten free did help my migraines some. But, then they came back. My neuro says that almost every migraine sufferer is magnesium deficient. I take MigRelief which is a supplement that contains feverfew, B2 (I think, it's riboflavin, anyway), and magnesium. This has helped along with my preventative meds.
  4. mamamonkey
    I'm another one who gets (well got) sick every time I ate there. Despite employees changing gloves, washing hands, etc. I just gave up. It would be nice to be able to eat there since the rest of my family loves it and it would be a nice place to add to the few on my list that I know are safe. Oh, I am in the DC-NOVA area as well.
  5. mamamonkey
    Mine did get better going gluten-free (took about 4 months to be completely resolved). Now, that's one of the ways I know if I've been CC'd or accidentally glutened (along with some other not so nice GI sx), it comes back.
  6. mamamonkey
    I did not have any problems with dairy until I went gluten-free and started to heal. Now, I am slowly getting to the point where I can tolerate a small amount of dairy. But, if I over do it, I have almost the same symptoms as I do if I am accidentally glutened, except the headache.
  7. mamamonkey
    My first symptoms to go were chronic D, nausea, pain after eating, and bloating. I lost a pants size in the first month just from bloat. Migraines took a little longer to improve, but did improve (and then came back...yuck). I had a rash on my hand that cleared up after about 2 months gluten-free (pretty sure it is just eczema and not DH as it was not blistery...
  8. mamamonkey

    ARCHIVED Johns Hopkins Ped Gi

    mamamonkey posted a topic in Doctors

    Any recommendations? Our lovely (read with a LARGE amount of sarcasm) has decided not to approve my son's referral to his ped GI at Children's. I am trying to talk hubby into using the POS option and paying OOP for the visit, but he's not going for that at the moment. So, our option now is Hopkins (our plan is affiliated with them). Dr. Carmelo Cuffari...
  9. mamamonkey
    Actually, the biopsy could possibly still tell you something. But, it's an invasive test and there are risks with that, so you would have to weigh the risks/benefits. I had to have both endo and colonoscopy for other reasons. I had an endoscopy at 5 months mostly gluten free (mostly meaning a cheat every 3-4 weeks and not watching CC at all) and I had Marsh...
  10. mamamonkey
    My endoscopy and biopsies after 5 months gluten-free showed increased interstitial leukocytes (I did eat gluten the week before the testing, but not a whole gluten challenge). With this and my positive dietary response (see my sig for why I went gluten-free to start), my GI dx'd celiac. I wish my PCP (not my current one) had let me go to GI Dec 2011 when...
  11. mamamonkey
    Um, I just was diagnosed this year and I'm 34. So, 33 is not too old. I didn't have any problems until after my pregnancy. So it may be that you just had a trigger in the past few years. Endoscopy is where they go down the esophagus and look at the stomach and duodenum (first part of small intestine). The biopsies they take from the SI will show if you...
  12. mamamonkey
    I wouldn't do it. Is getting another opinion an option?
  13. mamamonkey
    EGD and biopsy were done at 5/6 months mostly gluten free (meaning the occasional cheat and not paying any attention to CC). Biopsy showed interstitial lymphocytic infiltration which was nonspecific, but could indicate partially treated celiac. This combined with my gluten-free diet response is what led the GI to dx celiac. So I guess so, sort of?? GI...
  14. mamamonkey
    It won't make any difference in my choices. I will still be gluten free for the rest of my life. I want to know b/c I have a child and no one in my family has ever been dx with celiac. I also want to know b/c then I can encourage them to be tested for celiac too (my GI thinks my mom should be tested since she has osteoporosis and had autoimmune hyperthyroidism...
  15. mamamonkey
    Has anyone done the genetic testing through Enterolab? My insurance company and I are going round and round and round about the genetic testing that my GI doc ordered. The Enterolab price isn't bad, so I am considering going that route if I can't get anything done with the insurance.
  16. mamamonkey
    I'm not sure where you are in WV. I'm in the Eastern Panhandle. My little guy sees Dr. Benny Kernzer at Children's National. We love him. He sees patients at the outpatient clinics in the NoVa and Rockville, MD area. ETA: Part of the reason we love him is that he is very conservative and is not in a rush to do procedures.
  17. mamamonkey
    What else is new, right? Anyway, for the last week, my tummy has been in a major uproar. I've had a bout with migraines and vomiting, so I've had to take Zofran which tends to constipate me, so I thought it was just that. Took a Senokot which had a little help. Still very bloated and still constipated. Have been dairy lite (mostly dairy free and doing...
  18. mamamonkey
    I'm following along to see how this turns out. I had my f/u appt with my GI yesterday (1st f/u after the endoscopies). I asked for the genetic testing b/c I would like to know since there is no one else in my family who has been dx (I know, a common theme, it seems) and I would like to know for my son. She is fine with this. Interestingly enough, in the course...
  19. mamamonkey
    Crazy-Gnarls Barkley
  20. mamamonkey
    It's the End of the World As We Know It-R.E.M.
  21. mamamonkey
    I am happy to report that round 3 vs. gluten-free dough I WON! I have cinnamon rolls ready to go into the oven. The triick this time seemed to be parchment paper (I had used wax last night). Or, it could have been the recipe (I used the Pamela's flour blend and the recipe on the back of the bag). Either way, they are resting on a well greased sheet waiting...
  22. mamamonkey
    It was pizza dough, but from a Bob's Red Mill mix. I'll order the Chebe to try next time. Thanks for the tips!
  23. mamamonkey
    I have now tried twice to make dough from gluten-free flour. Both times it has ended up in disaster, being miserably sticky. I have put extra flour on the outside. I tried rolling with the dough between wax paper. I have ended up completely frustrated and about in tears both times. Any tips?
  24. mamamonkey
    Just had thyroid function checked about 2 weeks prior to dx. I have a thyroid nodule (which is a cyst), so it gets checked frequently anyway. I also already take 4000 IU of vitamin D every day. I'll add all the others to my list.
  25. mamamonkey
    My Girl- The Temptations
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