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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! I am so sorry that it took you so long to get a proper diagnosis. Unfortunately, it is so common. Have you had celiac disease all these years? Who knows? But I would guess yes! Now that your blood test was positive, are you going to a GI for an another endoscopy (this time to check the status of your villi)? If so, keep eating...
  2. cyclinglady
    Well, this is what I would recommend -- get copies of your tests. Often, doctors just order the TTG IgA and the IgA deficiency test (a control test in this case). The TTG is really good, but not perfect. I should know, as I never have tested positive on the TTG tests even in follow-up testing. Let us know exactly which tests were taken and what the ranges...
  3. cyclinglady
    If you can get an endoscopy (and you have been on a gluten-containing diet -- go for it. I personally test positive only to the DGP IgA test. Never a positive on anything else even on follow-up testing. Now, my GI only orders the DGP IgA to monitor diet adherence. Weird, but true. You have so many symptoms. I would find the source. I would not...
  4. cyclinglady
    The night sweats? It could be related to celiac disease (isn't everything?). I started them six months after my daughter's birth. Lost 17 pounds in three weeks (only gained 26 total in my pregnancy). We attributed them to perimenopause and post-pregnancy hormonal shifts. Those night sweats came back over the course of 12 years. Really bad. Slept next...
  5. cyclinglady
    This is funny. Was at my GI's for annual check-up (not related to celiac disease, but normal stuff since my PCP was out on maternity leave!). Nurse took my temp and asked me if I was sick. It was 101.4 degrees. Right as I was getting my temperature taken, a hot flash hit me. After my GI visit, I had the nurse take my temperature again. It was normal...
  6. cyclinglady
    After six months, your doctor should be ordering a celiac antibodies follow-up test to determine whether or not your antibodies are falling (implying that you are gluten-free compliant). They may still be elevated but a downward tend is what they are looking for. Celiac symptoms can wax and wain. It is so frustrating! Lab tests can help you figure it...
  7. cyclinglady
    Karen has offered great advice. Get those antibodies for celiac re-checked. It should be done annually. Don't forget that celiac disease is an autoimmune disorder. You can develop additional AI issues (e.g autoimune: hepatitis, diabetes, thyroid, crohn's, etc). There is new research about Zonulin and leaky gut. Celiacs tend to have too much of...
  8. cyclinglady
    I adore EggNog! The best "store bought" is Strauss Organic. It is expensive, but worth every drop. The Strauss Farm is in California, but I bet there are other organic EggNogs out there. It does not contain additives. Not that the additives contain gluten, but I prefer simple ingredients and that includes creamy fat! The Silk EggNog is gluten free...
  9. cyclinglady
    I can not help you with a doctor recommendation, but I am curious as to when he was last tested for celiac. I am sure you already know this, but Doctors recommend that first-degree relatives get tested every two years or so (or sooner if symptoms warrant it). Celiac disease can develop at any time with or without symptoms. That first year of college...
  10. cyclinglady
    Good grief! The link I provided you was just the start of some research related to iodine and the impact it can have on some DH patients. Google the topic and you will find more information about it. No one has suggested that you eliminate iodine from your diet, but a reduction might be beneficial if you actually had DH. How are we to know what...
  11. cyclinglady
    When was the last time your antibodies for celiac were tested? Are you living on campus and eating the "gluten free" food? Me? I cut way back after a glutening. I conserve my energy for healing. So, in your case, I would give up at least one of the jobs. You can not lighten your school load at this point in the quarter/semester. School is just...
  12. cyclinglady
    There are no medically accepted tests for a gluten sensitivity (hopefully soon). Celiac disease must be ruled out first. Are they accurate? Open Original Shared Link i would strongly recommend a full panel. Why? I am one of the weird ones. I test negative to the common TTG. My endoscopy revealed a Marsh Stage IIIB. If the celiac blood...
  13. cyclinglady
    Welcome to the forum! Your research is impressive. Unfortunately, only you can make the best decision for yourself. My comments? With the National Health Act (aka Obama Care), I do not think you can be denied insurance. Of course, that could all change within a few years. Nothing in life is certain, that's for sure. i can tell you from...
  14. cyclinglady
    Hi Thomas! The best way to determine whether or not you have celiac disease is to get tested: Open Original Shared Link It is very important that you continue to consume gluten daily until all testing is complete. Your symptoms? Hard to say as there are over 300 of them attributed to celiac disease. Be sure to get a copy of your test...
  15. cyclinglady
    Iodine is a legitimate cause or source for DH flare-ups. It does not cause Dh, but aggravates it. Open Original Shared Link Consider reading the DH section of the forum for tips on how to survive DH (besides the obvious at avoiding gluten at all costs!!!)
  16. cyclinglady
    The reality is that about 2/3 of adult celiacs never have complete intestinal healing. Symptoms can and do resolve for many, but the intestinal damage can remain. A more recent study (last month or two) followed children. Celiac experts had thought that all children healed on a gluten free diet. Turns out that 20% do not heal. Why? Doctors do not...
  17. cyclinglady
    Do you have celiac disease? If not, I would strongly recommend getting a celiac blood panel to rule it out before going gluten free.
  18. cyclinglady
    Celiac symptoms can wax and wane. Celiac experts agree that these changes make it difficult to identify celiac as there are 300 symptoms for it. I was anemic when diagnosed. No tummy issues. Now, after a glutening, my symptoms are severe. I get all the GI issues, plus more!
  19. cyclinglady
    Since you can not get into see a doctor, consider a Biocard. I think they are available from Boots. While not the most accurrate, it is a start. It has worked for several people in the UK and Canada. A positive really motivated them to get further testing from their medical doctors. I was diagnosed formally three years ago, but my hubby went gluten...
  20. cyclinglady
    The manufacturer of this product doe NOT recommend it for those with celiac disease.
  21. cyclinglady
    Welcome! I am guessing that they are still running a few tests (perhaps an IGA deficiency test) or just have not formally finished the process (paperwork, quality checks, etc.). It is hard to be patient! Hang in there! Let us know the outcome. We are here to help.
  22. cyclinglady
    Nah.......there are no gluten sniffing dogs....yet! With 20% of children who are dietary compliant but are not healed (villi) after one year (per the subject article), I think dogs could be a solution.
  23. cyclinglady
    I'm going to hope for a gluten-sniffing dog! Funny, my 5th grader's science project was about cancer sniffing dogs. During her presentation, she used our labrador to demonstrate. She trained our dog to identify food masking as "cancer cells". It was hilarious! Our dog actually did it! Anyway, I can't agree more with Gemini about the TTG measuring...
  24. cyclinglady
    Me too, I am not a member of Medscape. Is this the article? I goggled the topic and filtered using "news". (Hope it works!) Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations Here is what I liked.....a gluten sniffing dog for helping kids to remain dietary compliant! Count me in!
  25. cyclinglady
    I would ask for a GI referral if your PCP is not authorized to order the rest of the celiac panel.
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