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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
  2. cyclinglady
    A colonoscopy is not used to diagnose celiac disease. An endoscopy is used to obtain biopsies in the small intestine.
  3. cyclinglady
    There are over 200 symptoms for celiac disease. Some Celiacs do not have any symptoms. You should talk to your doctor (the one who ordered the celiac tests). He or she can guide you. Open Original Shared Link
  4. cyclinglady
    Welcome! It looks like your doctor ran the typical screening test for the TTG. It is negative, but you did not receive the complete celiac antibodies panel. You can request the full panel to help you really rule out celiac disease. Here is more information: Open Original Shared Link
  5. cyclinglady
    Welcome! You do have a positive. That means that you should receive a referral to a Gastroentrologist who can perform more tests, including an endoscopy. During the endoscopy the GI will look for damage and obtain biopsies. A pathologist will determine if their is villi damage which is microscopic. Here is more information: Open Original...
  6. cyclinglady
    Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance? I notice you joined in 2014. Did you ever go guten free? How can we help? Sorry, I'm not a stool expert! You could Google it... Malabsorption? Standard lab tests that check for anemia and vitamin deficiencies, etc. should help make that diagnosis.
  7. cyclinglady
    You can eat just a slice or two (or equivalent) of bread a day for accurate testing. I understand about the high deductibles. We're self-employed and we pay for our health insurance.
  8. cyclinglady
    Sure, if it's gluten free, then fine. I am very allergic (like anaphylactic) to ibuprofen and aspirin. So, in my case, I would just tough it out. Go to bed. Sleep it off.....eventually. My money is on the garlic and onions. I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano). I just season with salt, pepper...
  9. cyclinglady
    Excellent point, GFinDC!!! I just assumed that Steph had the endoscopy and not just the antibodies tests.
  10. cyclinglady
    She (your PCP) can order a celiac blood panel. It might not be a complete panel, but it's a start. Any medical doctor can order one. A GI is needed for the endoscopy (ulcers, Celiac disease, h.pylori, etc.), HIDA scan (gallbladder) or colonoscopy (IBS). Since you just saw her, email/call/write a letter and ask her to order (lab) the celiac panel...
  11. cyclinglady
    I am not a doctor that's for sure. So, I can't even answer your questions. If you know you have pre-diabetes, you probably are working with a doctor. Can you email them and ask for a celiac blood panel? You can work on the weight loss and diabetes -- that you can handle yourself now and take action. I have diabetes and my glucose readings are fairly...
  12. cyclinglady
    The first step is getting a celiac blood panel. Any medical doctor can order one. Live near Chicago? They are do free screenings this month (check their website). The cost is less than $400 for the complete panel. If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies. Here's more...
  13. cyclinglady
    Welcome! At least you know what the source of your illness is....celiac disease. Now you have some validation. Feel free to write a letter to your old doctors. Be nice. Maybe you'll save someone else from the diagnostic hell you've been through. Okay. There's a grieving period. That's normal. We've all been there. Now the faster you go...
  14. cyclinglady
    He is checking you for several things. That is great news. If he strongly suspects celiac disease (and the TTG igA test is negative), please ask for the complete panel which can include the DGP and EMA tests. Why? I personally test negative on the TTG. The TTG is a good screening test because it catches most and is the most cost effective test, but...
  15. cyclinglady
    How about reaching out to your local celiac disease support group? Open Original Shared Link
  16. cyclinglady
    I am sorry to hear about your mother. It is not so hard to get a medical doctor to order a celiac panel -- especially if your father was diagnosed with celiac disease. Our family GP did not blink an eye when I first asked my daughter to be tested. If you think your doctor will disregard your legitimate request, you can either fire him or put the...
  17. cyclinglady
    You are right, the tests could be invalid. All the celiac tests require you to be on a gluten-containing diet. It is up to you to decide if you want to go gluten free. You can do it. Believe me, I know. Hubby is not officially diagnosed. He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP. It worked though...
  18. cyclinglady
    Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel? Had you been gluten free already?
  19. cyclinglady
    Try to stick to a whole foods diet. Things like unseasoned stew, soup, etc. Things easy-to digest, preferably not processed by a anyone except you. Too often new celiacs start using gluten-free foods (cookies, bread, crackers). Your body is not used to these grains and they often contain lots of junk. For example, I react to Xantham gum. It does not...
  20. cyclinglady
    Here are the actual tests. Open Original Shared Link Insist on the complete panel. Let them know (your doctor) that your father had celiac disease. Document in writing! If you have celiac disease, your life can be improved. All the things I attributed to aging were actually related to celiac disease. It is never too late to feel well! I...
  21. cyclinglady
    It is enough for the endoscopy, but not for the blood panel. It could be worth trying for the blood test, but there is a greater chance of it being negative. I assume you have been gluten-free for a while. I admire that you were able to do the gluten challenge! (I guess I should have pulled up your previous posts, but I was busy getting my kid to school...
  22. cyclinglady
    The tests you provided can not provide any information pertaining to celiac disease. You must be consuming gluten daily for 8 to 12 weeks in order for any of the celiac blood tests to work. Only 2 to 4 weeks for the intestinal biopsy. But both, yes, both are needed for a celiac diagnosis because many other things can cause intetinal villi damage. Why...
  23. cyclinglady
    The first two tests (at least in the US and most of the EU) have been replaced by the DGP tests (at the bottom) of GFinDC's list of celiac tests. Not all celiacs test positive to the common Screening TTG. The TTg is good and catches most and it was cheaper to run the best one (it is all about the money), but researchers realized they were not catching...
  24. cyclinglady
    Bravo for being strong enough to bring this topic up. Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI. Science is finally catching up to what many of us have already known to be true. Open Original Shared Link I have suffered from anxiety and still have some neuropathies. At first I blamed...
  25. cyclinglady
    Good point. My ferritin was a 2; however, I was processing iron just fine when I was diagnosed. That is what caught my GI's eye when I went for my first "over 50 club" colonoscopy. Celiac blood test positve (just one on the panel) and endoscopy revealed Marsh Stage IIIB.
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