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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry that you did not receive proper treatment. You've been through the wringer! But now you can move forward and heal. I just want to add that our home is 100% gluten free. My hubby went gluten-free per the rather poor advice of his GP and my allergist. It worked though. Who else would stick to a gluten-free diet for 15 years? Does he have...
  2. cyclinglady
    You are not crazy! I noticed that when I attempted to post a few times this morning, or sign on, the forum seemed wacky. Typing was weird too. I gave up.
  3. cyclinglady
    Why use that artifical stuff? Kids at our school are getting a 24 hiur bug that resembles a bout of food poisoning. I agree that it could be that too.
  4. cyclinglady
    Beta glucan (found that listed in Philosophy's ingredient list). What is that? Anyway, I looked it up and it appears to be derived from barley or oats (and other plant sources). Not sure how processed it is meaning if gluten is removed. Me? Either I would call the manufacturer to verify or skip using this product. There are many other lotions out...
  5. cyclinglady
    No, to my knowledge there is no serious damage from intolerances. You might get bloated, experience inflammation, etc., but you will not trigger an autoimmune reaction. Only gluten can do that to a celiac. The histamine intolerance may or may not apply to you. The problem is that everyone has different levels of damage. it is trial and error. ...
  6. cyclinglady
    What an amazing story (that is not the right word, but i think you understand). By sharing, you will help so many (as you have been for years). You are an inspiration! I can see why you continue to help so many on this forum. Not everyone has a classic textbook case of celiac disease. It is one of the reasons I remain active on this forum too....
  7. cyclinglady
    Okay, so now you know that a gluten exposure (aka "glutening") can knock you for a loop. Celiac disease does NOT produce consistent symptoms. Each glutening can vary. You still need a new Gi, but the advice that your hubby go gluten free might be good. Once I went gluten-free after my diagnosis, my hubby's health improved (he had been gluten-free...
  8. cyclinglady
    The gluten-free diet has a steep learning curve. Besides avoiding gluten, you must figure your own particular set of food intolerances that may resolve or may not. Remember the small intestine is damaged. First, I would recommend a whole foods diet until you feel well. That means not eating processed bread which contains a variety of ingredients that...
  9. cyclinglady
    Were you diagnosed with celiac disease? If so, you may experience hair growth after being on the gluten-free diet for six months or longer. Other issues like hypothyroidism can impact hair loss or you could be like my hubby -- genetics is his cause. Hard to say with so very little information.
  10. cyclinglady
    Congratulations! So excited for you. I would not worry. (I know, easier said than done.). The good news is that you have been gluten free for a year. I would imagine that avoiding gluten at all costs is critical. Stick with whole foods and I personally would not eat out! My cousin had placenta Previa. She was able to carry until full term...
  11. cyclinglady
    I am not a doctor, so I can not make a diagnosis. The test is negative, but there are some folks who test negative and still have intestinal damage, but that is very rare. Was he consuming gluten daily for 8 to 12 weeks prior? A gluten diet is needed. My house is 100% gluten free. I test my kid every few years (so far she is negative), so I have to make...
  12. cyclinglady
    I agree with Karen. Besides, the IGG test versions were run and they were negative too.
  13. cyclinglady

    ARCHIVED Shakeology

    cyclinglady replied to boysmom's topic in Sports and Fitness

    Thanks for the warning. But seriously, why not just eat a varied whole foods diet? I take no supplements, am not deficient in anything per my GI (who runs a complete nutritional panel annually), eat natural foods with very little processed foods and exercise. Of course, I have been on the gluten-free diet for several years now, so I healed enough to absorb...
  14. cyclinglady
    Get a new GI. At my dx, anemia was really my only issue. Got glutened last summer. I was vomiting and had all the ab symptoms. Got hives, rashes, itching, passing out......too. I just toughed it out as I was on vacation. Four weeks later, my GI tested my celiac antibodies and they were sky high. Off the charts! I was "barely positive" when...
  15. cyclinglady
    The elevation in your DGP still indicates that your celiac disease is active. Going down? Going up? Maybe. You do not know what the levels were just prior to your getting glutened. Even though your symptoms might improve (or not), about 1/3 of celiacs do not experience intestinal healing. Consider the "Dr. Fasano" diet (eat whole foods that are naturally...
  16. cyclinglady
    With your slightly elevated calcium, has parathyroid issues been ruled out? Look at this site's yellow box of symptoms. Read about even slightly raised calcium can be overlooked by doctors, but the impact to the patient can be awful. Open Original Shared Link
  17. cyclinglady
    I have taught Water Aerobics and Water Arthritis for 25 years. I highly recommend it. It puts less stress on your joints. My students swear that it helps arthritis, heal from surgeries like knee replacement, back issues, Fibro, and MS. Helps with balance too. Find a class and a warm pool. It is fun and social and it is not just for old people. Families...
  18. cyclinglady
    Here is some information about getting tested for celiac disease from a reliable source: The University of Chicago. Open Original Shared Link It is CRITICAL to be consuming gluten daily until all testing is complete. Celiac disease is an autoimmune disorder like lupus, Crohn's or MS. Gluten just happens to be the "trigger" for launching an...
  19. cyclinglady
    If you consumed it, I hope you feel better soon.
  20. cyclinglady
    My 20 year old niece has been sick for four years. Stomach pain that occured infrequently, but severe enough to be taken to several ER departments around the U.S. Finally, her 4th GI ordered a pill camera. She had extensive damage at the end of her small intestine where ONLY the pill camera can travel. He was surprised that she is not in pain daily...
  21. cyclinglady
    Ask your GI for a pill camera. Not saying that celiac disease is not possible, but you have an elevated asca. A pill camera caught my niece's Crohn's diagnosis. Her damage at the end of her small intestine was pretty severe, yet she did NOT display any typical Crohn's symptom except for rare pain (every other month or so).
  22. cyclinglady
    A year before checking your parathyroid again? That seems off to me. Lab levels can and do flucuate. Google it. Can you switch doctors? See an endo? Get a second opinion? Pick the symptoms that align with the parathyroid. Gee, my thyroid can act up even after being constant for a year or more. If I experience symptoms, my doc runs the tests. ...
  23. cyclinglady
    You do not need to cook for a picnic. Just get some gluten-free deli meat, a selection of cheeses, gluten-free crackers, fruit, hard boiled eggs, salad, veggies and hummus, gluten-free potato chips, chocolate....the list is endless. The secret is presentation. Nice platter, napkins, plates, utensils and glasses. A nice towel, blanket or chairs to sit...
  24. cyclinglady
    Yes! Do not eat out! Seriously. I do not have DH, but if I did, there is no way I would eat out at least until the DH was completely gone. As it stands, I eat out only at 100% gluten free restaurants. Eating out is not worth the risk of getting glutened. I do not have the rash, but my antibodies increase and my symptoms last for months....yes...
  25. cyclinglady
    I would put my money on celiac disease. Four months into the gluten-free diet is such a short time. You need a year or longer to resolve most issues. Use the search box to look for joint pain. Lots of members had it and it resolved.
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