Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by cyclinglady

  1. cyclinglady
    Just keep in mind that more than 30% of the population carries the genes that could develop to celiac disease. Only a very few actually do. The genetic test helps exclude celiac disease. If you do not have the genes you can stop worrying that you will develop celiac disease. It sounds like it is too late to test for antibodies for celiac disease...
  2. cyclinglady
    My first labrador had allergies. Her vet prescribed Benadryl (generic). She did not develop dementia!
  3. cyclinglady
    I agree with Tessa. When celiac disease is activated eating ANYTHING can cause pain. Try sticking to easy-to-digest foods (aka mushy or well-cooked) with little or no seasoning for a week or so and that includes fruit (think applesauce).
  4. cyclinglady
    I am glad that the new antihistamines are working! ?
  5. cyclinglady
    Are you celiac? Have you had follow-up testing? I know I can drop weight fast after a hidden gluten exposure. Open Original Shared Link
  6. cyclinglady
    First, I think you need to determine if you flare ups are due to active celiac disease. When was the last time you had your antibodies retested? Here is information on follow-up care: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Then look to your diet. I know you may think you are gluten free, but research has...
  7. cyclinglady
    Are you camping or staying in a hotel? If camping, start looking for a propane small camping stove. You can find them at garage sales or they should be on sale at Walmart. A stove top can make it easier and you need no electricity. If staying in motels, ask for a microwave. But your hot pot (I am assuming it is like my Instant pot) is so versatile....
  8. cyclinglady
    Welcome! Yes, you can have celiac disease, but the only way to know is to get tested. Ask your GP to run a full celiac antibodies panel. Do not go gluten free until all testing is complete and that included an endoscopy. Open Original Shared Link I am sorry that you are not well. I can share that I had a non-functioning gallbladder...
  9. cyclinglady
    Just wanted to ask if a HIDA scan was done to check the functionality of your gallbladder and not just to look for stones. A non-functioning gallbladder can not be seen on a CT or ultrasound.
  10. cyclinglady
    Besides celiac disease make sure other issues like Crohn’s are firmly ruled out. My niece finally received her Crohn’s diagnosis with a pill camera. Her damage was out of reach for both scopes. Just something to consider!
  11. cyclinglady
    Gluten free might be your best bet after all testing is complete. There was a recent very small study done out of Scripps in San Diego. Researchers wanted to see if the hype over the AIP diet ( Autoimmune Protocol) was valid. They tested UC and Crohn’s patients who stayed on their current pharmaceutical treatments while on the diet. After six weeks, ...
  12. cyclinglady
    I did not answer your question about your medications. I do not think those drug would impact your results which are measurinng antibodies. A drug that suppresses the immune system (like steroids) could. I have celiac disease and had some symptoms come up (stomach) despite being gluten free for years. My blood tests even suggested that gluten was...
  13. cyclinglady
    The only gluten item I miss and have not been able to replicate well has been sourdough bread. It is a small sacrifice to pay for improved health. Keep eating gluten until the endoscopy is done per your doctor’s instructions. The endoscopy is the gold standard in diagnosing celiac disease. It can set a good benchmark for future testing and rule o...
  14. cyclinglady
    Why not go back on gluten and get tested for celiac disease? It might get you off the gluten free diet roller coaster ride. It can make it easier to adhere to a life-long gluten free diet when you have lab results that confirm a diagnosis. Learn more: http://www.cureceliacdisease.org/screening/
  15. cyclinglady
    It looks like your doctor ran the screening TTG. Did he run a concurrent Immunoglobulin A test (IgA)? That second test is used as a control test, if your are IgA deficient, then the celiac TTG IgA test would be invalid. Other celiac tests would then be ordered. To make things a bit more complicated, some celiacs do not test positive on the TTG (like me...
  16. cyclinglady
    I am sorry that you are you are unwell and uncomfortable! The flutter could be gas as it sounds like you are bloating. A common celiac symptom. Take this time to eat all your old favorites. That is what I did. For example, I bought cookies, had a few and then gave away the rest. That way I would literally go through all my favorites within weeks. ...
  17. cyclinglady
    I am so sorry for all your losses! There are so many reasons why the original biopsy could have been negative. 1) damaged areas missed (the small intestine is the area size of a tennis court or more), 2) not enough biopsies taken, 3) biopsies not taken in the recommended areas, 4) your damage was located beyond the reach of scope, or 5) you could...
  18. cyclinglady
    No oats for me. Because I have diabetes, I avoid grains as much as possible.
  19. cyclinglady
    Antibodies can be elevated for over a year. The important thing is to see them in a downward trend. Know that gliadin antibodies were designed for helping to diagnose celiac disease and not for follow-up care. The problem is that they are the only “tool in the toolbox” that is not evasive. That is why doctors use them. I had three courses of ant...
  20. cyclinglady
    Okay, Karen is right. Both you and your daughter should talk to your doctor about these test results so that you understand them. I am not familiar at all with this testing. I was just curious about how pernicious anemia is diagnosed. I would ask your GI as to why the celiac antibodies have not been run as there are many things that could damage...
  21. cyclinglady
    Congratulations! Your posting will be sure to help someone who has been struggling with hair loss due to celiac disease. Hope you feel 100% soon!
  22. cyclinglady
    My lowest ferritin was a 2, but I typically always reponded to iron supplements. Enough to make many doctors happy. My periodic bouts with low iron was attributed to heavy periods, but what did I know? I would take the iron, be fine and then eventually my iron would drop. I processed iron but did not absorb enough to store it. My hemoglobin though...
  23. cyclinglady
    Dang, Gemini. I have to stand corrected about anticholinergics (e.g. Benadryl). A new study released states that only certain types of anticholinergics might cause dementia. Open Original Shared Link Sigh. So hard to keep up and I am not even trained in anything medical (except for CPR and First Aid!)
  24. cyclinglady
    Thanks!
  25. cyclinglady
    You could very well have celiac disease, but there are 200 symptoms attributed to celiac disease and those often overlap with other illnesses. You could get tested, but all celiac testing requires you to be on a full gluten diet for 8 to 12 weeks prior to a blood draw (it can take time for antibodies to ramp up and spill into the bloodstream). You have...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.