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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    It could be your parathyroid acting up again. Easy to find out. Ask your doctor to test you.
  2. cyclinglady
    We are not doctors, but if you suspect celiac disease, ask your doctor for these tests: Open Original Shared Link The important thing is to keep eating gluten daily or the tests results will not be valid. I hope you figure it out!
  3. cyclinglady
    Good catch....pasta, Raven!
  4. cyclinglady
    Celiac disease can develop at any time in your life. So, it would be good to get re-tested. Some celiacs do not get a positive on the blood tests, especially those with DH. You should rule out other GI issues too. A gluten sensitivity can cause all your symptoms, but you just do not have intestinal damage.
  5. cyclinglady
    It could be withdrawel symptoms. Many members have had similar complaints. The juices might have upset your stomach too. Stay the course and learn about the gluten-free diet. If you have celiac disease, each gluten exposure could increase antibodies (flare-up) that can last for months.
  6. cyclinglady
    1. Need the lab ranges as they vary from lab to lab. 2. Make sure you have been eating gluten daily for 8 to 12 weeks prior to a blood draw (celiac test) or tests will be invalid. 3. Read up on DH for advice and skin biopsy information.
  7. cyclinglady
    It can take a while for others to feel comfortable eating while you are not. My family and friends are now used to it. I get a soft drin, water or a glass of wine. Back in my day (long before my celiac disease diagnosis), I caught many a beau by preparing a picnic. It worked every single time. It allowed for great conversation. Held in in very...
  8. cyclinglady
    If this will make you feel better, my mother-in-law presented with eye issues some 15 years before it affected her walking, etc and she had MS. With a positive bio-card for celiac disease, it is most likely Celiac disease. All should resolve on a gluten free diet. Follow-up with your doctor concerning the celiac blood tests he hopefully ordered to confirm...
  9. cyclinglady
    You are going to be okay! You are probably showing signs of malnutrition. The bone pain is going to take a while to heal on a gluten free diet. In the meantime, get something to sleep on to cushion you. I felt the bone pain most when trying to sleep. Leg cramps, again, you could be vitamin deficient, especially since you are anemic. Ask your...
  10. cyclinglady
    Yeah, I ran a 1/2 marathon and trained for (and finished) a 100 mile bike ride, while I was anemic months prior to my diagnosis. Amazingly, the body adapts....at least for a while. ? A full panel will help rule out celiac disease or diagnose it. If you do not get one, you'll never really know.
  11. cyclinglady
    Once again, your doctor seems not to be following standard protocol for diagnosing celiac disease. Read this medical article. Look at table 4. Note that since you had a positive blood test, you still have the potential for a celiac disease diagnosis. Open Original Shared Link
  12. cyclinglady
    But it can be higher. After my glutening last summer (and i have no clue as to what glutened me), my antibodies four weeks later were off the charts compard to when i was eating gluten daily prior to my diagnosis. Actually, each time i have been glutened, it has been much higher. Remember, gluten triggers an autoimmune flare-up (unlike lupus, RA...
  13. cyclinglady
    Do you have IgE or IgG allergies? If IgE allergies, anti-histamines and allergy shots should help (and an epi-pen may be required). If IgG allergies, i have to tell you that those tests are not always accurate. Google it. Consider researching Mast Cell Activation Syndrome. Good luck!
  14. cyclinglady
    I have watched one of my best friends die within six months of her Melanoma diagnosis. She left behind a husband and two young children. Now, a family member has been diagnosed with Melanoma Cancer. Back in my day, there was no sunscreen. No suggestions of covering up. Please use caution when exposing your skin to tanning beds. Read comments from...
  15. cyclinglady
    Like you, I was shocked that I had celiac disease at the age of 51. Anemia was my only symptom. I also had some bone pain due to osteoporosis. This resolved on the gluten-free diet and exercise. My bone scans show that i am holding steady. Good news for a post menopausal woman. I would expect much better results from a you ger person. Eating...
  16. cyclinglady
    Please ask your doctor to run the rest of the celiac panel. The TTG is excellent and when it was created, doctors thought it would pretty much catch all celiacs. Bu they were wrong. Often PCP doctors are prohibited from ordering the complete panel (it's all about the money). I always test negative to the TTG tests. Also, ask your GI doctor...
  17. cyclinglady
    Fifty days apart is a bit excessive for testing. At least based on the recommended celiac follow-up testing published by the GI Associations and celiac centers like the University of Chicago. They typically recommend follw-up testing at 3 months, six months, and then annually. The goal is to see an antiodies downward tend. It can take a year or more for...
  18. cyclinglady
    Welcome! Do not rule out celiac disease yet. People who are genetically predisposed can develop it at anytime. That is why my kid gets tested every few years even if she is symptom free. You might ask for the complete celiac panel again after getting back on a diet containing gluten. Do not settle for the screening TTG iGA. Why? I test negative...
  19. cyclinglady
    1. Yes. 2. Get a new colendar and do not trust Grandma to keep your kid safe. I do not trust my own mother. Why? She does not live the gluten-free life every second of the day. Easy for her to make mistakes. I also keep a bin of pans, etc at her house that i use. 3. If the knives are stainless, just wash them well. 4 and 5. ...
  20. cyclinglady
    I have some nuts.com bags in my freezer now! Yes, I use them. Gives me piece of mind for sure. I do purchase other nuts from Costco, but not the ones labeled that they are produced in a shared facility with wheat. I also take the time to contact nut companies and inquire about how they process their nuts. Usually, those companies just process the just...
  21. cyclinglady
    Welcome to the forum! I am so sorry that your son is sick. A DH rash is horrible! I encourage to read through the DH section of the forum. A skin biopsy from a celiac-savvy dermatologist is probably your best bet.
  22. cyclinglady
    @Posterboy, I am confused as to whether or not you have celiac disease because the blog you referenced in this thread stated: "I could go on and on but will close for now only to summarize that after 35+ years of general digestive upset (NCGS, Celiac Disease/IBS, GERD, Constipation, Diarrhea, Heartburn, pain, dissention, excess gas etc) and after 4 years...
  23. cyclinglady
    Who cares? It was a positive. The old tests are hardly around any more, but they were still pretty good. The DGP is better, but in your case it does not matter. It might matter if it were negative.
  24. cyclinglady
    Gluten free might not solve all your problems, but it can help. It did help my thyroid (see my edited response). Cured? I do not think so. Read about a blogger with RA. She improved on a Paleo diet, but after a year or so, her RA progressed. So, diet is not the complete answer, but it can help in my humble opinion.
  25. cyclinglady
    Welcome! These members have not posted in a long time, but newer members may have had the same issues, so it is good too bring it up. I do know that neurological issues that are celiac disease related, are usually the last to heal. I saw your earlier post in June. This might help, but I have not had my GAD antibodies tested, but my thyroid antibodies...
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